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Praying here, tonight, LL1.

You have helped us all. Our turn to bring you to The Father with earnest petitions.

Big hugs to you! 🤗
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Barb, so glad you are here. Did you get your AC issues solved? I come here also everyday to hear about how Lea is doing and hoping for better news. I seem not to be able to leave PM's anymore. Not sure if it is me or the site.
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Lea, hoping today was better in some small way.
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Ugh and ugh….at my house we can soooo relate! Dear son has had three hospitalizations in the last four months for a total of about 4 weeks and each time we were both blessed with some excellent care and some unbelievably crappy care. He quickly runs out of usable IV sites and we dare anyone to poke him until the person known as the hospital sharpshooter comes with the magic light for veins. We had a sign posted on his door that labs were to be drawn before midnight or after 6am, none of that 3am bloodwork crap. And no middle of the night weigh ins either. You really do have to advocate for yourself, even at the time you feel least like bothering. Our follow up surveys always include the names of employees who were kind and helpful as well as those who really need to be working in another field. Still praying for you often, peace, rest, and healing, and I’ll add not wanting to kill anyone incompetent 😜
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My husband hates hospitals. Trama at 4 yrs old.

37 years ago was his first AFib problem and another 23 years later. They have him in a small unit for heart patients. He was put on a heart monitor where they place those sticky leads all over his chest. They told him if he needed to go to the bathroom care a nurse for a bedpan or urinal thing. Not my dear sweet hubby. When he had to go, he took the leads off, walked down the hall to the bathroom, went, walked back to his bed and put the leads back on. The nurses never knew he had done it.

He is deaf in one ear and getting that way in the other. I make sure the staff is aware of this. Do they tell the next shift, no. He has to wear his hearing aid while he is sleeping because they come in thru the night and ask him questions. Next time he is in the hospital, I am bringing in a sign that says "THIS MAN IS DEAF!' and tape it on his wall behind his head.

((HUG)) and...have a Blessed Day.💞
(1)
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My husband hates hospitals. Trama at 4 yrs old.

37 years ago was his first AFib problem and another 23 years later. They have him in a small unit for heart patients. He was put on a heart monitor where they place those sticky leads all over his chest. They told him if he needed to go to the bathroom care a nurse for a bedpan or urinal thing. Not my dear sweet hubby. When he had to go, he took the leads off, walked down the hall to the bathroom, went, walked back to his bed and put the leads back on. The nurses never knew he had done it.

He is deaf in one ear and getting that way in the other. I make sure the staff is aware of this. Do they tell the next shift, no. He has to wear his hearing aid while he is sleeping because they come in thru the night and ask him questions. Next time he is in the hospital, I am bringing in a sign that says "THIS MAN IS DEAF!' and tape it on his wall behind his head.

((HUG)) and...have a Blessed Day.💞
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EEEEkkkkkkk, hospital travails! So much with pain relief in my experience is how proactive RNs are allowed to be (that is to say sassy) to the MDs. If they cannot bother them, they tend not to, but in SF the RNs can pretty much go to war with the MDs for their patients with total immunity. If some pain med isn't working, and the patient is in pain, the MD's life isn't worth living until that RN has something that works. It makes a difference. So glad tramadol was magic because for some it is and for some it isn't, and on you go.
If we take up a go-fund-me to get a chainsaw out to you for the burritos you might consider using it on some of the staff. I used to tell patients that when they needed help and we were so short staffed we couldn't get there, then a thrown metal urinal (full) blasted out the door onto the tile walls and floors would work. Don't suppose you HAVE a urinal, tho, metal or otherwise.
I don't suppose in all of this it is worth asking if they have any idea the why of what you are experiencing? That is, have any tests or scans given any answers other than the small strokes?
I sure am hoping this is a better day.
That Chuck. He is amazing. But when you were there for HIM, so were you. N. and I have teased one another that we're at our best when we are in the hospital situation for one another. We laugh and chat and there is just nothing in the world but one another, whereas in normal every day we are sometimes ships passing in the night as we go about our daily lives.
With all that's going on you gave us a ton of updates. To my mind that means you are strong enough to do that, or that you are so MAD you are strong!
I am hoping for a good day. Thank you so much for keeping us so up to date, Lea. Wish I could loan you my massive veins. I used to walk hand in hand with my dad as a kid and study his beautiful arms and hands, all ropey with veins. I always wanted them. And I got them. Didn't know then that girls perhaps should not have a roadmap of veins bulging on their arms. The phlebotomists LOVE me. In school everyone wanted to be my practice partner in IV insertion and blood draws. Just as everyone wants to sit on the side I pass with cards. They are sure to win.
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LL, it's painful to know that so many people are just *not* problem-solvers when they can be. My grandson's Mother is an RN and she is dumb as a box of rocks. My own Mother is a retired RN and just cannot believe someone that stupid has a nursing degree. Please, no offense to nurses as a group -- I'm talking about individuals.

It reminds me of the cynical joke: "What do you call the person who graduated last in his medical school class? Doctor."

"God threw me a huge bone..." When I'm feeling beggy and desperate that is the exact phrase I use. Scripture says we don't have to ever beg God but in our human-ness many times it sure is hard to wait on His answers. So glad you were sent an angel.

Praying you have a good day today (((hug))) !
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All I can say Lealonnie is WOW at the lack of incompetence at the hospital you're in. You just can't make this s*it up can you?
It's unbelievable that this nonsense goes on in all hospitals not just yours and that they're able to charge a fortune for their nonsense and incompetence.
I am so sorry that you and Chuck are having to deal with all this when you deserve SO much better.
I'm praying that today will be a much better day all the way around.
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Since your last post was 4 hours ago I'm hoping that you are feeling comfortable enough to be resting right now. I know if I was going to feel miserable no matter what I'd rather be miserable at home, is there any hope of getting you out of the hospital soon?
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In the infamous words of Patrick Swazye in the movie Roadhouse "be nice until it's time to not be nice." That might be the theme of your hospital stay there Lea with the nurses and doctors.
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LL: God threw me a huge bone tonight by sending an angel RN Ariana to care for me. I was struggling to breathe bc of all those nebs and feeling pain level 4. She clipped the oxygen on me, READ MY FILE and said how about a Tramadol for pain? I said ok.and immediately the chest discomfort lifted. Then the mild Tramadol kicked in to relieve the pain . Then it was time for the meclizine which finally attacked the vertigo and I'm feeling so so so much better, She could not get an IV in but stopped after 1 try and called in the hospital pro who has an embroidery magnifier on wheels w a goose neck he uses for small veins! He installed the damn IV in one poke on my top left FOREARM which hurts like hell going in but then it's immobile. Fabulous idea. To me it's unbelievable to have so few capable.

Hope, miscommunication is the issue here along with a computer system that uses only black and white and nonsensical charting w symbols and was scrapped decades ago. There will be no more breakfast burrito for me. The innards were good but the tortilla was shoeleather. Chuck brought Cheesecake Factory slices for lunch but dinner here was good. A build your own pita. I'm not offended that you laughed....its a comedy show here. Remind me never to tell the old man i crave something bc then he goes berserk and i had SUCH heartburn from that half a slab of pure fat i ate. Then he was trying to push more on me and i had to bring out Lea Light again and tell him to eat it himself or throw the damn thing out 😁😂🤣

Thanks Pam,,, I fully respect nurses, but this was a chit show till tonight. For Ariana to come up w a plan to help me that was successful means I'm nominating her for a Daisy. I am fair and complain/advocate when necessary, but praise when it's warranted. I did the same for a decade on behalf of my parents w no regrets.

Here it is 110am and I am wide awake watching American Pickers and typing on my tablet 😎
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Lea: Good grief - is ANYONE competent in that hospital? Yes, omeprazole is available OTC, but to tell the patient's husband to go purchase it at an off site pharmacy is UNACCEPTABLE. Who serves inedible food?! I can relate to some of these. I also have small veins and after contracting double pneumonia from a rare side effect of an ex urologist rx'd Macrodantin (discovered by me as no med professional had heard of the rare side effect!!) and being hospitalized ×4 days, three nurses were unsuccessful in the IV insert. They then bring in "the specialist." Oh joy - he fails. Finally they get someone after I said to get my sister in law, an IV therapy RN flown in from California. DD was livid to hear one day that my lunch was delivered at 4:00 PM. Seriously, enough 'me story.' Hope you can get attention IN the hospital. Hugs.
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Holy crap! I hope you are not offended, but I am almost in stitches over here (well, in stitches and at the same time, ready to throw down with the staff there). It sounds like you have “The Office” version of a hospital situation going on there.

Good thing you brought your East Coast moxie to the party.

I have great sympathy for hospital staff, but I am always amazed at the bumbling. Almost every time I or one of my people have been in the hospital, I have had to ride herd and double check *everything*. It is almost always communication gaps or interdepartmental arrogance that is the culprit.

Tomorrow morning, when they deliver your brick of a breakfast burrito, throw it at them while you yell “Olé” really loud. Maybe have Chuck bring a nice sombrero. That should teach ‘em:D
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I do understand, and hope things improve.
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Sorry Pam, meds aside, this is ridiculous. My DD is an RN too, so I'm not unsympathetic to you guys. Just try being a PATIENT sometime, in pain, being told gibberish as though it were God's truth, and learn from the other side of the coin the reality. Not ONE DOC or nurse here ever heard of brain zaps yet they are a common occurrence, esp after trying to stop an SSRI like Cymbalta. Google and Reddit are both loaded w info on the subject. The 20 something's should be aware of those 2 sites? How do you help someone not knowing what their symptoms mean???

J/S
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After 1 hr, fever still the same. I have pain in left ear and right side now, so CNA said "well let's keep our fingers crossed, eh". Who says that in the hospital.

Im done. Please God don't kill me w incompetence here.

No idea when I'm going home, not till I cam walk,...and the right antibiotic is given to me IF they can find someone who can put an IV in me.

😁

Nope, can't make this chit up! I'm sue I'm The Bad Patient now for trying to advocate for myself. Tough titties. I'm here to get well and not be killed in the care or lack of being provided. I did rein myself in though bc I wanted to tell the nurse to set a timer next time she has to use the bathroom for 40 min and just hold it in for that time. What if I'd had to poop? Shudder
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Lea,

Geeeez, sounds incredibly frustrating! I hope that you will start to feel better soon.
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Pt2. Nobody feels comfy putting a new IV in my arm! Hot diggedy dog we're on a roll tonight! 2 shifts nobody comfy placing an IV???

Ay yi yi 🙄

Then I told them 2x I have a fever. Finally the CNA begrudging took my temp and said "it's 37.5" and was walking out. I said what's that in Fahrenheit which is not a ridiculous question. Oh she didnt know! I asked her to PLEASE find out and she barked back 99.5. Meanwhile my face is beet red and my back skin was on fire. My norm is 97.5. Holy cow, now they're trying to force Tylenol on me insisting ibuprofen is not in the MARS!

Chuck was purple when he left here.

But the good news prevails.
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I hate to say give your RT a break,, because I am one.. LOL But even at my top rated hospital sometimes we can;t give you what you take at home because,,, drum roll here,, we don't have it!! I am always amazed at what we can;t give because of this! You do have the right to use your own meds,, if they give you push back just tell them to roll with it! They want to give you what they have so they can bill you for it. I have no idea why we don;t have all the drugs,, but thank the insurance companys for this ( sarcasm here) . I am also amazed by how many people we put on nebs who do not take them at home,, why am I doing this?? I think they just see you are on something at home and try to substitute something!
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So much for the breakfast burritos here in Hospital Hell. The tortilla required a chainsaw to cut thru it, the fruit cup shot across the room bc the Tray Tables Made By Sadists cannot be operated by one person so it was crushing my legs. Then in came the parade of doctors, nurses, respiratory therapists (bc they don't carry my inhaler and have chosen to nebulize me which is causing ISSUES HELLO. When I complained, the doc sent the SAME JAMOKE back in w another neb! I sent him off and Chuck brought my disc from home. And the social worker and hospitalist who insisted strokes come from CANCER and not treatments. I asked him if he thought I should hold up a laughing face on a stick for all to enjoy my special personality, or just talk turkey and cut the crap? I keep a lid on my new York attitude but felt it necessary to bring on Lea Light twice today. Why?

I was left to wait 38 minutes to go pee. Nobody came to get me off so Chuck did. I'm having a horrendous day with fevers, brain zaps and vertigo today. The super rude CNA blew my IV with a TON of saline and hmm, since I have SMALL VEINS they just don't know who can put in a new one. Sounds like maybe Mr Kimball or the pet pig Arnold from Green Acres? My leg pumps pissed out at 730 am and I've been asking for new ones, with no luck at 6pm. Just a few honorable mentions. But the piece de resistance was the doctor saying no problem for 2 days to my needed Omaprezole and come to find THE GREEN ACRES PHARMACY DOESN'T CARRY IT! The nurse told Chuck to GO BUY HIS OWN AT CVS! THAT WAS the last straw. Chuck went to find the charge nurse who I unleashed Lea Light on. SHE said he never shouldve never been told to go to CVS! Within 15 min the leg pumps were back on and shed have a talk w the staff.

Good news is when the 3 docs came in and one said cancer causes strokes, not treatment, I nicely ask them to PLEASE PULL UP AND COMPARE ALL MY BRAIN MRIs to see WHEN these strokes first appeared in history. They obliged.

THE ANSWER IS.......2018! I almost cried I was so relieved! Although why tell me NOW for the first time EVER about 5yr old plus strokes????
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CX,
I think the only thing that got me through the confusion and worry of my breast cancer all those 35+ years ago was laughter. I had the most IRREVERANT friends. When I went in for my biopsy under the arm my best girlfriend, who worked with me, said "OK I will drive to work so I can bring you home in the car after you wake up" and my friend Roger said "Oh, no, I am going to drive so I can bring her back" and N. was there, my partner, and said "Don't be silly; I will be there all day with my car, and she's coming home with me". At that point Roger shrugged and said "OK, we will ALL drive, we will ALL bring her back. With the lights on. And driving slow". He meant, of course, the funeral cortege. We laughed until we cried.
What I found when I was sick is that the reality of it was so different than the fears I had had as I read my patient's charts for so many decades. You are just so busy. And you can't be afraid 24/7. Between being afraid and not being afraid, real life keeps happening. You can't BLOCK the fear or it hunts you. But you can't stay afraid, either. Life just won't let you. There's still all the beauty and all the angst. All the love and some not-love, too.
And constipation, as well!
I just saw my friend out at the end of last year. She KNEW she was going, had opted for no treatment; but she was on Etsy shopping for Christmas stuff as the Hospice folk came and went! And we laughed. We had so much laughter.
I am such a somber, thoughtful, and mirthless creature. I NEED fun in my life and I sure love those who have brought it to me.
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‘Scuse me, but you and Alva are so stinkin’ funny, with your back and forth!

Sorry about those shots!

And, I’m praying right now, for the miracle of a restful night in that hospital! 😘
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Oh Lea, what a journey you are on! Praying for grace and strength.
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Just read you are now in the hospital. Praying all goes well. Here is a ((HUG)) and my "have a blessed day". 💞
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Alva,

That is one of my all time favorite movies! You have excellent taste in films. Every movie that you have posted about I love!

Lea,

Breakfast burritos are great! So much better than Jello! LOL 😆

I love your red hair! So pretty. Cute style too!
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Emphasis on age I will take. Hard won, and paying for it with here-a-pain, there-a-pain every single day.
I am too wordy to get any votes on the site. I always envy your cut-through-it-quick-Dr. Laura-style. Whenever I have to write some semi-legal thing I take it to N. and he says "cut it back" and I do so, and return with it and he says "cut it down" and I do so, and so on for about 3 tries. When I saw the film A River Runs Through It I was so taken that the Dad, who had an author-to-be son, and kept saying to him "make it shorter and bring it back" over and over again when he was in school. I THINK that was the film, anyway, but--you know--the AGE thing?
I am a breakfast burrito kid, myself of leftover Hunan Chinese or Thai. I am glad the food is good. I so looked forward to it when hospitalized, as it was about all that cut up the day.
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Bandy he. There is very little "One thing causes a certain symptom like vertigo for anyone. Even migraines are known to bring it on.

Alva, no jello for me, I'm more of a breakfast burrito type myself. This hospital has good and modern food which is unusual, we all know YOU are the #1 advice woman/guru here, not me. Age (lol) and a lifetime career of nursing gives you the leading edge on me 😂😁🤣 with an emphasis on the age factor. Tee hee.
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It took till 930 last night to get a room and the brain MRI w contrast! I'm nervous to hear those results and hope beyond hope the strokes WERE there in my Jan MRI just not mentioned. So just in case of more bad news to come, I hurried up and ordered a breakfast burrito w fruit cup and what tastes like TAB to me. Pure saccharine w cola flavor. When I drank it it came in a pull top can 🤣

Had to get oxygen cannula last night bc my saturation stats fell to the mid 80s 😑. Feeling like I'll be coming home w permanent orders for night oxygen. Set up w heart monitor looking for afib which would warrant blood thinners. O/w Plavix and something else is the protocol for stroke aftercare/prevention. 10 shots of Lovonox injections in the belly is ongoing as a blood thinner for being bedbound. They dont hurt much at all.
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Good morning, Lea woman. What color jello are they serving this a.m.? Thinking of you. Al
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