Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
cher - sounds like you need to go no contact with your husband that ill. I am so sorry. ((((((hugs)))))
It's so time-consuming/time-exhausting isn't it? This is why we have to watch out for our health... It all starts to take a toll on you. I think mental exhaustion is the worst... I've sure found this out... I've taken a step back now... This is a good thing to do... Whatever you can do for yourself... no matter small... force yourself to do it... I'm thinking of you Jewel... take care of yourself... and, everyone here...
When you do meet with a therapist, maybe discussing that lose-lose situation you're in would be helpful. It's hard to get rid of the guilt, feeling so "disloyal" and "disobedient", when you're doing exactly what you need to be doing for her own welfare. My therapist helped me overcome a lot of that.
No contact or little is a good option.
My mom did have a tough childhood, and I think mental illness is at play, too, so I have my sympathy to an extent, but then there's also the problems of dealing with someone who is an emotional vampire. When they have tantrums or get hateful about things that don't go their way, I just don't want to deal with it anymore.
I figure now if she's willing to pay a neighbor $20 to take her shopping she can give him a $10 bill and ask him to get her a pack of cigarettes and keep the change. (That seems to be her big crisis anyways, and she always keeps about $8,000 in checking, so she can afford her smokes.) I just don't feel like throwing everything to the wind to run and fetch for her. If she wants someone to complain to for hours, she can pay a therapist. If she wants someone to do her bidding, she can hire someone and then like any employer she can set the schedule. I'm nearly 42 and I've given up vacation times and weekends and very nearly my sanity to try and make her happy. It's not working, so I quit. I'll still try and help her and I know I'll have days where I get upset, but I just don't see the point anymore of trying to make a miserable person happy when nothing has made them happy in decades.
I've heard the "cause" of everything bad, too. Is it realistic, though? How did you "cause" it? I know my mom always blamed the whole family and my aunt once said "you know, we loved your mother, but we never knew what to make of her." I thought that was telling. We all knew there were problems, we just (back then) didn't know that we could call them that or label them as mental illness necessarily.
I have had a couple friends in the past week lose their moms. These are both male friends and their moms meant the world to them and their moms were so good to them. They are heartbroken. I feel so sorry for them knowing that they will miss their moms and be lost without them. Then there is my mom sitting at AL being hateful, complaining, negative and hating life as she knows it. (I do understand that life isn't as she would like it, but it never has been in her eyes even when life was good) I know I am not supposed to question, but I do wonder how some can live a short happy life and some have to live a long miserable life. My mom is soon to be 70 and that is so young but I will tell you that she will live like her mom, grandmother and great grandmother--they all lived to 90-101. Her dad died of cancer at 67, but the rest of the family lives a very long time. Which is great, but my mom will live a long, miserable life.--so sad.
I have spent the day preparing for Easter and have enjoyed the day, but then I have those instant thoughts about her and how she will not hear from again this Sunday. I am very proud of myself for taking a stand, but then the little girl in me feels like I am disobeying my mommy.
I set it up for her after her fall because I thought it'd be good for her to get some variety and a regular hot meal, which has to be nice when you tire easily or live alone. It's free in the area, with a suggested donation. I hoped she'd see it as a nice service in the area. She saw the suggested donation part and called it a money grab.
I explained and said she could give what she could afford. She tried to cancel it, saying she couldn't afford it. Again, I had to explain it, and then she started ranting about how the food was "for poor people" and it was insulting or it wasn't always her preferred meat and potatoes (my god! They delivered spaghetti! The horror!), and again, they just were seeking money.
I told her for some people that's their only contact with another person and sometimes it's the only good meal they get each day. She still insisted it was disgusting food for poor people.
My husband and I just shrugged at it. Free, charity, kindness ... it's none of that for her. It's just an inconvenience to her because it's not exactly what she wants. It was just another step in me giving up. I'll help her if I can, but I'm not breaking my back to try and make her happy, since nothing ever will.
One of the things I've been involved in for the past 2 weeks is coordinating and confirming the arrangements for her to go to her synagogue's Passover dinner, which is tonight. I had to call her yesterday for another matter (her caregiver called in sick, couldn't get hold of her on her phone, so I made sure the phone was working by calling her and she answered this time). I mentioned the dinner in order to keep it fresh in her memory, and she commented that she thought it was to be that evening (yesterday evening). I said, "No, it's tomorrow-Friday night." As usual, she dismissed what I said, and instead said something about how she'll know for sure if no one shows up that evening -- that she'll know that "they forgot about me."
She just has this poor, forsaken, victim mentality. She's had it all her life, and now with dementia, it'll never be shaken loose. I didn't bother trying to make her understand, I just let it go completely. I haven't called this morning to try again to remind her either. I'm tired of working harder on her social life than on my own, for nothing.
For a number of years, especially after divorcing my dad, I think she drank to self-medicate. Fortunately she doesn't drink anymore, because she would drink to the point of falling over, and instead of it being sad, she always said she was being "eccentric."
Anything unacceptable (dating a married guy, getting too drunk, stealing a waitress' tip, stealing a boyfriend, accusing her boss of sexual harassment to get unemployment after quitting her job, or lying to friends and neighbors or making up a fiance or husband for me before I met my husband, it was "eccentric." If I got upset, I was the bad person with no sense of humor; it never registered to her how weird it was when I visited her with my then-fiance and neighbors thought we were married and he was an airline pilot when we weren't and he wasn't, or we betrayed her somehow to exposing her lie.)
I think she blossomed into a pretty woman at around age 14 or 15 and it got her attention and she's rode on that her entire life. It got her negative attention from the family, and I think she milked it to get attention -- other people noticing her (value, honesty, etc. were worthless, it was all for attention).
It didn't matter if it was true or if it hurt anyone else, so long as she got attention it meant she was something, even though now she's a 77-year-old woman with no contacts to family except for a very damaged relationship with her daughter and no friendships that are more than 2 years old. I think she still acts up purely to get attention, but the problem is most people have figured out there's nothing genuine there or there is no empathy or any real give-and-take. And if she doesn't get what she wants, everyone else is the bad guy in the equation and she's the victim, even if it's something as simple as no one being willing or able to go fetch her her cigarettes at that exact moment.
Anyway, cut yourself some slack from her visits. Many people would be grateful to have the care she is able to receive but does not appreciate
I know somedays it doesn't feel like it, but you've come such a long way.
My mom always showed up when invited when she thought my dad might have a chance to come, she always said yes first. Now, every time she is invited somewhere the answer is always NO! I am glad, but then she accuses me of never asking her to do anything.
If someone looks at my mom she takes it wrong. Someone is always being rude to her and giving her a "look".--her words. Your mom and my mom have the same ideal life. She would love for me to give up my kids, my husband and my life and move in with her; do what she says and do it how she wants it.--I still don't think it would be right because I did it.