Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Our closets and furniture have downsized and we had so much fun cleaning out our old junk. Now we have two separate apartments. I thank God I don't have to go through what you are living.
Find a million ways to take care of yourself and find something that pleases you every single day; while you are caregiving. My admiration and sympathy for your struggle.
Jude, keep hanging in there. Your Mum could not live without you!
Question is, did *she* have anyone in mind? Hope you've got her good hat at the ready, too :)
I try to avoid additional pressure so I thought it would be a really sensible move to sell up and go to a flat(Apartment)!!!! Jings if only I had known the stress that would cause.
Well we sold our house, we have managed to find a beautiful apartment and it is stunning but now we need to downsize OBVIOUSLY.
I brought all Mums clothes down so that she could decide keep/ charity /dispose of. Easy peasy I thought. Oh heavens to Betsy - no it isn't. She got rid of 2 things the first time. Then constantly nagged and nagged until eventually I couldn't bear it any longer and in the second run she threw 4 things out. Well this has gone on for 4 weeks now - luckily moves in the UK take forever it seems.
The last attempt was 2 days ago and I got her to throw about 50% of her stuff - the charity bags were being collected Friday and so it was spot on timing - YAY...............so so wrong Oh jings now it is worse than ever because she just wants to 'check' she made the right choices....erm too late they have gone to charity Mum
It is 8:34 am Mum has been awake for 2 hours and she has asked to check 13 times so far and I want to scream....a lot
Right now I am hiding because I swear if she say she wants to check one more time I will have to walk away for at least 2 hours to get my sanity back
Good news! Try not to hate yourself for how you have been is how you were groomed to be and you are not at fault for that. You now have self awareness and see what is going on which is great!!! That is much further than many people ever get. Yes, it will be an up and down experience with a few steps forward followed by some backward, but overall making some progress toward the goal.
Probably an anti-anxiety med possibly would help you while you work through these other things which take enough emotional energy. This is one valid use of such meds because not everyone struggling with anxiety has an anxiety diagnosis. Their anxiety is dependent upon the situation. That is something to consider and ask your therapist about once you meet with them. Your primary care doctor should be able to prescribe you a basic anti-anxiety med.
Take care and keep coming back so that we can support you and know how you are doing! KA which stands for Kick Ass!
A lot of people love my mom and find her great and humorous, etc., and tell me what a wonderful lady she is. I don't argue with it, but I know she's damaged from a rough childhood and some sort of mental illness. Heck, as a little kid she'd apparently talk about committing suicide and do things to draw attention -- even bad attention was good because it was attention. Just sadly she and I don't get along well anymore.
She's cut off contact with everyone over the years. Every family member, and every friend. No friendship of hers is older than 10 years, and the oldest friendships are the most frayed; the newest ones are the happiest and dearest. She simply gets tired of people and finds fault with them and dumps them. I sometimes worry that in six months she'll hate her neighbors and think they stole from or gossiped about her and then she'll call with a whole bunch of harsh words and accusations and I'll be expected to drive her around and hear endless talk of how I abandoned and betrayed her, even though in the last 5 years she's probably written or called me about 10 times and told me never to contact her again!
But if she makes other people happy and they make her happy, so be it. More power to them. Sometimes you just have to live in now.
Yes, how dare us to put our family--husbands, kids, grandkids, or ourself, before our mothers. I got so tired of hearing "well, I am your mother", I can't believe you would do that over your mother. It makes me angry to write it. Ha! I am so glad I am not hearing that anymore.
Making some changes is difficult, it took me 5 years--well actually over 40 years, but the last 5 years were pure h*ll. I am so thankful that I was able to finally make those changes for myself and my family. One day at a time is all we can do. Nijny: I am glad to see you are finally searching for those changes. Now that you have time to sit and contemplate things, you will make the right choices for you and your family. Your mom will be just fine. I learned that the hard way, but we do not want to end up like them. Our health--mind and body, is just as important as theirs if not more important.
I wish I could respond to everyone. There are many great ideas, stories, and thoughts. My mom hasn't been very nice to the caregivers at AL and the director has had to talk to her about it. I try to keep up with what is going on without her knowing. Nothing has changed with her except she doesn't have me to use as a punching bag. My aunt hasn't been to my mom's in over a month and my mom hasn't called her either. I am sure she is lying in her bed in a pity party and pouting at everyone. She did a lot of damage in the first month I didn't talk to her. She blamed everything on me, of course, and called the bank, the attorney and tried to tell everyone I was cheating her and taking from her. Well, so far nothing has come of that. The bank did send her a statement. So now she sees I only pay out for her rent. I wish I didn't have to do that, but I am working on that too. I NO LONGER get her medicine and I no longer worry about it. She is very capable of calling the pharmacy and the doctor and when she can't do it, they do it from the AL for her. Yay for good caregivers. Even if it uses up all her resources. I will tell you that she will out live her money.
I had a friend to lose her mom this morning and another friend's dad had a stroke and they are just keeping him comfortable and waiting. Then there is my mom sitting in misery and making everyone else's life miserable. Who knows the reasons, but I am thankful every day I do not have to talk to her and can handle her business from a distance.--2 miles down the road...Ha!!
Good evening and it was so good reading everyone's post. Take care. One thing that I heard the other day from Joel Osteen made me think: He said, "Some say good morning Lord, thank you for another day" and some of us say, "good Lord it's morning"... ((chuckle)) I now try to say "good morning, Lord" instead of "good Lord it's morning"...There is a rainbow in every storm. Love to all!!
I try to think more of those positive types of things -- it doesn't always work -- but I try. She's just so damaged in her ways and now with the onset of dementia, it's a loss. I used to feel really upset that I had friends who could do things with their moms -- you know, like a shopping day or brunch -- and then just thought, OK, the weirdness and the hardships, I think they helped mold me in some positive ways. I've got interesting stories about her, and I have learned as much from her what to do as what not to do. Both have value. Not everybody gets June Cleaver. Biggest help is knowing I wasn't the only one to have an odd upbringing. It would have been nice to find kindred spirits at age 13, but better late than never!
I remember being 11 and she threw up or something or had stomach pains and I asked about it, and she said she had stomach cancer. I was horrified, terrified I'd lose my mom. Then nothing happened, no treatment, etc., and she then in 1995 got osteoporosis and nothing was done for that either, then colon cancer (because they removed polyps), then angina (for some reason), and countless other ailments. The ones that had no basis in fact, she ignored except to make up a story to amuse herself for a day. She used to put her arm in a sling or carry a crutch around to get people to ask about her arm or if she'd twisted her ankle, so it's all attention.
In between she had real problems with blood sugar and would faint. Scared me to no end at 13, because I didn't dare calling an ambulance and risk making my mom furious, and she'd come around in a few minutes. She never did anything for that. Won't tell the doctor about it either. Got mad when I mentioned it to the doctor years later. Another time she ate raw bacon and I mentioned it to the doctor because she got so sick and dehydrated she had to go to the hospital. I betrayed her by sharing a "private matter." Said they were laughing at her and I should be ashamed.
And yet she smokes three packs a day and says her lungs are perfect. When I asked years later why she made up the stomach cancer, she said "I was just being eccentric!"
Sure it's funny now in its ways, but tell your 11-year-old that you're going to die of cancer in six months. It sure wasn't funny then!
Why should the narcissist have all of the independence when the truly independent one can truly live more independent than the the narcissist in independent living?
Dang. Go for as much independence as your heart can be filled with!
I"m glad that you found us and that we can cheer you on and be part of your united, shared trauma and recovery team! Keep moving forward as you are.
njny - I am glad you see it is not too late - never too late to make healthy changes. Your life can vastly improve. Learn to detach, detach, detach!