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I am a licensed Hospice Nurse for decades now and cared for my sweet Dad 9 ago at home then stayed to help my Mom for 8 yrs after Dad passed. My Mom passed 16 months ago and I realize that she was my life. I understand the grieving process but I’ve fought 3 anxiety based disabilities all of my life but they all exacerbated when she passed. We have a very close family and I’ve always been in therapy but I am finding out that I don’t really know what I enjoy doing and some days I can’t walk out my door. I set small goals every day but is this normal? It’s so strange being on this side of the Hospice bed. I’m usually preparing families pre and post mortem. I feel like I should be at a better place by now but I’m not. My family is very close. I do have an amazing brother but he has a life or death kind of job to the point where he is called a lot on his days off. We get together when he’s able and he calls me every day. We live 4 minutes away but he’s the Major on our police department dealing with lots of crazy situations. He helps me but I went from having all of the disabilities under control to a severe exacerbation that is ongoing. Has anyone experienced such extensive grief after their caregiving journey has ended? Thanks for listening.

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The caregiving journey ended for me a couple of months ago. I was surprised and embarrassed that I felt so scared afterward. I could not explain it. I was afraid of people. I was afraid of a potentially dangerous situation.

I did not have much interest in anything but continued to follow my daily routines anyway. I was extremely forgetful and lost a couple of small personal items. I was worried I had suddenly developed dementia.

My sudden onset of forgetfulness has since gone away. I think I was so preoccupied with thoughts of my parents decline and various dynamics that I was never fully present in anything I was doing. My mind has since settled. I feel calmer now.

Maybe it is a phase of grief, of profound loss or trauma. I would just say try not to be harsh on yourself. Sometimes I think grief counseling, therapy or just journaling what you are feeling can be a good release.
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Reply to GingerMay
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I didn't get that extreme with being totally immobilzed, but it was after my husband died an untimely death. He was diagnosed that April in 2016, and died December 2016. A few years later, the pandemic exploded. Six months in, I was laid off from my job of almost thirty years. It got to a point that my 94 year old neighbor became concerned because she never saw my car move. I would get a heaviness in my chest when I had to go on job interviews. I took rideshares because I was scared of taking buses. I was grieving and afraid. Finally, in 2023, I started driving again after someone had shopped for me (using an app), had stolen my groceries, and charged my card at check out. The chick had a bonnet on her head. I had had it!

Finally, when the pandemic let up, and we were done with the lock down, I gradually eased back into society. It was rough though. I had to admit I had a fear of driving that eventually let up.

Grief therapy and counseling helped some, but it didn't prepare my for the acute anxiety, fear and grief. I didn't want medications and white knuckled it through the rough points. I probably looked like a stiff mannequin behind the wheel of my car. LOL. Exercise such as walking helped once I got over the fear of being trapped.

I work in the helping profession as well. I think most of us have a way of making things easier for others while we are doubled over in pain.

It does I get easier though. If you feel the need for grief therapy, go for it! You can do telehealth visits with a therapist.

I'm so sorry for the loss of your mom.
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Reply to Scampie1
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BurntCaregiver 15 hours ago
I wish you every joy in life, Scampie. God knows you've been through a lot.
I feel like I have to apologize for laughing while reading this post. I was on a call too. I hope these new clients just think I'm a cheerful person. When you mention the part about the woman stealing your groceries and charging your credit card wearing a bonnet. I have to ask. Was she also wearing pajama bottoms, slides, and a tank top with no bra? Usually this is the uniform of women who wear bonnets in public LOL.
God bless you for staying in homecare too. Your care clients are lucky to have you working for them. If you lived in my area, mine would be too.
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Try Community acupuncture clinics - Google it - Or On YELP .I THink a Lot of. Caregivers experience PTSD , anxiety and exhaustion after their parents Have Passed . Or find a grief Counselor to talk to .
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Reply to KNance72
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I find myself sleeping in my couch more often. I make lunch plans with friends.
i have not yet volunteered yet, I'm not ready yet
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Reply to MAYDAY
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I'm sorry for the loss of your Mom... If you've been in therapy, this is a question for your therapist.
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Reply to Geaton777
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I am sorry for the loss of both of your parents.

I had trouble driving places around town even 12-14 months after Mom passed. I'm age 64 as reference.

I think you are still in the normal range of grief.

The thing that helped me was volunteer sitting for a long time friend one morning a week while her husband worked. She lives a 45 minute drive from me. Doing that drive both ways once a week got me out of the house and endowed me with more confidence. Once there we would do fun stuff. I took her to the art gallery, the grocery, to see Christmas deco at our town hall etc.

I think my volunteer gig slowly allowed me to rebuild my confidence.
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