First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
My own ancient bible is a revised Standard Version (last revision 1901) of the King James and puts that verse which I am quite taken with as:
It is better to live in the corner of the
housetop
Than in a house shared with a contentious woman.
I wish I had an old old old King James, and I love the poetry of it all.
You had me looking that one up again, in my poor old bible whose leather is giving up the ghost.
Thanks for that du jour.
Lea, I think no nausea last time???? I know you said appetite is supressed. Are they suggesting any supplemental stuff at all and is the weight holding with this? I hope today is better. If like last time I am afraid some days now of hunkering down and letting your immune system punch those bad cells out. Thinking of you.
(more funny ones from Proverbs... just to show that the Lord has a sense of humor and is a realist)
“Better to live alone in a tumbledown shack than share a mansion with a nagging spouse.”
- Proverbs 21:9 (The Message)
Glad that you were able to get some rest. You got through your second treatment. You have inspired all of us with your grit and determination.
You are a busy woman in spite of what you are going through. You’re a shrewd business woman who has an eye for beautiful and unique objects.
You are a creative designer, which you sell on EBay. You’re a wonderful mother to your children. You’re an amazing and supportive wife. In spite of the challenges, you took great care of your parents.
You have true faith in a prayer. It is most certainly comforting to believe that there is a divine being, our Lord, who is greater than ourselves.
Please know that you have an entire forum of admirers and cheerleaders that are here to help in any way that we can by praying and sending you lots of love and encouragement.
You’re thoughtful of others but I hope that you won’t mind me saying that I have always loved your sass! That’s the New Yorker in you!
Keep the faith, Lea. We all want to celebrate your victorious outcome of this dreadful situation that you are bravely facing.
If you feel a need to cry at times, or sometimes afraid of what lies ahead, that’s okay too. We understand that this is a heavy load to carry.
Suddenly, I am reminded of the poem Footsteps in the Sand. Gosh. I haven’t read that in a very long time. I think that I will read it in honor of you.
Take care, Lea.
Sleep well!
I had an auto immune issue a few years ago and I was amazed at who God put in my path.
We continue to hold you up in prayer and pray a blessing for your medical professionals as well.
I just woke up from a 4 hr nap and boy am I nauseous. Ugh. Woozy too.
Thanks for all the support ladies. NHWM those scriptures are perfect.
I'll be back tomorrow when hopefully I'll be feeling better.
I hope you'll be home soon and relaxing...and taking in all the positive news from the doctors ...wishing you continued Blessings!
The glory of The Lord.
He is surely with you!
Gen 9:13
Then I saw another mighty angel coming down from heaven. He was robed in a cloud with a rainbow over his head; his face was like the sun, and his legs were like fiery pillars.
Rev 10:1
Lea,
I am believing with you with all my heart that the snow rainbow was a beautiful sign just for you! Sending you a bazillion hugs today 💗.
I believe that that was Gods sign to you that He's got this and for you to just rest in His presence.
Hang in there. You've got this! Sending love from a beautiful and warm sunny day(77 degrees already with a high of 81 expected)in NC.
The snow rainbow sounds absolutely amazing!
What is a rainbow in the snow called?
The fact is that there are snowbows, the ice-crystal analog to rainbows. A snowbow is a fairly rare phenomenon that forms when sunlight is reflected and refracted by ice crystals in the air (just as a normal rainbow is produced by the reflection and refraction of sunlight by raindrops).
So......I took that "snowbow" as a good omen that I'd hear some good news today and I did. My liver function numbers are back to NORMAL! The doc said the immunotherapy is WORKING beautifully, killing off the active cancer ( and there was a LOT OF IT) inside my body! The fevers and rashes (now gone) are proof that my immune system is killing off the cancer, just as hoped for. Immunotherapy doesn't always work, but it IS in my case thank God. He said my diaphragm was hurting so badly bc my liver was so swollen. I guess it's shrunken back down since my diaphragm pain has subsided so much.
The oncologist also said the infusions do NOT accumulate and get worse, side effects wise. The side effects WILL come, its just a question of when, what and severity level. But not to expect things to worsen.
We feel very relieved overall and grateful to God that these treatments exist. And to my wonderful doc who's a fellow New Yorker and carried my red Coach purse and jacket into the infusion room FOR ME. I told him how red suited him, and he reminded me how he was properly coached by his New York female family members on how to carry pocketbooks and coats for women 😂🤣😁😃
Thank you to everyone for bolstering my spirits when I read all your comments this morning. The Yervoy and Obdiva bags have arrived, let round 2 begin!
And praying that you will feel Gods arms wrapped around you tightly as He walks through this with you.
I will leave you with one of my favorite Bible verses, Zephaniah 3:17..."The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing."
The thought of our Mighty God singing over us makes me teary eyed every time.
May God bless you and keep you.
Scripture du jour is more light-hearted today...and it made me think of you ;-)
“Don’t waste your breath on fools, for they will despise the wisest advice.”
- Proverbs 23:9
Good luck tomorrow!!
https://m.youtube.com/watch?v=ICnct8THNag
I totally understand your feeling about wanting to and not. I have surgery coming up next week and feel exactly the same way.
And yes to the small things. I have had a few of those in the last few days and they have sustained me through a difficult time.
I wish I could send you a song… Mercies in Disguise, I think it is called. It is beautiful and almost makes me weep. (I also cherish it because when my kids were small they thought the words were “mousies” in disguise. Makes me smile through the tears:)
I often joke that illness and divorce are two things that can turn other people into bizzaros. I don’t know exactly why, but it sure makes life interesting, lol. Sorry you had such a weird visit, but glad they at least tried.
I always took that quote from Einstein to indicate awe at what was in front of him and a disappointment that people choose to look at this amazing life as underwhelming:)
Alva, so glad you had time with your daughter. I am sure she appreciates you… as do so many of us here on AC🥰
Where 2 or 3 are gathered in HIS name, there HE will be!
and think, the more the merrier!
You got this Lea!
Amen and Amen!