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I don't think this OP is with us anymore. The husband may have passed or she placed him. I reported to have closed for comments. Its the weekend so probably will not be done till Monday.
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Perhaps it might be time for an inpatient Hospice care. You could visit with him and not have to worry every second of every day regarding his care. My beloved mom was dying slowly in my home amd with my severe disability, it seemed a monumental task everyday to turn her every 2 hours, empty her catheter bag, make sure she ate something and drank liquids. Our small town does not have an inpatient hospice unit, so with the help of my lovely daughter, (she worked) we did all we could to make her feel at home and always loved. It would have been better for her and mu daughter and I so we could spend as many joyful moments with her instead of just getting through each day and all night. Blessings to you and your beloved that a hospice facility is near your home.
Laura D.
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This OP has not been back since this posting. Neither did she respond to any of the posts. I am reporting to have it closed for comments.
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Per a ChatGPT5.5 aggregation about the ReCODE Protocol (which is too long to post here)... this is a synopsis:

"The underlying philosophy—that brain health is influenced by multiple modifiable factors—is well supported.

Many individual recommendations are evidence-based and align with standard preventive neurology.

The claim that the full ReCODE Protocol reliably reverses Alzheimer's disease is >> not yet supported by strong, independent scientific evidence, << although ongoing research is encouraging enough that it continues to be studied. "
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It appears from the comments as though I need to respond to some of you good people in regard to the ReCODE Protocol.

I will say again that in terms of ReCODE, if you actually follow those who have been on the protocol and not simply regurgitate what the Alzheimer's Association has had to say, then you will find over 10 years of success. The Alzheimer's Association has come up with no cure and no success, even in reversal of early onset. ReCODE, however, has.

lealonnie1 tells us that her "mother had dementia after living a very clean lifestyle for over 8 decades". What does "clean lifestyle" mean? Did she eat properly with no sugar intake and very low carb intake? If so, that is terrific! However, was she ever tested for mycotoxins (mold toxins)? People can get mycotoxins even from coffee and any number of other ways. Was she ever tested for chemical toxins? Both mycotoxins and chemical toxins can cause Alzheimer's. Was she ever on a statin drug or was an MD trying to bring down her cholesterol in some manner? Maybe not, but the brain lives on cholesterol.

Have you noticed that with the uptick in the use of statin drugs that there has been an uptick in the number of Alzheimer's cases? Again...the brain needs cholesterol. An MD might not tell you that, but I will, as I have read the research.

I know what the ReCODE protocol has done for me. Does it cure a person who is in advance stages of Alzheimer's Disease? No, it does not, but they are getting closer.

I don't expect anyone on this post to agree with me nor endorse the protocol. However, I am a bit stunned by the vitriol of some of you. Frankly, I could not care less if any of you got on the protocol. All of that is up to you. I am simply providing first-hand information.

Blindly following the Alzheimer's Association without considering an alternative reminds of when medical doctors used to endorse cigarette smoking as a good and healthy thing to do.

I won't even bother talking to some of you about Dr. Michael Fossel, MD PHD and the Telocyte research as some of you might classify it as voodoo. Nevertheless, many strides forward are being accomplished by Dr. Fossel and Dr. Bredesen. They are doing their best to move the needle and are achieving success. The only success I see out of the Alzheimer's Association is success in fundraising. I should know. I helped to raise money over a couple of decades for the Alzheimer's Association.

I have done my best to provide information about alternatives to fighting Alzheimer's Disease. I certainly will never claim that I know everything there is to know, but it has helped me, and I am also very hopeful for Dr. Fossel's work.

When my dear wife passed away, I thought that I would come onto AgingCare and do my best to share what I had learned about caregiving. It's not easy. But, when you love someone, you press forward, even when it drags on for years.

But, at my advanced age, I really don't have the stamina to deal with snarky comments from people, when all I am trying to do is share knowledge. I will, therefore, leave AgingCare. For those of you on this post and others who have, at least, provided a modicum of kindness...thank you.
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As you probably know, it is not uncommon for caregivers to pass away before the person they are caring for. Or sometimes right after. The incredible stress takes a huge toll. See an elder care attorney and figure out a plan to place your husband. You might feel like you are abdicating your responsibilities as a spouse but another way to see it is you are ensuring he continues to receive the best care. When my MIL was in memory care, I met a number of spouses who visited frequently if not every day. I can't imagine anyone thinking these people were not doing right by their loves ones.
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Dear Jayne44,

You sound like you are really reaching the breaking point. We understand. As with the others, I think JoAnn29 has the best answer. I would only add that if you don't have power of attorney (POA), then you need to get that done immediately. You did not mention what kind of dementia your husband has, but if it is Alzheimer's, then I also want to add that if your husband has early Alzheimer's you might want to check out the ReCODE Protocol by Dr. Dale E. Bredesen, MD (do a internet search on his name). The ReCODE Protocol is for the prevention and reversal of Alzheimer's. There is a very high reversal rate for those in the early stages of Alzheimer's. I have been on it for close to eight years. It just might be something that will help your husband, as well as preventing the disease for you in the future. I wish you all the best.
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lealonnie1 May 1, 2026
https://alzheimer.ca/en/whats-happening/news/bredesen-protocol-offers-false-hope-reversing-alzheimers-disease
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Ditto what JoAnn29 said. You might want to look into getting your own retirement plans in order as well. The lawyer can help you with that.
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Then place him. See an elder kawyer about splitting your assets. Husbands split will go towards his care. When its almost gone, you apply for Medicaid. Once Medicaid starts, you are the Community Spouse. You remain in your home, get part or all of your monthly income to live on, and a car.

Its time for you to have some peace.
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funkygrandma59 Apr 21, 2026
I second what JoAnn has said.
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