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Lea, will be thinking about you tomorrow as you get these scans. I am hoping there is nothing to stop your therapy. I am so sorry this is another bump for you to negotiate.
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Lea, I have really positive thoughts about you that the vertigo and what you're currently feeling will subside soon - and I am hoping I am right. Hopefully once the fever goes down, I'm praying that all of the other symptoms will stop too.

We're all praying for you and I hope tomorrow turns out to be a very productive and positive day - and outcome. Sending hugs and positive energy your way
XO
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Geaton, your profile is down. Incompetence seems to be the word for today. Sturgeron is not available in the USA unless a sketchy online pharmacy is used and I pay for a doctor consult online. Nope. The nausea is no longer an issue, either, fortunately.

Thanks GG. Today has been none of what you'd hoped it would be for me 😑

I'm still battling what feels like vertigo with tinnunitis or some kind of hearing/balance issues.

I slept poorly again last night and woke up with raging brain buzzes and a fever of 101.5. Chuck was ready to call 911 for an ambulance to the ER, I was that bad. I can't walk without a cane, I can't hear sounds clearly, but I'm not nauseous at least.

The doc said I need a brain MRI and blood tests at the ER tomorrow to see if this is neurotoxicity from immunotherapy! Ugh. Now I'm really worried as this can be permanent AND stop or reduce my treatments.

Jjust the thing I was praying wouldn't happen.
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Good evening, Lea. I hope you are feeling settled, peaceful, rested, and pain-free tonight. May the Lord bless you with good sleep, not Ativan-induced.
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I read your reply as “No trip to the gym.” Wait, what?? Why would they even THINK of sending her to the GYM? What kind of crazy therapy IS this? She’s in pain, for goodness’ sake!

Took me reading a couple of responses before figuring it out.

No trip to the GYN!! 🤣

I’m moving slowly today, and so, apparently, is my brain!

Prayers continue!
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OMG, to be subjected, Lea, to the EX at this time! Any side effects you get today I am chalking up to ex-side-effects!
I guess YOU are where I got the Mrs. Lincoln joke??? I thought only I was perverse enough to love that one. I am a total Lincoln fan. Comes of my Dad taking me yearly to his tomb.
I hope the dizziness abates. So agree with you about medical. Either they make a federal case out of it or negate you completely. Hillary Mantel (author of Cromwell) was dealing with the British system but her whole story about the decades long missing of her endometiosis until it had destroyed her insides was a nightmare read. She basically said that for a woman, if they don't know/can't find what you have they just label you "crazy" and that eventually she actually believed them.
I hope the day is good, the ativan totally out of your system and you feel better. Thanks for the family celebration story as it was another of your gems.
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Lea,

Sending love and prayers your way.
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Lea: Hope and pray that your dizziness abates. Can you take the medication, Meclizine? I take that for my presyncope.
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Lea, ugh, ugh, ugh on the Ativan reaction! It has me wondering if that was the med my dad had once that he took at bedtime as prescribed and then he woke up standing on the bed in a panic, hurling pillows across the room, sweating and confused. He swore it off too and I’m thinking it was Ativan. And definitely glad you traded the loser husband in on a much better model. Prayers continue for restorative sleep, healing, peace of mind, and calm in the storm
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Hi Lealonnie, So glad you were well enough to get out and enjoy a family party. Yes, your ex sounds like a jerk, good that you got rid of him. Wishing you all the best. I'm still praying. Take care.
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The Ativan was .5 mgs when I only wanted .25. Oh no, says the nurse, that's a baby dose! Ridiculous. Gershun, I'm sure in my condition I had a bad reaction to it. I will NEVER take it again.

I feel horrible today with dizziness almost like vertigo which I'm praying this isn't. The hi dose steroids used to treat vertigo are not something I'd look forward to! I'm using my cane and stumbling around.

The infrequent pain in my right side is not gall bladder related,,that would have shown up on the CT scans w contrast. The liver, covered w cancer, is on the right side.

The nausea is mostly gone and I have Zofran and other ideas if it comes back badly. I wish you could all come sing to me at my window too, but this forum is the next best thing.

Stop biting my lines Alva, "Other than that Mrs Lincoln, how was the play?"🤣😃 is a line i use frequently.

Hope, I like your thinking and will try coconut water.

I've honestly had enough sleep these past 5 weeks that I should be fully healed by now. I'm ready to feel human again and stay out of bed!

Bandy, like Dr C said, life's not fair so we deal with what's on our plates. Let's hope he never has to though, huh? 😑 I'll be the first one to say our entire medical system is BROKEN. AND NO, THE ONCOLOGY NURSE never did call me on Fri as promised. Shocking I know. Not. My vaginal itching is all gone w no treatment too, so so much for a trip to the gyn. Oftentimes I question whether to even call these nurses, tbh. One rigmarole bs story after another. Tomorrow they'll probably conclude I have a brain tumor due to the dizziness and off on another wild goose chase they'll want to send me.

This immunotherapy has a TON of miserable side effects the doc said WOULD KICK MY ASS yet the nurses either dismiss them or want to make a federal case about them. So far I'm not bleeding from my ears so that's a good thing.

Send, I'm sorry you had a bad reaction to Ativan too, but happy to know I'm not alone. I was having bizarre dreams too that night like I was in a funhouse of no fun.

We did go to my son's house today for his and my grandsons joint
birthday. G/s is 2 and son 38. I had to lie on his recliner the whole time, but I made it. My ex was there and chewed my ear off the whole time about how horribly anxious he is about getting a new hot water boiler system installed tomorrow. Really? A man who's gotten clean PET scans for 7 years after a stage 4 colo-rectal cancer dx in 2016??? I told him it's never the stuff we're anxious about that happens. It's crap from out of left field we never imagined happening in a million years. Celebrate your victories and quit sweating the easy stuff. I'm sure it all goes in one ear and out the other bc he's a professional complainer and whiner.

My son had to chat w him 3x about NOT bringing up my cancer w me. I am not in the mood. So right in the middle of a video call with my grandsons other grandma, he yells out OH I HEAR YOU'RE NIBBLING ON POT GUMMIES?? Ugh, my son had a fit and said dad, you're on a sound sensitive recording so please stop. He wound up leaving 15 min later bc he was insulted. Best idea EVER was to divorce this man in 2002.
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LL1,
I am SOO sorry about the Ativan!

I’m praying for you to find a GOOD solution to the nausea! May God give wisdom to your docs.

I wish we could all show up at your house at once and sing through your window and remind you how much your are appreciated here!
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LL, hoping you have a better day today and can get some quality sleep. Praying for you right now.
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Oh, Lea. I am so sorry about the ativan thing. When my brother had his car accident (which incidentally got him diagnosed with the early Lewys) he was pretty smashed in the head, and pretty wonky. He got agitated and they gave him ativan. And he basically went kind of "mad" on them. He had one of those reactions I used to rarely see as an RN, where the effect wanted turns instead into the exact opposite.
For me, in fact, the benadryl, which puts hubby to sleep at 1/2 tab, makes me restless, with restless leg syndrome and etc. Drugs are just such a mixed bag.
Be real careful about taking ativan in future. From what I can quickly find on internet the half life of ativan is 12 hours, so you might feel a bit of a mess from it for a day or so until its out of system.
Hoping you feel better today.
I guess the awful irony would be to ask "But how was the nausea?" And I DO mean that as one of those awful jokes such as the one which goes "Other than that, Mrs Lincoln, how did you like the play?" I know. Some are out here being prayer warriors and some are telling entirely inappropriate bad jokes. But you know me. AND you know I love you.
What can I say.
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Good morning, Lea - so sorry to hear about sleeping for so long from Ativan. I hope it ultimately helped your body to recharge - and maybe your body really needed the rest.
I'm glad you've been eating watermelon - hope it helps to hydrate you (and coconut water helped me to hydrate more than regular water).

And just think that the feeling of nausea is the cancer cells are surrendering and leaving your body.

Wishing you an easy day
XO
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Checking in again, sorry to hear u had a bad reaction to Ativan. I truly believe that sleep helps you heal. The more the better.
Prayer gone up and...haveca blessed day.
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Sorry you had a bad side effect from the Ativan Lea. What dosage is it? I take the occasional Ativan for anxiety but am on a very low dose 1mg. Here in Canada I have a doctor who will only give me 8 a mth and I had to practically get on my hands and knees and beg him for that. Side effects are very subtle for me but then again I'm not in the fight you are.

But so sorry it didn't work for you. Have you tried Gravol for the nausea?

I still pray for you nightly.
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Lea: So sorry that happened in regard to the Ativan. Goodness - sleeping a full day is frightening. Prayers and virtual hugs, friend.
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So sorry that happened Lealonnie.
Ativan is a scary medication for me. Only one pill and I was standing next to myself (out of body) as if I was watching a slow motion movie. You are right to be ever so careful.

Not all of the immunotherapy side effects are from the injection maybe. Your doctor still needs to be aware that, for example, your symptoms could be
gall bladder. Don't want to worry you. Just be aware.

Still, more prayers this will be going better for you, more peace, more comfort.
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Had a very bad reaction to the 1 Ativan I took last nite at 7 pm. 🙄 I was dying of thirst all night and having tons of brain buzzes, it was awful. I slept ALL day today till 7 pm, so a full 24 hrs! Never again.
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Thinking of you, Lea. I’m so glad that your nausea has eased up.

Hugs, hugs and more hugs. Of course, lots of prayers too.
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Happy Saturday Lealonnie!
Following Geaton's lead, I offer my favorite scripture verses to bring you comfort:
God is our refuge and strength, an ever-present help in time of trouble. Psalms 46:1
Be still, and know that I am God. Psalms 46:10
I don't post often, but I vividly remember logging on to AgingCare while in the deep pit of "Dad care" in the spring of 2020. Lea, your posts touched me from the very beginning. You were honest, funny and had a keen sense of self-preservation. I needed all three! Still do! You have helped me tremendously and I will forever be grateful for your words of wisdom - and the belly laughs! Keeping you in my prayers wonderful lady!
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Praying here, on Saturday afternoon.

Asking God for the side effects to ease up, those cancer cells to be destroyed, and for peace to keep reigning in your hearts!
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Lealonnie, you're an inspiration. I think of you (and Chuck) many times a day. Is that praying? I like to think so! Thank you for keeping us posted, and much love to you.
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Looking forward to your update today and thinking of you, Lea. You are so amazingly "grounded". When the moments are tough you let us know. When the moments are good you let us know. You are able to live "real life" or "normal life" when the circumstances allow it, and seem so by nature "mindful" --staying in the moment that's there. And you can convey all of this to us so well. You're good at zeroing in on things.
You are my sort of "Dr Laura" of Aging Care. The one who can read it and size it up in minutes; her callers will sometimes say a quiet "wow. woooowwww. All these years of therapy....". You are able to do what she does, just by nature I think, because no amount of teaching can teach it.
I just love your style.
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lea - so glad you are starting to feel better. Prayers continue! 🙏🙏🙏
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I’m so glad to hear that you’re getting some relief for the nausea!

Praying for relief for the itching. It’s crazy-making, for sure!
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Lealonnie,
I was away from AC forum for some time, just reading your story, so sorry.
Wishing you total recovery.
And I was reading about Jimmy Carter and yes he had immunotherapy in 2015 at age 91. Now he is still alive at age 98! And you are so much younger!
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The nausea is gone, thankfully, but the dizziness lingers today. Hope, I eat a lot of watermelon it's the one food I can tolerate all the time.

The nurse hasn't called me as if 245pm on Friday, just as well. Alva, the Monistat arrived and I'll begin the 3 day course tonight.

GERD is creeping back in, I was up 3x last night to eat TUMS. I'm not surprised but it was nice to be rid of it while it lasted. I did 10 min of lite cleaning earlier in my kitchen and had to come lay on my heating pad for my back pain.

The wing chair I had to list for free on Marketplace (Which was going to be free anyway). The lady who picked it up this morning said WOW THAT'S BIG which she'd have known in advance had she read the listing. 🙄 She seemed disappointed and sorry she came to get it, so maybe they dropped it off at Goodwill on their way home. Not the situation I was hoping for with a high end carved claw foot chair, but oh well. It's out of MY house anyway.

Did anyone know Jimmy Carter survived stage 4 metastatic melanoma that was in his brain? He had it in 2015 at NINETY ONE and went thru immunotherapy. Has had clean PET scans ever since! That gives me hope.

Thanks all, for the kind words and posts.
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Praying Lea. Grateful for Chuck's victory, and praying for yours as well.
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