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Really? Seems to be not an especially good neurologist, I am thinking. In the end, when there is not enough information in terms of symptoms and the few tests we have (MRI being one) a good neuro-psyc often ends up giving you several diagnoses that it "may be". My brother was diagnosed as having "Probable early onset Lewy's dementia" by his symptom which included: onset of very poor balance, hallucinations that were very real and described in detail, loss of taste and smell, occ. difficulty swallowing, and etc. Lewy's can sometimes manifest in the same manner Parkinson's does.
I would go to the internet and start research. Apparently your loved one has some symptoms that can be either one or another type of dementia. And in those cases there are times that a doctor will say "This dementia isn't yet advanced enough that we can say exactly what sort of dementia is involved. That would be diagnosed only by autopsy, and your loved one isn't dead." In such cases certain dementias can be ruled out by MRI. Some vascular, white matter changes, grey matter changes, and symptoms can be found and seen. Some cannot.
Can you tell us what symptoms of dementia your loved one manifests at this time? And do understand that the internet is your friend here; you can look up all day research on "How is dementia diagnosed".
A comprehensive neuropsychological evaluation, which typically lasts 2 to 3 hours, is a key component of the diagnostic process. This evaluation involves standardized testing of various cognitive domains, including memory, attention, processing speed, language, visuospatial skills, executive functioning, and motor skills. The results are interpreted in the context of the patient’s medical and psychiatric history to assess brain-behavior relationships and identify patterns of cognitive strengths and weaknesses.
Is he referring to CTE? Chronic Traumatic Encephalopathy is the one caused by repeated head trauma, like concussions, and can only be diagnosed/confirmed through an autopsy.
Because my late husband had had a massive stroke years earlier and he was later showing many symptoms of vascular dementia which is very common with folks who have strokes or heart issues, his neurologist did diagnose him with vascular dementia. I would find a different neurologist.
My dad had an MRI and then a PET scan. His neurologist said that there was a “degenerative process underlying many of his symptoms” with “subcortical ischemic vascular changes evident” and that his brain shrinkage patterns were consistent with Alzheimer’s, vascular dementia, and Behavioral Variant Frontotemporal Dementia (bvFTD)— all three. Based on his behavioral symptoms, his final diagnosis was bvFTD.
He didn’t develop any memory problems until very close to his death.
We went through I think three different medication plans before settling on meds that helped him calm down the frustrations, crazy behavior, mania, and obsessions and allow him to sleep. It was still very rough going taking care of him. He never believed or cared that anything was wrong with him. When the neurologist told my dad and mom together the diagnosis, he was entirely uninterested.
I was very interested in learning what type of dementia my dad had, so I could better help him and learn in the process. I scanned the internet and sites like this one to search find the answer.
His scan showed "normal brain shrinkage for his age (90)."
I assumed it was Alzheimer's, but in the last four months of his life, the hospice nurse thought Parkinson's. (He had been shuffling his feet for two years while using a walker, before becoming wheelchair and bedbound. Shuffling is one sign of Parkinson's. I missed that one.)
Soon I gave up wanting to know the specifics and settled on the blanket term of "complications from dementia." It actually released me from trying to find a diagnosis, so I could concentrate on his day to day well being and quality of life.
There is no one single predictable course of any of the Dementias. All the criteria that differentiates one from another are all "common in" or "typical in." None of them are absolute predictors of what behaviors, timing of such behaviors, loss of functions, etc. They are all only the causes, mechanisms of each Dementia. How each person presents, in any stage, and their needs, is as individual as people are individual. The only predictable part of any dementia is the inevitable death from, if they aren't lucky enough to to be taken by something other than dementia before then that by- passes the endless suffering.
The only dementia research is that which seeks to find a cure or a way to completely stop it in its tracks before it effects function as a person living their life. There is NO point in treating it once it has taken hold.
A specific type of dementia cannot always BE diagnosed! My mother had the blood tests and MRIs which showed nothing, yet she had dementia thought to be vascular in nature. I would never subject a loved one to spinal taps....what for?? On the off chance a type of dementia can be found? And then what? There is no cure anyway, just meds to manage symptoms.
Your neurologist is right. Only an autopsy of the brain can diagnose what was going on inside the brain during a person's life. Obviously he's not going to perform brain surgery on the man.
My friends husband has sudden onset dementia at 53 and went to the Mayo Clinic for a dx. Even they cannot diagnose the man and say he has abnormalities in every lobe of his brain. And he did undergo every single test known to science. Some things cannot be diagnosed w/o very obvious symptoms.
I sure would like to have a diagnosis for my depressed, raging, berating FIL. Maybe then, he could be properly medicated and he and everyone around him, especially his wife, could possibly have an easier time and better quality of life. He refuses to see anyone except PCP and eye doc.
there are scans that can determine some types of dementia. there are blood tests as well. PLEASE see a different Neurologist. The scans that can be done are CT, MRI, PET these will find structural changes. Lab tests Blood and Spinal fluid to rule out other potential conditions. A FULL and complete medical history is also important. Consult a different Neurologist and or a Neuropsychologist for a complete exam and testing.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
In the end, when there is not enough information in terms of symptoms and the few tests we have (MRI being one) a good neuro-psyc often ends up giving you several diagnoses that it "may be". My brother was diagnosed as having "Probable early onset Lewy's dementia" by his symptom which included: onset of very poor balance, hallucinations that were very real and described in detail, loss of taste and smell, occ. difficulty swallowing, and etc. Lewy's can sometimes manifest in the same manner Parkinson's does.
I would go to the internet and start research. Apparently your loved one has some symptoms that can be either one or another type of dementia. And in those cases there are times that a doctor will say "This dementia isn't yet advanced enough that we can say exactly what sort of dementia is involved. That would be diagnosed only by autopsy, and your loved one isn't dead." In such cases certain dementias can be ruled out by MRI. Some vascular, white matter changes, grey matter changes, and symptoms can be found and seen. Some cannot.
Can you tell us what symptoms of dementia your loved one manifests at this time?
And do understand that the internet is your friend here; you can look up all day research on "How is dementia diagnosed".
Wishing you good luck.
I would find a different neurologist.
He didn’t develop any memory problems until very close to his death.
We went through I think three different medication plans before settling on meds that helped him calm down the frustrations, crazy behavior, mania, and obsessions and allow him to sleep. It was still very rough going taking care of him. He never believed or cared that anything was wrong with him. When the neurologist told my dad and mom together the diagnosis, he was entirely uninterested.
good luck.
His scan showed "normal brain shrinkage for his age (90)."
I assumed it was Alzheimer's, but in the last four months of his life, the hospice nurse thought Parkinson's. (He had been shuffling his feet for two years while using a walker, before becoming wheelchair and bedbound. Shuffling is one sign of Parkinson's. I missed that one.)
Soon I gave up wanting to know the specifics and settled on the blanket term of "complications from dementia." It actually released me from trying to find a diagnosis, so I could concentrate on his day to day well being and quality of life.
The only dementia research is that which seeks to find a cure or a way to completely stop it in its tracks before it effects function as a person living their life. There is NO point in treating it once it has taken hold.
Your neurologist is right. Only an autopsy of the brain can diagnose what was going on inside the brain during a person's life. Obviously he's not going to perform brain surgery on the man.
My friends husband has sudden onset dementia at 53 and went to the Mayo Clinic for a dx. Even they cannot diagnose the man and say he has abnormalities in every lobe of his brain. And he did undergo every single test known to science. Some things cannot be diagnosed w/o very obvious symptoms.
Best of luck to you.
PLEASE see a different Neurologist.
The scans that can be done are CT, MRI, PET these will find structural changes.
Lab tests Blood and Spinal fluid to rule out other potential conditions.
A FULL and complete medical history is also important.
Consult a different Neurologist and or a Neuropsychologist for a complete exam and testing.