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Lea: So sorry that happened in regard to the Ativan. Goodness - sleeping a full day is frightening. Prayers and virtual hugs, friend.
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So sorry that happened Lealonnie.
Ativan is a scary medication for me. Only one pill and I was standing next to myself (out of body) as if I was watching a slow motion movie. You are right to be ever so careful.

Not all of the immunotherapy side effects are from the injection maybe. Your doctor still needs to be aware that, for example, your symptoms could be
gall bladder. Don't want to worry you. Just be aware.

Still, more prayers this will be going better for you, more peace, more comfort.
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Had a very bad reaction to the 1 Ativan I took last nite at 7 pm. 🙄 I was dying of thirst all night and having tons of brain buzzes, it was awful. I slept ALL day today till 7 pm, so a full 24 hrs! Never again.
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Thinking of you, Lea. I’m so glad that your nausea has eased up.

Hugs, hugs and more hugs. Of course, lots of prayers too.
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Happy Saturday Lealonnie!
Following Geaton's lead, I offer my favorite scripture verses to bring you comfort:
God is our refuge and strength, an ever-present help in time of trouble. Psalms 46:1
Be still, and know that I am God. Psalms 46:10
I don't post often, but I vividly remember logging on to AgingCare while in the deep pit of "Dad care" in the spring of 2020. Lea, your posts touched me from the very beginning. You were honest, funny and had a keen sense of self-preservation. I needed all three! Still do! You have helped me tremendously and I will forever be grateful for your words of wisdom - and the belly laughs! Keeping you in my prayers wonderful lady!
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Praying here, on Saturday afternoon.

Asking God for the side effects to ease up, those cancer cells to be destroyed, and for peace to keep reigning in your hearts!
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Lealonnie, you're an inspiration. I think of you (and Chuck) many times a day. Is that praying? I like to think so! Thank you for keeping us posted, and much love to you.
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Looking forward to your update today and thinking of you, Lea. You are so amazingly "grounded". When the moments are tough you let us know. When the moments are good you let us know. You are able to live "real life" or "normal life" when the circumstances allow it, and seem so by nature "mindful" --staying in the moment that's there. And you can convey all of this to us so well. You're good at zeroing in on things.
You are my sort of "Dr Laura" of Aging Care. The one who can read it and size it up in minutes; her callers will sometimes say a quiet "wow. woooowwww. All these years of therapy....". You are able to do what she does, just by nature I think, because no amount of teaching can teach it.
I just love your style.
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lea - so glad you are starting to feel better. Prayers continue! 🙏🙏🙏
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I’m so glad to hear that you’re getting some relief for the nausea!

Praying for relief for the itching. It’s crazy-making, for sure!
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Lealonnie,
I was away from AC forum for some time, just reading your story, so sorry.
Wishing you total recovery.
And I was reading about Jimmy Carter and yes he had immunotherapy in 2015 at age 91. Now he is still alive at age 98! And you are so much younger!
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The nausea is gone, thankfully, but the dizziness lingers today. Hope, I eat a lot of watermelon it's the one food I can tolerate all the time.

The nurse hasn't called me as if 245pm on Friday, just as well. Alva, the Monistat arrived and I'll begin the 3 day course tonight.

GERD is creeping back in, I was up 3x last night to eat TUMS. I'm not surprised but it was nice to be rid of it while it lasted. I did 10 min of lite cleaning earlier in my kitchen and had to come lay on my heating pad for my back pain.

The wing chair I had to list for free on Marketplace (Which was going to be free anyway). The lady who picked it up this morning said WOW THAT'S BIG which she'd have known in advance had she read the listing. 🙄 She seemed disappointed and sorry she came to get it, so maybe they dropped it off at Goodwill on their way home. Not the situation I was hoping for with a high end carved claw foot chair, but oh well. It's out of MY house anyway.

Did anyone know Jimmy Carter survived stage 4 metastatic melanoma that was in his brain? He had it in 2015 at NINETY ONE and went thru immunotherapy. Has had clean PET scans ever since! That gives me hope.

Thanks all, for the kind words and posts.
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Praying Lea. Grateful for Chuck's victory, and praying for yours as well.
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Lea, Glad the nausea is better, but yes, those meds can/do leave one weeky. I will never forget when my girl was in high school, and I got a call from the school saying she and several schoolmates had been missing a week (yup, told me a week later). I wanted to not go nuts when she came in the door, so I took one half a valium, then started crying and couldn't stop. Ha ha, so it worked well as because I couldn't talk for the crying she thought I was pretty overcome, and instead of my "mad" I was now a weeping mess. She said "Sorry, SORRY. I didn't know it would affect you this way; I thought you would just be mad."
She never cut school again.
Any of these meds that work so well for one thing can have a depressant affect. Guess you will have to tell yourself you deserve that good cry.
Lordy, now the gyne? Can your regular doc not let you just bring in a swab? Did you try monistat just "in case" it's a yeast. Seems like if it isn't one thing it is another.
I hope this is a good day for you. You are so in the thoughts of us all.
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Good morning Lea - I hope you're feeling better and better today! I wanted to mention that when I had terrible symptoms during Covid (dizziness, nausea, feeling very weak), every morning, when I could barely stand, I would force myself to drink coconut water ..and I would also have watermelon several times during the day. It helped with my dizziness and hydration - and actually watermelon is known to give you a bit of a lift - maybe it's the electrolytes.
I hope today is filled with peace and comfort ~
XO
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LL, nausea is so awful... been there, done that with decades vertigo. I take Zofran because it doesn't make me sleepy, but I read that it hasn't worked for you. If you struggle to find meds that control your nausea, maybe ask about Stugeron (cinnarizine). IDK if it's available in the US (it is in Canada). My youngest son (the experienced open-sea sailor) swears by it over Zofran. I've not taken it myself, but only putting it out there as something to ask about if you run out of solutions. My son can't sing its praises enough.
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Scripture du jour: "Take a good look at God�s work. Who could simplify and reduce Creation�s curves and angles To a plain straight line? On a good day, enjoy yourself; On a bad day, examine your conscience. God arranges for both kinds of days So that we won�t take anything for granted." - Ecclesiastes 7:3-14 (The Message) Words from King Solomon, a man who "had it all".
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Lea: You're very welcome for the tip on the tummy drops. I'm usually a skeptic by nature so I was surprised when they worked the first time. I'm glad that Chuck was able to get your Ativan. Sorry, though, that you had another rough night. Hopefully tonight you are sleeping well.
On the subject of dizziness, I can relate, having been dx'd with presyncope a year and a half ago. I am glad that your dizziness has abated.
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Thanks for helping to put my mind at ease Bandy. I appreciate it. Sounds like a terrible ordeal you and your mom went thru.
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Funky,

Loved your advice! Nothing like hearing the actual facts. I will say it again. you were a blessing to your darling husband. We are all learning lots of practical advice on nausea and constipation.

Just like Lea and Chuck are for each other. It’s so lovely to see such love and support.
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Oh gosh, Lea

Sorry I totally missed the sarcasm in your remark about eggshells. LOL

I have one daughter who loves eggs, and the other one won’t touch scrambled eggs, poached yes, fried yes, boiled, yes but won’t go near scrambled eggs!

I am so glad that you are feeling better. Yay! Everyone had great suggestions!

Childhood memories are funny. Like yours with the eggs. I wouldn’t eat spinach for years because my brother told me that they only served it on the day that they mowed the lawn at our school. LOL I was only in the first grade, so I took the bait! I thought they were serving lawn clippings!
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Sea Bands are a great idea! Chuck went to the pharmacy and got the Ativan. I feel much better after pooping a few times ☺ 😊 today and no nausea!

Colleen, all these types of meds leave me feeling weepy

The wooziness is lifting a bit too. The nurse said I have to go to the gynecologist now to see what the itching is all about. I'm disliking her more and more ughhhhhhhh. Bandy, did you doubt your story about your hospitalization over an untreated yeast infection WOULD leave me feeling anxious with all the rest of the chaos going on???????? 🤯 Here I am w similar symptoms except not ongoing for 6 months. My right side pain is on again/off again.

Hope, ginger ale is my go to drink.

FunkyG, the 2x a day miralax regimen w the rest of it should hopefully keep me regular....if not, thanks for the heads up.

NHWM, the shells weren't intentional. Just a sign of a bad cook of eggs 🙄.....who still insisted on cooking eggs.

I bought a new tablet and the keyboard is SO SMALL it's frustrating the snot out of me. I'm packing the pos up now and sending it back.
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I second the idea of Sea Bands. They work by activating the acupressure points in your inner wrists. Follow the instructions on placement very carefully.
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Lea, I am so sorry to hear about your nausea...it's a horrible feeling and I really hope it passes for you as quickly as possible. I don't know if you've ever tried "sea bands"...I use it when flying and it helped me tremendously because I get a lot of motion sickness with turbulence. It's something you can buy on Amazon - and just to make sure it doesn't impact your treatment, it's best to ask your doctor first. They're bands that you wear on your wrist and I've read that it helps some cases during cancer treatments with nausea. And, also peppermint oil aromatherapy is supposed to help too - it's supposed to lift the feeling of nausea. And just eating dry toast or crackers to coat your stomach...and also ginger ale.

Sending love and prayers for your continued healing ...we're all thinking about you :)
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Re:Ativan-while relieving my nausea, it made me VERY depressed and anxious! 🧐 I’ll take depressed over nauseous any day, though! Weird, how meds can help and hurt, sometimes!

Anyway, praying that you get some relief!

Maybe Chuck can put his phone on that accessibility feature that causes it to flash when it rings? Maybe it would wake him up, if placed just so, on his night stand? I guess that would also mean that you’d have to take yours to the 🚽 in the middle of the night!

Okay, I will hush and pray, like I said ⬆️. 😎
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Lealonnie, when my late husband became very constipated towards the end of his life from the high doses of fentanyl he was on, his hospice nurse gave him a shot in his arm of Relistor, and I'm not exaggerating when I tell you that within 15 minutes he was on the bedside commode pooping up a storm. I had never seen so much poop. In fact I thought he was going to overflow the bedside commode.
I know that was for some of you TMI, but if it can help you Lealonnie, it might be worth mentioning it to your doctor.
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LL, my youngest son has detested eggs from birth. I can't relate to that and still often forget, even though he's now 24! It's a shame since they are a must-have staple for bachelors (that, and cereal) ;-) I missed the scripture du jour today... better late than never. Because you desire strength, know that you have a Powerful God who loves you: "Then Moses and the Israelites sang this song to�God, giving voice together, I�m singing my heart out to�God�what a victory! ����He pitched horse and rider into the sea. God�is my strength,�God�is my song, ����and, yes!�God�is my salvation. This�is the kind of God I have ����and I�m telling the world! This�is the God of my father� ����I�m spreading the news far and wide! God�is a fighter, ����pure�God, through and through." - Exodus 15:2-3 (The Message)
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Lea,

My word, Zofran helps with one thing and hurts another. What a frustrating situation!

I’m with you and Colleen, you may as well go with the Ativan. Hope that you get relief soon. You’ve been miserable for too long.

My husband loves soft boiled eggs with toast torn up in them, but no shells tossed in! LOL, sounds gross 🤮 to me. He eats eggs prepared other ways too.

I do like eggs. I am glad that my mom didn’t make us eat things that we didn’t like growing up. She encouraged us to taste it but if we didn’t like something she never forced us to eat it.

The nuns were not so nice at my school. They made us eat everything on our plate or we were punished. There were a few times that I chose to skip recess for punishment over eating nasty food.

I took lunch to school most of the time to avoid having to eat yucky food or giving up my recess.
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After another night of being woken up by nausea, I called the oncology nurse. Zofran CAUSES constipation as it turns out, and I've been taking too much of it. She is asking Dr C to okay Ativan which she agrees with you Colleen is an excellent way to combat nausea AND relax at the same time, especially helpful for pediatric oncology patients, she said. I'm to take Miralax morning and night now 😑 along with the milk of mag I've been taking, and add senna if necessary. Perhaps my new lifestyle will be sitting on the toilet instead of the bed/recliner. The dizziness needs to get better soon or they'll have to "look into it" whatever that means. I think I have a giant Catch 22 going on, personally......constipation causing nausea and full feeling where I can't eat, etc. God give me strength. Today the mild rash is back on my legs. Welcome to the crazy house 😐 is all I have to say. The nurse sees no side effects for chronic cotton mouth or unquenchable thirst, so I told her to call me before they write a new handout so I can add all sorts of new side effects to the list 🙄

NHWM, fascinating that books have been written on the subject of finding dimes! I had no idea, ty for that info.

Alva, idk about Cipro being on a 'fear' list, but I do know it's super strong and poorly tolerated by many, including my late mother. Cipro is like killing a fly w an elephant gun in many instances and should be reserved, imo, for strong infections only and as a last resort. I haven't thrown up either but boy howdy, I wish I would have a few times. As far as eggs go, i detest them. Mom forced me to eat a soft boiled egg w white bread torn up in it (and shells too) every day of my life till i was 13. When i was 13, i said NOT ONE MORE EGG WILL EVER CROSS MY LIPS AGAIN. Just the thought of that is making me feel like hurling. Which is too bad bc an egg is the perfect food, aside from the cost.

Llama, Amazon said I have to take a break from ordering or they'll have to assign a truck just for me! 😂🤣 J/k.....its my debit card issuing me the warning. I'm hoping the Ativan (and a good POOP) cures this nausea w/o the need to look for further cures. But if not, I'll order those tummy drops.

I'm venturing into the shower now and sitting on the tile bench in there so if the dizziness acts up, I won't fall. Chuck dragged a walker out of the garage last night to put next to my bed which was a bigger TRIP HAZARD than 4 unrubberized throw rugs on a freshly waxed hardwood floor! Men. He's pretty deaf as it is, wears a Bluetooth earpiece that cuts off hearing in one ear entirely, so if I'm screaming for help, he'd never know it. I have to CALL him on the phone to get a response. Meaning, if I fall off the toilet, I'll lay there all night! Yay.
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Lea,

Finding Dimes: A Journey of Faith, Hope and Prayer.

Maureen McCormick McHugh is the author who lives in Long Island, NY.


Dimes from Heaven

Monica Morrissey is the author and finds dimes from her father.


The Impact of a Dime

Gerarldine Morgan


The Meaning of Finding Coins: Messages and Spiritual Insights

Kimberly Ahri
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