Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I hope your call goes well!
The fact that you're getting scared sick feelings even when not interacting with her tells me that your relationship with her is still causing you the physical manifestations of stress. Your body is paying for this. Please make an appointment to see someone this week.
I noticed some have encouraged you that it's time to take care of you with some therapy. Have you made an appointment yet? No one else in this equation can change but you. Sleep well and keep in touch.
Until tomorrow... Sleep well, my friends.
Ideal would be that we didn't have to listen to their idea of us taking care of them. I do not mind at all taking care of my mom as I am sure everyone else feels the same. What I do not like is how unfortunate that they do not see the good in it.
A month or so ago she told me they didn't come in enough to check on her and that they weren't taking her food order til late. So, I called the director and told her some concerns. They are doing better, and now my mom says they come in too much. Really!!?? Just always looking for something to complain about. I did read something not long ago that made me realize that they think that it is everyone else because they think they are responding appropriately to the negative world around them. The world is negative not them. Sad!!
I too feel the depletion of myself. Broken, I am just broken. I also worry about the future with her. my mom being just under 70, this could easily go on 20 or 30 more years. GROWL!!
Like with your mom, looloo, I too feel I need to do things to help out. We feel some sense of obligation to them. Unfortunately!!
Today, I called my mother and spoke to her very briefly for the first time since last summer (with the exception of 1 or 2 10-second long phone calls). It went well, she sounded cheerful and happy to hear from me. I did my best not to be "seduced", but it was a relief to have a brief, low-maintenance conversation.
I asked her to go to her weekly calendar and write down a reminder to set her clocks forward this coming Saturday for Daylight Savings Time. And I let her know about her doctor's appt this coming Monday the 9th. I waited until today (Tuesday) to call so that she wouldn't have to figure out more than one Monday in her head. She gets her weeks mixed up quite a bit.
She asked which doctor this was, and I told her it was an orthopaedist, who might be able to treat her spinal stenosis. Didn't mention the possibility of surgery. She seemed fine with the info. And I told her I'd call her later in the week and remind her, and that was about it. BIG cleansing breath after I hung up.
Now I have a 6 page thing of information to fill out for the doctor....
Looloo: I am not a big reader, meaning I don't do well with books. I can sit and read a short article or something summarized, but my ADHD kicks in when I open a book. I guess this too comes from the anxiety I was blessed with from her "training". My mind doesn't rest well and I have to stay busy. I know what I need to do and the guilt eats at me. I should have walked away 5 years ago when I thought about it. Now that she is not "herself" but so much herself--make sense? I am having a hard time knowing how to do it. I wish she didn't take medicine, that is one thing that has to be called in and picked up. She can take out of the bottle or fix or pills now herself. She did a decent job while I was snowed in. Getting her the pills and groceries is my task right now. I am thinking hard. My brain hurts from thinking so much. Ha! My daughter sent me a quote last night and I will share it with each of you...
You do not have to set yourself on fire to keep someone else warm...
Well, I took care of my mother's income taxes last Monday, which is always a big thing to cross off my list. I am going on week 3 of trying to get the appointments for my mother (another MRI and a consult with a spine surgeon). I cannot believe how much the process was bungled, but as of Friday afternoon, the problems are slowly getting worked out. Tomorrow I will have to follow up again and make sure the imaging office has all the paperwork. Myhe. I can schedule the MRI, which the spine surgeon needs before he is able to do his consult--which everyone neglected to tell me!! I had no idea I needed to schedule the MRI first. Still, it was as good a place as any to wrap up the struggle for the weekend, and begin again on Monday. I looked forward to having no choice but to put it all on hold for 2 days.
Yesterday, looking through the mail, there's a letter from my mother. All I could think was, "What NOW???" It was a note stating that she was concerned because she hadn't received any tax stuff (because I've been handling her mail for a year and a half now). She wondered if I knew anything about that--perhaps I had gotten involved "because you're so good at that sort of thing." That's NOT a compliment. That's SNARK. Anyway, the motives behind the note depressed and angered me. She's trying to prove that she's still "with it" (remembering that this time of year is tax time), and she's trying to provoke a confrontation with me by implying/accusing me of overstepping. I tore up the note and threw it out, and will not respond. I don't need any reminders of how difficult it will be to deal with her in person when we finally do get those appointments, and after spending a lot of work on HER the last several weeks, I was craving a "mother-free" weekend. I had been feeling relatively brave about having contact with her, but that d*mn note really upset me.
Hope everyone is doing well.
As I have written, my mom had her dizzy spell for a couple of weeks. The doctor finally came to see her and she had an ear infection--(a bad one) and a perforated ear drum.--doctor thinks she went too deep with a q-tip. After some ear drops, she is feeling better--no dizziness. She is still the same ole mean mom, but no dizzy spell. I have called her everyday to check on her and been to her apartment at AL 4 or 5 times in the past two weeks. I called her last Thursday and boy did she have some things to say to me. She acted like I hadn't even been to see her or call her--don't get me wrong--she remembers me coming and calling, she just had something to say about it. She started telling me that I only come to bring her medicine and to check to see if she is alive. I told her if I was only bringing medicine that I would only come once a month or I would have the pharmacy deliver. The conversation went on and got uglier. I started telling her she was being unfair and she told me it was fair that it was just the truth. She went on of course to tell me I took her there (AL) and dropped her off and had no intentions to get her out of there. She went on to say that she wanted a house and I won't let her get one and she can take care of herself, blah, blah...--she showed me how she takes care of herself. I went on to explain that i was worried about her and she is safe where she is. I stayed calm and tried to sound very caring. Nothing was working. The kicker was when she said, "this will come back to haunt you, it will"...I said, "that is not nice", she said, "it's is nice, this will haunt you one day", the way you treat me will haunt you" I kept telling her I was getting off the phone and she kept saying it over and over. So, I said, "bye, mom" and I hung up. It will haunt me? What will haunt me? She thinks I am so terrible to her and I truly bend over backwards for her and always have. Maybe I have learned not to bend over as far as I used to for my own sake. She has ALWAYS been this way to me. Sometimes I feel she really never liked me, but I have still done what she said.--I was just trained well. Ha! She haunts me everyday as it is. This will not haunt me when she is gone, because I know I have done everything a person can possibly do to help her. She just will never see it. It is a shame that someone is so miserable in their own life that they cannot see what is right in front of them.
So Sunday normally is my visit day--which she also reminded me that I only come on Sundays--I freaking work during the week. After listening to her on Thursday and the things that she said to me--I didn't list everything, I decided I wasn't going on Sunday. I called her and told her I wouldn't be much company and I wouldn't be there. She was silent!! She said, well, you aren't coming? I said no, I will come this week after work. I also knew we were getting a big snow and needed to go to the grocery since we wouldn't have school.--remember I still have a child at home while trying to take care of my mother. So, I stuck to my guns and didn't go! I went to the grocery and did for my family that appreciates what I do. I hadn't talked to her since Sunday so I decided to call today. I took a deep breath, said a little prayer and dialed her number. Her pitiful voice, "hello". I said, we are snowed in, it's a blizzard. Her reply was, "uh huh". I tried to talk to her and she sat there in silence. I said, "I called to check on you", she said, "ok,...click" GRRR. She is so ungrateful. She is mad because I haven't weathered the storm and been to see her. She is thinking--that everyone has been able to make it to work, blah, blah. That is their job! They are not there just for her. I do not want to be around her. Who in the world in their right mind would enjoy taking that non sense from someone, especially from their mother--whom is supposed to be a support system. She should be telling me not to get out in this weather. She is so selfish and self centered that she only thinks about how I should be doing more for her.
I have to remind myself when she complains about being cooped up in her room, that is her choice. when she complains that she doesn't eat, that is her choice. She chooses to not participate in activities, it is her choice to be mad all the time.--not mine. I try to give her solutions and she finds something negative with my answer...so I just tell her I don't have the solution. Even if I did, she wouldn't try it. Why do I still blame myself? Maybe she is still in my head more than I would like. I really have done SO much better. I don't spend my days worrying and stressing over her and her words anymore. I still have to lie to her about certain things--funny how she gets more mad at the truth, but I am so much happier knowing I can let go and let the staff take care of her. The more she complains and says ugly things to me, the less I will go. I feel good about my decision. She is safe, warm, and fed. The staff does everything they can to make her comfortable and I couldn't ask for more. Sadly, though, they are learning her habits of being hateful. She is starting to show herself to the staff now. She gets mad at them if they don't come on time--her time, or if they don't come enough, or if they come too much. They are learning how hard it is to please her and they have told me they cannot imaging what it would be like to have a mother like that. They stay very calm with her and do what she asks. I did for 45 years and now I am learning I do not have to. Thank you for listening and I hope for each of you to find some sort of peace. I am still looking for the peace--only when she is gone, but I have found some relief for now and I am enjoying it. Love to all!!
No real update here today. I called my mother insurance to see if that STAT referral was in process yet. No, it's not. I'm not annoyed, just antsy. It's not easy being in limbo. There's a lot of coordination I'll need to figure out w/my work, home responsibilities, my p/t job, and so on, so the earliest I can get information, the better. Should be hearing something by the end of the day, or Monday at the latest.
My mention of dog boarding has to do with my mother's dog, btw. I'll be down in her area to handle her personal care only, and won't be running myself back and forth to feed and let her dog out too. I'm not cold hearted re-dogs, believe me. I'm a total dog lover. Just being practical...
Hope everyone has a restful weekend -- most of you have cold winter weather still, I think? It sounds like a lot of you are looking forward to spring, so hope you all have a lovely few days of sunshine, anyway :)
Well, here's the latest from my world: Still aiming and firing (like I'm playing Centipedes!! haha) at the crap "charities" that manage to call my mother and weasel donations out of her. I cut down on a bunch of them, but every few weeks, another one will crawl through like a bug and then I'm off on a rampage again, calling phone numbers and raising h--l.
She had her EEG a few weeks ago, and her MRI a little over one week ago. Her neuro is very nice; he spoke to me about the results on Tuesday. Turns out, he was alarmed over the pressure on her C2 and C3 vertebrae due to severe spinal stenosis. I knew she had this condition, but he said it was so bad that it could cause paralysis, maybe from her neck down. He wanted to see her asap for another MRI on just that location, so she had it this morning (caregiver took her). I asked that the results be faxed to me, and after the usual oops-they're-dialing-my-cell-phone-not-the-fax-line! moments, I got the paperwork.
He has requested a STAT referral to a neurosurgeon or spine surgeon for her. And she has to wear a soft neck collar, which I doubt she'll do, but you never know.
She has pretty decent health insurance, but if you live in the States, you know that it takes a lot of "advocating" as they say (you gotta be pushy and a nuisance to get things done). So I'm not sure what STAT will really look like, but at the age of 84, and generally non-compliant, I'm not worried. Que será será.
I did however, immediately get the names/numbers of a few dog boarding places near her, just in case she does have to have surgery. I'm not optimistic about any kind of true rehab/recovery, so a part of me is thinking (hoping) that this could be the catalyst to moving her to a care facility.
However this turns out, I'm doing my best :)
It is a tough act! I am going through the motions. She also wants me to call the doctor, but they aren't going to do anything about this dizziness. It can last up to two weeks. I have vertigo that hits and stays anywhere from a day to 5 days. Funny thing is, when my mom was "well" she would never go to the doctor. She never got sick and that's the truth. Now, everything is wrong.
I too feel sorry for her suffering and wish she didn't have to go through this, but my mom's attitude is just magnified of what she really is. This is the true her only exaggerated. I just see the real her only in more rare form.
Judda, if you act like my mom, stop it right now...ha ha. Positive thoughts.
"I hear that you were scared and you were afraid of no one being there for you." Well if she is like my mom, you couldn't get even one word in, right? Then I would collect myself and say, "I don't need to listen to this. I'll talk to you when you calm down." Do something that shows that you care for her, you hear her concerns and that you have NO tolerance of her putting you down or of her stealing your peace.
It might be verbal, or body language, or just leave. "sorry you feel that way." and then split. Change the dynamic between you and her.
My mother has been tons better to me. She still tries to throw her darts but I don't give them any power. I change the subject. "So how is...." "have you heard from" anything different.
Does she have anyone that visits her like a Visiting Angel or companion or something like that?
My mother's health has a definite direct response to the people around her. The lonelier she is, the worse she feels. A little company distracts her totally from her fear of death, etc.
I wish I were better at working with someone in a nice way, but who were my models? I am fine with individuals but if feel ripped off by a company I become a little like your mother I bet! ;)
The more we let go, the more peace we can feel in the moment. Sometimes I just give my mother a hug in between her rants. I don't expect her to hug back. She never does actually.
It's a tough act for us, isn't it? But we are growing and learning to be better people and that's the whole lesson I am guessing.
Just keep trying to do something different with your Mom and be consistent. She might even try to be different herself. I do feel sorry for their suffering though. I hope we do better in their shoes.