Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I applaud all of you wonderful caretakers who have done what it takes and who are doing God's work...I will hopefully and prayerfully learn from your wonderful examples...God bless you all.
It will be a Merry Christmas because I am keeping my eyes on Jesus and He is showing me the way.--I will also tell you He is living through you to help me through this.
Love to all!!
If my mom had full blown dementia--to where she forgot everything--meaning she repeated herself because she truly forgets one minute to the next, I believe it would be a bit easier. She only forgets somethings but boy can she remember most everything. Her reasoning and decision making skills are what is lacking right now, and it is enough to make me forget who I am.
Thanks for the encouraging words. I have decided I am going to call her tomorrow and tell her I will be up on Friday. She can cry all she wants, but I am putting my family first!!
Enjoy your pajama day. I think my phone would be "disconnected" until after Christmas.
Her: "uh, no, I don't think so".
Me: Ok, I can come Sunday.
Her: What are you doing tomorrow?
Me: Christmas with inlaws
Her: Oh, I forgot.
Me: Yea, I can come Sunday.
Her: Sunday? Where are you going Christmas?
Me: I am going from the bed to the couch on Christmas.
Her: Oh
Me: I can come today or Sunday, mom.
Her: Well, ok then. Bye.
10 minutes later---- phone rings
Her: what are you doing tomorrow?
Me: Um, we are going to the inlaws...???
Her: ALL DAY?!!??
Me: No, not all day, but we are going there.
Her: Are you cooking???
Me: Fixing a salad.
Her: I hate it here!!!!, you don't even care! They do stupid things here, playing some Christmas game!
Me: You don't have to go, mom. I am glad you chose to go, but you don't have to.
Her: I force myself
Me: I am glad you do.
Her: You don't even care that I don't have anywhere to go on Christmas.
Me: YOu are welcome to come to my house and watch us sit around in our pajamas, mom. We aren't doing anything.
Her: You don't even care.
Me; I have tried to fix it, but I can't.
Her: How have you tried to fix it?
Me: I have moved you everytime you says you need to get out of there and that you are miserable.
Her: silence, how can you act like nothing is wrong. Silence....
Me: Silence....
Her: don't you have anything to say?
ME: No, mom, I do not have anything to say.
Me: My family sees me stress out over this situation with you, because you don't see it, doesn't mean I don't care. You are welcome to come over.
Her: I am getting off here!!
click
Ok...this is my life on a daily basis with this woman. I am worn out, frazzled, stressed, and can't even enjoy the holidays for wondering what kind of fit she is going to throw. Maybe she is right, I DON"T want her over here complaining, whining, and crying about herself and her misery. I don't want to spend my Christmas with my family in misery. I guess, I am thinking is it ok if I don't ask her again. I have asked three times with no response. I am tired of begging her to be happy. It is not up to me to make her happy, but yet I continue to try. uuggh!!
I guess I am not looking for a true answer, just needing to vent. My family gets tired of me talking about it to, because I keep doing the same thing, doing for her .
Thanks for listening... Merry Christmas!
I am working at trying to love whoever my mother is right now, but somehow without being attached to her, being attached to my own expectations of her or my pleasing her, and any other junk like that. It's really hard to tease apart the emotional patterns we were trained in since birth.
I went to an all day meditation today. It was wonderful. I prayed that God would help me find a way to be loving without being hurt. I know a true yogi has gotten rid of the ego and thus can give love unconditionally. I ask myself: Who is hurt now? What am I hanging onto? What must I let go of? How can I keep my dignity or should it even matter with someone this age and that demented, or deaf, etc.
I don't have any answers. I know I could develop more patience, keep my opinions to myself and just nod my head and try to be useful. So happy to do something else when I don't have to see her. I feel love for her the next day, as the annoying feelings soon evaporate. And sometimes, there are moments we both enjoy.
My prayers are with you for finding the right attitude that gives you peace and gets you through this.
She torments you. It's awful. I know if it were easy to stop you'd have stopped it. It just ***looks*** so easy from the outside! Hugs to you. That's that for this year, anyhow.
Toxic is the relationship whether it has happened now or 40 years ago. It seems you have found peace and I am happy for you for that, but many of us have not found the peace we are looking for yet. Therefore, we continue to write our thoughts, our feelings and how our day went.
YOU need to take care of you. Nothing you do will please mom unless you become a mind reader. Do what you think and know is best for her and be at peace with that.
As you know I was dreading today. The non-birthday lady visit. When my daughter and I went in she immediately jumped up and said, "I thought you were coming yesterday?" I waited all day for you to come. Why didn't you come? Mom, I said Friday and you repeated me. She looked at my daughter and said, "no point in arguing with her, she always wins." BAHAHAHA!!! I wanted to laugh out loud. If she waited all day, then why didn't she call. No, she sat mad at me and pouting as each minute passed 1 p.m. The staff had her cake waiting and we went to the dining room--she whined that she didn't want to, but she had a great time. We hurried her up to the dining room so we could get out of her room and away from the negativity that was getting ready to happen. Then she asked, "aren't you coming tonight for the party?" Yes, mother, we are coming...uugh! I didnt really want to but we went and it was enjoyable. Yes, read it twice, enjoyable. You may not read those words from me for a long time, but today was pleasant.
I took her gift but didn't wrap it upon her request. She wanted to know why I didn't wrap it. No comment from me. Then she told the staff she didn't expect a cake from them she thought I would get her one...go back and read my last post. no gifts, no flowers, no cake. LOL. I said, "you told me not to"....everyone laughed and believe it or not, she laughed too and agreed that she said it.
My husband even asked her to dance at the Christmas party tonight and she shook her head no and said I don't dance.--well, she used to.
After the party, I did her pills and told her I would come on Tuesday next week. She was disappointed I wasn't coming Sunday. She said, We are getting off schedule. I told her only until after Christmas. I think I will make up a holiday so I can skip visits. I can at least rest this weekend knowing I do not have to go and I have had a decent visit for a while.
Bless each of you this weekend as I know each of us are going through rough patches.
The dramas elders enact are all to keep their little girls at a soldier's attention.
My mother starts out her phone calls with, "Ah J.....! Listen, listen, I need this....."
It always is presented to me as if she just placed the world on my head and I better drop everything and get to it. Later it usually turns out to be nothing and even she dismisses it as important, without any apologies. The next demand comes shortly and the pattern continues. UGH.
Jewel, I hope this all is helpful.
My counselor also suggested I find a different way: so did my friends, and three doctors who told me my mother has a "toxic effect" on me!!
I called the florist today to confirm delivery, and discovered that she sent them to Nosy Neighbor Lady! Who, thank goodness, I haven't heard from in about 3 months now, but I guess she's still involved w/my mother. They give me such an icky feeling. Two nasty people, posing as sweet do-gooders.
CM: I am not too much on birthdays either, but when my daughter gave me a surprise party in November, I told her how much I appreciated it. I don't think my mom ever had inhibitions.. I do believe she is losing what she had.
Babalou: I haven't been to therapy yet. I cannot afford it right now, but I do need to find a way in the worst way. I need to get these things off my chest out loud. I was going to talk to my pastor, but they moved and left the church.
I go to my mom's tomorrow for her non-birthday. We decided not to wrap the gifts so she won't freak out too bad. If she thinks my daughter picked out some of it, she will not say too much about it. She at least keeps her cool around her. I pray she doesn't want us to come back for their Christmas dinner at the AL. If she does, then I will suck it up and go. She isn't too bad around others, but it is very uncomfortable, because she doesn't treat my family very nice. She used to and it is hard to watch her treat them how she probably really felt about them, but now the filter is getting very thin.
Um. I hate my birthdays, too! Discreet acknowledgement is about all I can handle, if I'm honest about how comfortable I feel. But at least I have the manners to stick a smile on and be grateful for people's thinking of me - she's not losing inhibitions or something, is she?
Mom: Friday?
Me: Yes, Friday for your birthday.
Mom: Did you get the thing in the mail about the Christmas dinner here for Friday?
Me: Yes, I wasn't sure if you wanted to do that.
Mom: I don't know.
Me: Well, I will see you Friday.
Mom: I don't want a birthday.
Me: Ok
Mom: Don't buy me flowers.--She hates flowers, who hates flowers? smh
Me: Ok, with a laugh.
Mom: Don't get me a cake.
Me: I won't.
Mom: I don't want presents either.
Me: ok, mom...I will see you Friday.
Mom: Silence--I don't really want a birthday. Don't get me anything.
Me: Ok, gotta go, see you Friday and you can let me know what you want to do about the dinner.
Mom: --click-
Who doesn't like to be thought of on their birthday? Um, my mom. She always complains that I don't do enough for her, but when I try--which is every week... She decides she don't want me too. I am climbing an uphill battle.
I really hope she doesn't want to do the dinner on Friday evening because I will just have to hear how everyone seemed bored.--if my family doesn't dote on her, she thinks they are bored. I pray she decides for us not to come. All she has to do is say it once. Ha!--no begging here. That is one thing I have completely stopped with her is begging. I used to beg her to do things, but now when she says no, I take no for an answer.
Hope everyone is ready for Christmas. I am trying very hard to get in the spirit of things but this year has reamed very difficult.
It is not too much to ask. However, God has given each person a free will and God will not override your mother's free will to be different that the way she chooses to be. Unless she's open to God changing her heart, it is not going to happen.
The only thing that keeps me on this path right now is that it's working better than any other attempt ever has. AND, everyone else who's commented on how they've kept contact to the minimum, or gone completely no contact -- they ALL say that their only regret is that they didn't do it sooner. That always gives me food for thought.
I hope your visit this week goes by as quickly and painlessly as possible. Good luck! Hugs...
"Caregivers are often the casualties, the hidden victims.
No one sees the sacrifies they make."-- Judith London
I couldn't agree more!!
While watching Joyce Meyer last night with my daughter, I realized even more of how I need to move forward from her and stop letting her control my thoughts. My mind tells me one thing and my heart tells me something else. Our minds are powerful things. My mind lets all these negative thoughts enter and my heart says don't believe it. When I talk to "her" then my mind goes crazy with negative thoughts and it consumes me. I will continue to work on this.
Another thing that drives me crazy is the lying that I have to do with her. I am always covering my tracks and telling her things that she would rather here, than the truth. If I am honest, I will even be in worse shape.--hard to comprehend but it is the way it rolls. I know this stems from the lifelong path she has set before me. My aunt tried to be honest with her the other day about some things dealing with my grandmother's estate and my mom went off--literally. Threw a fit, got mad, yelled, etc. I didn't tell my mom these things for I didn't want to get the blunt of it. My aunt agreed to do it. Now, I am dreading going to my mom's this week because it will be a living h*ll. We both agreed to lie to her about another issue with the estate and now I am back tracking to make sure the lie stays under the rock. Whew!! How exhausting. My chest hurts and my head hurts just thinking about it all. I will be SO glad when this estate thing is settled and I can finally tell her it is over and I don't want to discuss it anymore. My aunt is trying very hard to get everything settled so we can move forward. My mom has had ample opportunity to discuss, choose, make decisions and give her ideas. But NO, she would always say, "this makes me nervous and I can't make decisions"...that was her excuse anyway. Now, that most things have been done, she is angry and now giving her opinion about the way things should have been done. I have told her that it is too late to do her ideas. I also told her she had great ideas, but we cannot go back and redo things. This is where she hasn't changed, she lets others make decisoins, then she gets angry because it wasn't the way she thought it should be done. UUGH!! I am more than tired of the repercussions from her. Do it this way it is wrong, do it that way it is wrong.
One other thing on my mind...My grandmother had some personal belongings that my mom has chosen from. She didn't want anything but a couple of items and she asked my aunt what she was going to do with what was left over. My aunt told her she was going to let the rest of the family go through them. My mom got really mad and told her no. She is so selfish. She doesn't want it, but doesn't want anyone else to have them. One more thing I will have to hear about when I go visit. Her birthday is this week and I know the right thing to do is go visit on that day, but it will not be enjoyable. I have prayed that God change her mind about being so hateful. I wish all of a sudden she would be kind, sweet, caring, forgiving, and a pleasure to be around. Is that too much to ask?
So, I requested a day off from work on her appointment day (she better not cancel!), and while she's at the doctor, I will go into her house, check things out to see how everything looks, and so on, and will also gather some files that I'll need one of these days.
I've decided to give my once-every-3-weeks therapy appointments a rest after the one I have scheduled for next week. I think I've gotten to the "beating a dead horse" stage of things, which isn't a bad thing. If a crisis comes up, I reserve the right to make another appointment. :) Take care, everyone!
Yesterday my husband and I went Christmas shopping and I didn't call her to tell her...I was so proud of myself for not calling. I normally call every Saturday to remind her I will be up on Sunday. I did not call and it was so freeing. Well... She called me around 1 pm and I didn't answer. She left a message on accident--not hanging up when the message came on. She was talking to someone and I realized it was my aunt. She had gone for a visit. Then I was nervous to call her back because I felt like she was setting us up for failure. I figured she was going to ask questions trying to "catch" us in something. Just realize I think this way, because this is how my mom works now and how she worked before.--that part of her hasn't changed one bit. MANIPULATION
After about an hour, I decided to get it over with. I called her and she had a question for me, but it was about where I had put something. I truly believe though she was calling to see where I was. I am even more proud of myself because I called her today, Sunday, and told her I was NOT coming up today. YAY for me!!! I did tell her I would come either Tuesday or Wednesday. SILENCE! Then she said, "ok" and hung up. She no longer says bye. Weird. But that's okay with me. A quick click and done. I am keeping my eyes on Jesus and not her anger. It is helping me so much. It is not my fault she is angry, she is angry with me, but I didn't intentionally cause the anger--therefore, making it her issue. Such a breakthrough for me to realize that it is NOT my fault. Do I do things that make her angry? I am sure I do, but I am not being a brat of a daughter ignoring my mom. I am being true to myself which in turn makes her upset and a reason to find more manipulation. She likes to make me feel like I am wrong by putting myself and my family first. In her eyes she is supposed to come first. SMH!! She didn't put her parents first, she made sure we were taken care of first. I haven't been around a more selfish person.
I am just glad I have the day off. I will dread the next visit, because she will store this in her brain for ammunition for when I do come.
Enjoy your Sunday!!