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I had a stroke at the age of30 that was over5 years ago now. And it went completely untreated for several reasons, mostly because I have no one in my life that loves me enough to help me in any way. I can’t get disability because I have to work over 20 hours to live and since I have to work that much I’m always tired and forgetful and depressed. My left side is partially paralyzed along with all the other many terrible side effects from strokes so add being in constant pain and discomfort and everything being hard to accomplish all the way down to feeding myself or doing laundry. I’m stuck in this nightmare and there seems to be no escape except for death.i pray everyday that I have another stroke and it takes my life and it can’t happen soon enough. And when I’m homeless and destitute in a month or so in the cold I’m sure I’ll stroke out out of the stress and rediculous way I’ve been treated by our society and culture and my family. Most people think I’m just self victimizing and lazy but every doctor I see and I have to see a lot of them agrees that we don’t take care of the disabled any more we just keep them out of sight and out of mind and justify it in our heads by making ourselves into such victims and so crazy that it’s on par with someone who’s actually disabled and had part of thier brain due to no fault of their own. I just wish the stroke would have killed me

I'm so sorry for your very difficult struggles.

What state are you living in? Does the state have health coverage for low-income residents? It should.

In the interim I would contact a local church and ask if they have a Care Ministry. If they do, they may be willing and able to help you, regardless if you are a member, attender or even a believer. My small church does this for total strangers. Tell them you need an advocate, a place to stay and whatever other help you need. My church has a Benevolent fund and every week the elders discuss who to help. My husband is an elder in our church and he told me today a single member just donated $10k to our benevolent fund! We're founding members of our church and this is a first. Keep calling churches or synagogues until you find one willing/able to help you.

Also consider joining Nextdoor.com and posting an appeal for housing and other help.

Please don't give up hope. May you receive all the help you need and peace in your heart as you wait for it.
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Reply to Geaton777
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You should be able to get disability and are allowed to work 15 hours a week . Go to social services and find a Disability lawyer who will help your case and get you On Medicare . A Brain disability is awful because Unless you see a Psychiatrist and get evaluated you can Get Lost in a No win situation . You have to Keep trying and Not give up .
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Reply to KNance72
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Call 211 to see what if any services are available to you in your area, and then hire a disability lawyer to file for disability for you. The lawyer will only get paid if you get approved and then it will be taken out of your back pay up to $6000.
And you should be able to not only qualify for Medicaid, but food stamps as well.
You do have options, but it's up to you to seek out those options. Start with a call to 211.
I wish you well in getting things figured out for yourself.
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Reply to funkygrandma59
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I would speak to your doctor. Ask for referral to Licensed Social Worker in private practice or call APS. You need to explore options. We cannot know what they are and you are negotiating this world now for 5 years, so I am seeing you as much more expert in this that we are. This may be a situation where you need group home, or where you need roommate situation.

This must be very difficult and it is NORMAL to wish we could just have gone out with something. No one wished that more than my brother when he was diagnosed with Lewy's Dementia. But he DIDN'T go; so we had to "deal with it". Best way we could with the best resources.

You say that you cannot access disability because you have to work 20 hours a week. Then given you don't want to work less, perhaps you can work MORE. You need someone organized who can suggest solutions. None of them will be perfect. I am so dreadfully sorry. I have a friend who's wife had a stroke very young. She did make a full recover but not without several years of grueling work. My heart goes out to you and I wish you good luck.
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Reply to AlvaDeer
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I keep getting denied disabiliy I need to see doctors I can’t afford to see I need to be able to get to them there’s so much in between all that that makes it close to impossible
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Reply to Shenofsky
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I am so sorry for where you are at such a young age. I would hope you have been to social services in your County. They can help you start the Social Security disability process. You will receive Medicare and maybe Medicaid. By getting it more resourses may be available to you. In the meantime, there's Supplimental income. With that you get Medicaid. You maybe able to work up to a certain amount a year. Social Services should help with housing. You could get foodstamps.
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Reply to JoAnn29
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Shenofsky Dec 1, 2024
I keep getting denied disability because I don’t have money for the doctors and I’ve reached out for help but no one will… and food stamps don’t matter I already have to eat from the crappy soup kitchens and I’d need help figuring out Medicare and all that which I can’t find I’ve been calling patient advocate for literally 2 years and they still arnt taking new people. If it were that easy I’d be doing it I’m not that r******d from the stroke
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