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I did the same as you, kept mom at home, with just one shift of aid.  I put barrier crème on her and rotated her any time she woke up.  BTW, I REALLY doubt the NHs check anyone every 2 hours
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lealonnie1 Oct 2020
My mother is woken up at 3-4 am religiously every night at her Memory Care for a Depends change/trip to the toilet. It's not necessary to wake them up every 2 hours, but at least once during the night is a must.
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I suspect that the NH is trying to discourage you from bringing her home. A good barrier cream might work, but I dont have any experience with this.

Have you asked for an independent evaluation of what her care needs are?
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jmorse12188 Oct 2020
I'll ask about the barrier cream thanks. The NH doctor is doing an eval this week and then insurance is as well the day she comes home.
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Hi jmorse. I use skin barrier ointments to protect skin and pads inside depends overnight. I am not changing Mom during the night. No skin issues but she is not bedridden. Not sure if your Mom is or not. Good luck!
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My question is why are you taking her out of the NH? By the time people get to a NH home its because they need 24/7 care. Are you ready to give up your life. Hiring someone will be expensive. Was Mom private pay or Medicaid. If Medicaid, she might qualify for some in home care.
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jmorse12188 Oct 2020
I've recently learned that I'm going to be able to work from home full time so I'm bringing mom home. Mom has Medicaid and Medicare, she qualifies for 7 hours of care a day. Do you have a recommendation to the question I asked though?
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The problem is that you can not leave a soaked incontinence brief on without skin breaking down.

So, if she wets half hour after falling asleep then you have a good chance of skin problems.

You can check for the 1st week and see if 1 time a night would be sufficient and about what time it is needed. If she is completely bedridden she needs to have her position shifted every two hours as well.

I would not let the nursing home dictate what you need to do but, I would listen to their advice on how to keep her skin as healthy as possible. Once sores develop they are challenging to heal and can cause other issues.

Good luck with having her home.
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I'm not a professional, but, if they say she needs to be turned on a regular basis, I'd think that is required. I'd discuss it with her doctor or hospice team, if she's on hospice.
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KaleyBug Oct 2020
The nursing homes have to say these things to protect themselves. Every time my mom had inpatient rehab after hospital stays or I declined inpatient rehab, they tried to talk me out of taking mom home and shook there heads at me. Told me my mom could not do this or that etc. I knew better because I was her care taker even when I worked. I had a great young lady that helped when I worked. We worked with my mom the exact same way. We listened and learned from home PT. We could get my mom to stand and walk because we did things a like. The hospital and rehab PT’s struggled because they did not have the patience/time to let mom do her standing and walking at her pace. When we left the Hospital two days before Christmas 2019. I was told my by the head of PT my mom could not stand. When it was time to go home I had my husband drop off off my moms transport chair. At discharge I asked the nurse to assist me getting mom in the chair. She said let me get help, I said no please just follow my instructions so you can see I made the right decision and that my mom can do this transfer with minimal assistance and guidance. The nurse was amazed. My mom stood, turned her feet and sat in the wheel chair with minimal support. I said the problem is. The hospital PT start grabbing her and try to lift her. She has dementia and does not understand what they want when they grab and just say stand and step. Mom needed specific terms. Ok mom put your hands beside you on the bed, get your feet back under you. Lean forward and push up and put your hands on the walker. Now mom move this leg (light tap on leg) and turn to sit on the chair. She would turn and reach back to sit. It the cushion on beds are soft she would stand by placing her hands on the walker and I would stabilize the walker. I always used a gait belt incase it was needed.
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Is there a reason that you are taking her out of a professional care setting?

Are you intending to try to care for a bedridden person with dementia on your own?
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jmorse12188 Oct 2020
I had another person ask the same and I posted an answer. Your question doesn't answer what I asked.
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