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Lealonnie, I received a pm from Bandy saying that because of the issues Aging Care is having that she hasn't been able to post as of late and she didn't want you to think that she had abandoned you. She is sorry to hear that you're having such a tough time and like me is keeping you lifted up in prayer.
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Lea,

Seems I now have my profile back but yours doesn't seem to allow messaging.
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Lea,

Alva is having problems with the site bigtime. She talks about it on the "On my mind" discussion. The Administrator finally contacted her and has no idea what is going on. For now Alva is going to take a hiatus from the group.

I tried to PM you but when I get in it does not give me the option to post. She wants to keep in touch with you and I have info but don't want to post it here. And my Profile is down. Do you have any suggestions? The only one I have is to give u an old email of mine.
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Lealonnie, you are so brave to come on here as much as you do to share your very hard journey with us.
I just hate that you're having all these horrible side effects, but hoping it will all be worth it in the end.
And if you filing a lawsuit could save even one person from having to go through what you are it would be worth it for sure.
I know I don't post often, though I follow your post daily, but please know that I lift you and Chuck up every day in prayer and am still believing for a miracle.
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Lea,

I’m so sorry that you had such a horrible night. This morning doesn’t sound much better. I hope that you are able to get some rest and feel better afterwards.

Will say an extra prayer for you.
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Last night quickly disintegrated into a giant nausea fest accompanied by an odd dizzy feeling I'd just gotten off of an amusement ride; shaky, wobbly, off balance. I could barely eat dinner but forced myself to. The high level nausea stayed with me all night long and had me taking Zofran for some relief. I was ultra thirsty all night too which kept me awake and going back and forth to the bathroom but still constipated. I can't get ahead of that issue no matter WTH I do. This morning I'm wiped out, thirsty, off balance again and just exhausted. The 3-5-8 breathing method kept the nausea somewhat controlled in between Zofrans, but Lord, too much to heap on my already full plate playing Whack-A-Mole with these side effects. Staying in bed today and praying for some relief with ALL of this.

JoAnn, leave it to a man to go play golf in ski jacket weather, come home likely miserable, but hey, WE'RE TOUGH GUYS. Enjoy your alone time.

I got an email from my dermatologist saying I needed to get in for him to do a visual body scan of my beauty marks and moles! 18 months AFTER the original one was removed, causing me all this chaos. I was LIVID when I read that and wrote back saying so. No protocols in place to follow up with patients who have had surgery to see if the melanoma went systemic bc "there's a 95% success rate with it", meaning if 500 patients come in yearly for a malignant melanoma to be removed, 25 patients WILL develop metastatic disease! So I get a phone call from this PAs nurse, of course.....throw her the dirty work and stay hiding out under your desk, coward. She informed me I SHOULD'VE had full body visual scans every 3 months for the first year, and every 6 months for year 2! I had ONE! IN TOTAL! She agreed how ludicrous it is to have no procedure in place like an ultrasound or similar, to check for metastasis at least for the first year or 2. All of us poor slob 5%ers just get to suck eggs, I guess. If these stupid insurance companies were to look at how much it's costing them to treat the 5%ers vs how much it would cost them to do PREVENTATIVE testing, they'd be gobsmacked at how much they're losing. As if human lives should be measured in dollars and cents anyway. But that's all they understand, profits. 😑 ALL of this could've been treated immediately with an ultrasound of my left armpit bc it's a fact that's where melanoma first travels to after surgery on the left arm. Instead of waiting till I became symptomatic bc by then, the cancer was in my bones, spine, lymph nodes and worst in my liver, the biggest organ in the human body. Sad. DD is so enraged she's calling a lawyer for their opinion about negligence in this case. If a lawsuit would stop ONE more person from going thru this, or force insurance companies to establish protocols for testing post surgery, it'd be a great thing. All I was told after the surgery was, " you're fine, we got ALL the cancer, you're done, bye bye & have a nice day." No talk about 5%, or what to watch for, nothing.

I'm going to try to sleep now after I drink another bottle of water.
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Just checking in. DH went out golfing, yep it was in the 30s when he left. I asked him why after years of not golfing in the Winter months, this year its a good idea. DH said the guys say its better than sitting home. I think its because the dues have gone up again and they have to be paid even in the Winter months. So, I am here enjoying the peace and quite.

Have a blessed day

JoAnn
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Scripture du jour:

"Friends come and friends go, but a true friend sticks by you like family."

- Proverbs 18:24 (The Message)

LL, thanks for sticking to this forum and sharing your difficult journey with incredible transparency and raw honesty!
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GG,
EEEEk, thanks for the heads-up!

NHWM, I also have the tiny plugs. They help somewhat, but I'm a crazy case!

LL1, praying for you this morning. May God make his love for you clearly abundant today.
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Just a comment on the Magnatiles. They are great fun to play with BUT if your grandson puts things in his mouth, this is not a safe toy for him. There are many stories online of children swallowing the magnets and having major medical problems. Just something to consider.

Praying for you daily, checking in every evening.
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JoAnn....duh to me, I guess acidophilus IS a probiotic! 😂 Betcha can't guess where it came from? I sure didn't!

Lactobacillus acidophilus
Bacteria

Lactobacillus acidophilus is a rod-shaped, Gram-positive, homofermentative, anaerobic microbe first isolated from infant feces in the year 1900. 

Isolated from infant feces? 😑

My chronic dry eye condition was cured using the 2 eyedops in each eye every hour on the hour program for about 2 months.

Colleen, good to know about the Magnatiles being good for your 2 year old g/s. I'll head over to Amazon where I can shop (for now) from my recliner.
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Acidophilus is a probiotic, is it different than other types? I use it but during that Stomach/intestinal thing I had back in Sept it tore my stomach up. YD has IBS and can't use probiotics for that reason.

Well, 40 and rainy here in SWJersey. I guess better than snow the North part of the State is suppose to get. My Daffodils are coming up and I tell them its too soon. They are hardy flowers, though. They just keep multiplying. DH planted them in rows, didn't work, they multiplied and now are clumps.

I have sent a prayer up to have your pain eased. I see things areca little better today. Again, have a Blessed Day.
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Colleen and Lea,

I have dry eyes also. My optometrist put plugs in both of my eyes. I still use drops but I have noticed a difference since getting plugs placed in my eyes.

Colleen, I hope you get relief soon.

Lea,

Where is your pooch? Is she in your lap or by your side? She sounds so lovable! I have no doubt that she knows that you are not yourself these days. Dogs are so intuitive.
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My grandson was playing with the Magnatiles at two. There’s no small parts, either. 😎

It’s so good to hear that you’re breathing easier!
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Colleen, how awful about your eye! When I moved back to semi arid Colo again back in the 90s, I had chronic dry eye and had to use those sterile water ampules too. I often worried about poking my eye with it bc it's hard to gauge distance with those things. Glad to hear the treatment is working, thank God. The floodwaters are up to my neck indeed, good scripture.

DD wanted to get Magnatiles for my grandson but they're for 3 and up. He's 2.

JoAnn.... I thought it was acidophilus that helps with yeast? The Vagisil numbing cream is working fine bc it doesn't seem to be yeast. But I ordered Monistat if needed. It's like playing Whack-A-Mole with these stupid side effects.

Thank you NHWM and llamalover 😍

Today and yesterday afternoon and evening I've been very nauseous, but my pain levels have improved. I'm hoping for a good day today....my diaphragm feels a LOT better, like I can fill my lungs now w/o pain. Definitely a blessing.

My goal was to go to 1 estate sale as of March 1 which is tomorrow. Not sure I'm quite there yet (due to back pain only), but getting closer, thank God.
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Oh, CX: Herpes in the eye is nothing to be sneezed at for sure. You are so very lucky to be this fast a healer from it. Yikes!
Lea, hoping this is a good day. Thinking about you this early and rainy day. We are so lucky in California to be getting rain and snow pack after such a long drought. But it's a bit dreary. I comfort myself with my rain gauge readings.
Looking forward to your daily update for us.
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Scripture du jour:

"But you, Lord, are a shield around me, my glory, the One who lifts my head high."

- Psalm 3:3 (NIV) 

LL, may He lift your head (and eyes) high to see beyond your circumstances of today.
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One of my favorites, that I've prayed MANY times over the years:


Save me, O God, for the floodwaters are up to my neck!
Psalm 69:1
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Lea: Thinking of you today
This is not meant to make light
Hope that your pain level is at bay
May God hear your plight = nds, 2/27/23
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Lea,

Thinking of you today and always.
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Don't probiotics help with yeast infections?
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LL1,

Magnatiles are my grandson’s FAVORITE. He builds in 3d in his room, and also 2d on the fridge/dishwasher/garage door, etc. There are starter, as well as add-on packs, all on Amazon.

Alva,
So, I have dry eyes. I use single-use vials of drops a few times a day. If I get up to use the bathroom in the middle of the night, I have to put some drops in, so my eyes even open. 🤪
Well, a couple of weeks ago, in the middle of the night, I apparently didn’t gauge how far my eye was from my hand, and caused the dumb abrasion! Rx-antibiotics. Patch for 2 days. 🏴‍☠️
A week later, the eye seemed worse. Doc took a look, and there was now herpes simplex virus in the abrasion! Gaaaah! 🤨
Oral and topical antivirals (5x/day) to the rescue. 👩🏽‍⚕️ 🏥
Today, all clear! Phew! 🎉
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You are so very welcome Lea!
There are so many causes of itching, even your doc would be surprised if you were not itching at this point.
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Send, good idea about the Apple cider vinegar question for Doctor C.

"ACV has antibacterial and antifungal properties and can help kill bacteria and yeast on the skin related to conditions like acne, eczema, and dandruff," Gathers explains. ACV's high acidity level may also help some skin conditions, but its high acidity makes it necessary to dilute with water."

I will do that, ty for the suggestion
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Ask your nice doc if it would help the itching by adding lemon or ACV to your water. It may help keep your liver better off too?
I am thinking that you know a whole lot about liver function because you cared for Chuck through his transplant. You both made it through that!

And you will get through this too, I am praying!
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Alva, idk if this is yeast or not. I have cream on the way. Yes, we've all had yeast from time to time and ran out for Monistat, but when it's heaped on top of 6 other issues, it gets difficult to handle and juggle everything at once, AND eat 3x a day, AND stay regular, etc. Yes, things could be worse but a reprieve from all this crap wouldn't hurt either. My grandson is too young for Legos, he has Duplos right now, the very large ones. Your grandson is right and your poor daughters attic is filled with what's likely to be many thousands of dollars worth of Legos. Especially discontinued and older figures and kits sell for A LOT OF $$$. My daughter in law has boxes she's sorting and some little pieces alone are valued and sell for in the $hundreds. 😁

SendHelp, I'm constantly thirsty so I'm drinking tons of water and other fluids, yes. Along with itching, fevers, nausea, sweating, constipation, mood swings, and severe pain in my right side, it's just another day in immunotherapy land waiting for the "really bad" side effects to add to the list. Urine is tainted with cancer cells that are being killed off and coming out that way, so output is decreased but very STRONG. Which probably leads to the massive itching. Skin is greatly affected by these treatments in general and why a grade 4 rash is what stops many from being able to get thru all 4 (only 50% do). So far this round, no rashes for me, thank God. Yes, it is nice to see the coming together of many believers in one place.
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Lealonnie,
Just checking...
Are you drinking enough water, along with so many prayers for you and Chuck?

I am learning a lot visiting your thread daily.
Love the chair, the cooking lessons, and Chuck cooking some cinnamon rolls for you!

Also, love the coming together of many who believe!
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Try over the counter monistat on that itch if we are talking yeast. Yes, a common problem. Will make it itch more for a day or so, but will wipe it out FAST. IF it is a yeast.
If that's the worst of it for today, oh well--at least a common problem for us all once in a while in life. If maddening.
CX, worried about the eye. Hope you will update us here.
Lea, so glad it is a good day.
Does grandson like legos or are they too small for one so young? My grandson was mad for them and at 24 won't give up his collection of creatures, which are in my poor daughter's attic to this day. He keeps saying worth money!
So glad to hear you are OK today, and always love to check out this thread.
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Colleen, poked yourself in the eye? Ugh. That sounds painful and I'm sorry you have to suffer like this!

Daughter, thank you so much for your kind words.

And ITRR, yes, those words are comforting.

Sunday my grandson turns 2. He likes wheels and taking things apart to see how they work. He loves wires too 🙄. Anybody have any ideas for a gift?

Today I'm having some incredibly bad itching in a spot no woman wants to itch in. 😑 Which apparently is common too with immunotherapy. Just for sh!ts and giggles. Why does the Amazon truck always have the item you need most scheduled for delivery last? ARRRGGGGGH
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Praying for you while at the eye doc! Poked MYSELF in the eye, and ended up with a corneal abrasion, which got infected. It’s a whole thing! But, plenty of time to pray in waiting rooms! 😂🤪

Prayers of thankfulness for the cooks in your life, your warm dog, your leather chair, and that you’re still feeling well enough to come here and share your story.

May God supply your every need today!
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