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for years, i never considered myself a caregiver to my grandmother, but it always fell on me to "pick up the pieces" - my grandmother had 3 children, 1 being my mother, but the relationship was complex. I was able to get her into assisted living at 87, and she suddenly passed unexpectedly at 89. Throughout the very long years and journey, i never looked at myself as caregiver, just has her grandson. do others battle this or how do you call yourself if you dont consider yourself a caregiver ?

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For a while my husband (who had a stroke and needed extra care) was still in my home and though we had help (aides and nurses), I was still the "bottom line." Then he had another stroke, this one affecting him physically so I could not care for him at home any more. He's now in a facility and he has paid on-site caregivers. But I am STILL his caregiver because I still do things to care for him: I handle many of the things with his doctors/hospital (setting appointments, reviewing test results, etc.), I attend his appointments, I advocate for him as needed (with the onsite caregivers for pain meds, brief changes, etc., and with the social worker as needed. And I deal with the bills I get on his behalf. I felt a bit funny at first, since I'm not the one moving him around (though I have at times assisted with his transfers, etc.), doing brief changes, etc., but I have come to accept my role is *still* as a caregiver. He'd be lost without me. I can take vacations, days off, etc., but if I were just plain gone, he'd have a hard time. Maybe my caregiving is very emotional and not just physical, but it IS caregiving. It still affects me physically, emotionally, socially, etc. I'm not just his wife anymore -- the role has changed since he had his first stroke.

Also: the VA considers me a caregiver. I'm in their caregiver program. I'm grateful for that.
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I feel differently, perhaps because I haven't been in the awful situation that some families have where one person is left doing everything, including the hard, physical work of looking after a loved one.

I think that there are different levels of caregiving, and I don't think that only the one who provides all hands on care is the only one who can be called a caregiver.

I think that anyone who helps arrange care, who advocates for the person who needs care, who ensures that prescriptions are filled, who picks up the groceries, who makes arrangements for ADLs to be met, who does what is necessary for the health and safety of a loved one, even if they aren't the one who provides daily hands on care, or they share the above duties with others - they are a caregiver.
The main hands-on carer could be someone paid to do the job, yet outside carers come and go. The person (or people) responsible for ensuring that essential needs are met is giving care, therefore they are a caregiver, with all the attendant worries that position entails.

Some people are only temporary caregivers, but they were caregivers, nonetheless.
Being a loving friend or relation is also important, so I wouldn't worry about naming your role. You were there for your grandmother when she needed you, and that's what's important.
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What normally we think of is the person who has 24/7 responsibility financially and physically and protectively for a person unable to care for him/herself.
If Grandmother was in care, then the fact that you helped to find care, helped her move and arrange her furniture, visited and took her to lunch, helped her in writing out bills, helped her get to her appointments, in my opinion doesn't make you her caregiver.

If however she lived with you and you with her and you did the managing, bill paying, cooking, cleaning, arranging of medical care and etc you are a caregiver. A member of the family who is taking on caregiving.

Just my personal opinion.
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I consider a caregiver the person who does the physical work. I cared for my Mom for almost 2 yrs before I placed her. Once she was placed, I did not think of myself as a caregiver. I was then her daughter and POA who visited and made sure her needs were met. The staff were now her caregivers.
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You were a caregiver .
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