Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I am only seeing it all now. We must unlearn all the harmful patterns they taught us ; all those things that hurt us that we never questioned as children. They have been mentally ill all our lives: even though our mothers did other remarkable, or normal looking things.
Now we have to keep finding our own boundaries, dodge the abusive one-sided conversations or monologues, not be tempted to retaliate, be defensive, and often it always feels like a no-win situation, no matter what I do say, don't say, go or don't go, no matter what I do. This alone really burns me out an makes me rage with dispair. If this wasn't enough my need to grieve, love, feel compassion, and so on are at another end of the spectrum of the reality of dealing with her.
I keep trying and hoping it won't be so bad. At best, I can just barely tolerate her. Some moments are almost pleasant but any true closeness is out of the question .She'll set me up for her next target practice. I don't think she is even vaguely aware of what she says, what she is doing, and how she is effecting me. Same with your Mom.
Both mothers have never introspected on their OWN behaviors nor taken responsibility for their bullying, and abusive behaviors. My mother has never owned up to her cheating on my Dad all through their marriage, nor for beating on us. I still see her through my childhood eyes at times: the scary red face, the shouting, taunting, and so on. She could have been arrested for what she did to my sister. I don't know how we didn't have concussions or more bruises.
I try over and over again to smile, be brave, ask God for the right attitude, meditate, and do whatever I can to take care of myself when I am not in her presence. It's the right thing to do to be within reach to help her but it's the right thing to do to set time limits and use language that constantly reminds her that I have needs that are as important as hers. I don't care anymore how she reacts to that.
When it comes to holidays, it is sad that our mothers couldn't get together with all the family. My mom can't stand anyone so she never wanted to be around my husbands family. She thinks they are uppity to do people. They are well known in the community but she sees that as a threat. They may be better than her. Crazy!! Just Crazy!! I have always wanted to have Thanksgiving or Christmas dinner at my house and invite everyone from my family to his family...but NO, as long as she is living, I will not be able to do that. A couple years ago when she was really bad ill, I didn't fix dinner thinking she may come over and of course she wouldn't, so I had some friends over for Christmas dinner and it was so nice.
I want you to know that I feel like I am reading about my own mom and our relationship when I read all your posts. My mom apologized one time to me and that is when the dementia first started and she thought she was dying...she sat me down and told me she was sorry for the way she treated me. I thought it was sincere and heartfelt. Now, I know it was only because she was worried about her own soul at that very moment. She is back to her old self and no apologies for her.
We were definitely enmeshed though. We would spend a lot of time together, shopping, going to museums--every time I confided in her I regretted it, but continued to do so until I was probably 30 years old. She was always disappointed in me and angry, she embarassed me with her obliviousness and know it all attitude. As I got more "adult" and independent, she got bitchier, and would make snide comments and insults when I visited. She made it impossible to blend my husband's family at holidays (no one could stand her rudeness and condescension). When she and my father moved away, she didn't adjust, even though it was she who wanted to move there. When my father died, she got even worse, felt very sorry for herself, and then her dementia followed.
We were never on any kind of trajectory of forgiveness and understanding, which is sad. Whenever I have to deal with her, it's always irritating, frustrating, confusing, and it messes with my head.
I used to love my Mom so much. Even though she's always had emotional mental issues and was verbally and physically abuse in my youth, she and I had a working mother-daughter relationship where we were like best friends. I think that is what hurts the most. That person is already dead.
Just remember the boundaries you have set for yourself and know how important you are and surround yourself with those who make you feel good about yourself. Positive energy ONLY!!! I realize we cannot be happy all the time, but we don't have to be miserable for them. One day, hopefully soon, we will reap the benefits of being the "good daughter". Even though they will never acknowledge it, we know it. Losing ourselves through this process is a NO NO. We MUST keep true to who we really are.
Thanks for sharing. I really admire that you set rules and that you are using those to help you and your mom have a good experience.
God, she is SO looney!!!k But since no one knows her, and she is great at looking charming and being phoney, that everyone thinks she is "special".
While her friend told he her life story, totally unprompted and unaware of my queen mother fuming for lack of attention, I finally said, "I didn't have lunch, I am faint from hunger, I need to go back home to get back to work. Why don't you have a nice visit with my mother." They were both totally unaware of what's going on. Her friend went on and on about herself, while my mother inserted put downs about me and sat trying to get her friend to face and talk to HER.
I stood up from the couch, "I am sorry but I must go. I need to get some food now."
Mom jumped up and had this mean swaying motion as she walked to her refrigerator. "Well, I am sure it's not good enough for you, but you can have this."
She handed me some leftovers from a salad bar. It wasn't until after I ate it that I realized I probably consumed her germs: she has a UTI infection! Oh damn!
I was so hungry I ate it but it was only barely a handful of food.
This is in contrast to me making her a turkey with several sides, and dessert, all from scratch. I didn't even want to eat there. I should have just gave her the supplement, got the cash I spent and left. UGH, well next time.
I go away from her place, cursing and saying, "I HATE HER!" over and over. It's so disturbing. I am NOT like this as a person. She is utterly toxic to me. There's no way to win in this situation. Only glad she can still live on her own. But her behavior drives me to apathy and hatred. It's awful! Even my seeing a counselor doesn't make this scene from repeating over and over. I often wish I would never see her again.
My mother's neurologist is a very helpful man. Since I had to get off the phone during her exam on Monday, I called back and asked to schedule a 5 minute call with him to get an update. He called me around 7:00 p.m. on Tuesday, and spent probably 10-15 minutes explaining how everything went. I filled in a few gaps too for him.
I had one moment of real smug satisfaction (with a tinge of guilt, of course). He related something my mother asked him, which, if he knew her as long as I have, he would have realized that it was a setup for her idea of a clever joke. He answered her question, and she delivered her punchline. I would never describe my mother as witty or clever -- sarcastic? Yes. But a good sense of humor is something she's never had. So, her "joke" only served to confirm his suspicions that her "thought processes are very confused," as he told me.
I had a reflex reaction to explain immediately what my mother meant. I felt badly for her, that she was misunderstood, that her joke fell flat, and that she only made her case worse for herself. BUT, the doctor had been so generous with his time already, and I decided that it wasn't particularly useful to harp on this one incident, so I didn't say anything. And THEN, I remembered all the times when I felt compelled to joke around in order to lighten up the mood in our family, and my mother would either roll her eyes, or look through me like I was invisible, or ignore me as if she couldn't hear me. At that moment, the smugness set in ;).
Hey, I'm no saint...
I had thought about calling her and asking her how she feels, but I have come to the conclusion she is just pouting. So, therefore, I am going to enjoy my night and let her sulk.
Enjoy your night too!
I was flooded this morning with a lot of "mom stuff", which I tried to do while at my "real" job.
Her appointment with her second neurologist was this morning, and I had spent some time over the last few weeks drafting a letter for him, to give him all the background. I faxed it over this morning. A few minutes before my boss was scheduled to come in, I got a phone call from the doctor, who wanted to conference me in to the appointment. I did not expect this, but didn't think it was a bad thing (it's just, I'm at work, I can't just switch gears, find some privacy, and so on--but I managed to duck into a conference room). I had to ask him to take me off of the speaker phone so that my mother wouldn't hear my comments. Anyway, I filled him in as best I could, and got to hear my mother a little bit. She only went to the appointment because she had no idea what it was for, which was good. He asked her a few questions, which she was basically unable to answer, but she's never said "I don't know" in her entire life, so I listened to her fudging her answers.
I'm not sure if she comprehended that I was on the call, or that it was ME, her daughter, speaking. She didn't say hello or anything -- and neither did I for that matter. It was strictly business.
I appreciated the doctor being as thorough as he could be, although I had answered a few of his questions already in my letter, so it seemed that he hadn't read it very carefully. Ehh, well, everyone's busy. Guess what? The world does NOT revolve around my mother, except in her own mind.
Thanksgiving five years ago was the last time I saw my father. He was very ill and died a week later. I've been reflecting on my parents' behaviors, and how I picked up so many of them without knowing it until very recently. Have any of you been on the website OutOfTheFog? I've been reading the forum posts, and my goodness, I can't believe how similar so many of the stories are.
Anyway, hopefully I haven't been ruminating too much. It seems like there are still so many moments of realization, it's almost too much sometimes.
I spoke with my mom today about going to her sister's house tomorrow for dinner. She does not want to go and I am absolutely fine with that. A peaceful dinner without the complaining monster. I was willing to do it for Him, but I am thankful to Him for keeping her home so I can enjoy the day. While on the phone with her she proceeded to tell me why she couldn't go...different reasons kept coming out of her mouth. I then said, "let me know if you change your mind" oh boy here it came, "change my mind?!!" How am I supposed to change my mind. I have told you I can't go and you keep asking... so, then I said, "ok, mom, I won't ask anymore--this was in a kind voice. She then said, "Fine!! Do what you want"---then hung up the phone. Ha Ha! I stood for a minute and looked at the phone and then all I could do was laugh. I laughed and thought, she contradicts herself all the time. Didn't want me to ask, but yet gets mad when I quit asking. Whew, no wonder I feel like I have lost my mind sometimes.
CM-Doing the right thing sometimes is hard. If I gave back two fold, my mother would be much more miserable than she is now. She thinks I am hateful to her now, but she really has no idea what it could really be like. We are the ones that have to look back on this one day. I do not want ghost of Christmas past visiting me. Sometimes I think that is what is happening to our mothers. Maybe the skeletons are just too much for them to bare.
Have a great weekend!!!
I got that wince-making "it's all about giving back" treacle from a florist today - rare outing with mother, getting her hair done and she wanted to buy a gift for my SIL who's looking after her (gulp) next week. Not wanting to spoil the moment, but couldn't help myself pointing out that my mother packed us all off to boarding school from age 8 and if I were giving back I'd have turfed her to residential care six years ago. So no, it is not about giving back, it's about doing your best. Grump. The flowers are pretty though! - she chose a nice arrangement, minimal input from me.
After dinner, we watched "The Judge". Did any of you see this movie? Robert Duvall and Robert Downey Jr. It was good, but.... Lol, it personally made me rather sad, especially watching it on a traditional family-centered holiday. The father/son relationship is pretty awful, then, since it's a movie (haha), there is redemption, peace, and love. Sorry if I just blew the whole story! Anyway, I am sadly, too cynical to appreciate that. I compared my situation to the movie story (never a good idea), and was left feeling annoyed, and tempted to ruin the moment for everyone else by saying "Oh, brother!!" Hubby and friend really liked the movie, were very touched by the story, and I was just...feeling nothing, just knowing that I will never have that with my mother, and what a shame.
I woke up today feeling more lighthearted, with a sense that I overcame a slight emotional hurdle, and that felt good.
No shopping for me this weekend! Just enjoying the long weekend :). Hope you all are too!
I do wonder what she thinks, and then tell myself I'm wasting energy thinking about it. She probably feels sorry for herself, turning what for anyone else would be a thoughtful gesture into something negative and insulting instead. Nothing I can do about that. Just have to devote my energy and time to more worthwhile things.
Next time send her a rope of garlic bulbs.
I feel that awkward combination of feeling a little more liberated, and at the same time, rejected again. It does reinforce my decision to stay away though. When doubts rise up, she never fails to squelch them back down again.
Deep breath -- Have a wonderful Thanksgiving everyone! Enjoy the good smells in the kitchen, and the company of warm and loving family and friends.
As most of you know, I have asked the question over and over "why do I keep doing this?" Well, I got my answer on Sunday at church. I have prayed and prayed through this "why?" process. The sermon was about Eutychus when he sat by the window and fell out while Paul was preaching. The minister went on about how he never sat by the window anymore, he sat with Paul. He asked us to think about the window we keep going back to. Of course, my mom came to my mind immediately. He stated to stop going to the window and sit with our Saviour. Then while singing a hymn I was reminded I do it all in His honor. I realized that I do not do it for her and I do not do it for me, (because you know I do not want to) I do it for Him. I do also realize that He does not want me to be miserable and abused. Through this realization, I also remember that I can still walk out at anytime and I do not have to take what she throws at me. But I will tell you that I feel so much better realizing the "why"!!--for me that is. We all do things for different reasons in our lives. We all have different faiths and different spiritual ways that get us through each day. I also believe that each of us are given a different strength from a higher power. My strength that I have been praying for is not the strength that I am given. I still feel weak when it comes to her, but I feel very strong when it comes to Him. May each of you find your strength from your own higher power and go with it.
Last share of the day: I was also reminded today while talking with a collegue, that with every positive there is a negative and vice versa. There is a begining and an end, alpha/omega, ying/yang--you get the point.... So for that, taking care of our parents is a positive thing, but there must be negatives to go along with it. Let's not let the negatives over power our positives in our lives. Let us see the rainbow in the rain. The beautiful flowers we see in the spring/summer would not survive without the rain.--positive/negative. From this day forth, I am going to "try" to see the positives and when she throws ourt her negatives, I am going to do my best to sheild them from my thoughts. Have a great day and have a Happy Thanksgiving!!!
Yes, my family too -- we never touch, never ever said "I love you", none of that nonsense! But I can do it easily with others. I'm sure we've looked so strange to others over the years, and we were.
I know exactly what you mean about the signing off with love awkwardness. Not with my mother, but I have this with all of my siblings to one extent or another. It's very irritating, actually. I send messages to friends and cousins quite easily with lots of love and kisses, but when it comes to emails and texts to my brothers and sister - hours of dithering putting an x, deleting it again, deciding I sound stroppy, putting in the x, thinking it looks a bit bare, adding xxx, calling myself a massive hypocrite ("what are you doing???"), accidentally deleting the entire text, cursing loudly and then calling them because it's quicker and there are no affectionate conventions to worry about. Phewf.
I have no idea where these emotional walls come from. Another cringe moment is when we're saying goodbye in person. I kiss my brother in law, and my brother's girlfriend, no problem. But we, as in "We" the family, don't touch, ever. So we end up with this odd quadrille where we appear to like our in laws but can't stand one another. Why? How did we get to be most comfortable with a default position of mild hostility? Because clearly we're all normal people who are perfectly capable of basic social skills. What brings us out in a cold sweat at the thought of kissing our siblings?
I think it's very sad. I'd hate my children to be so uneasy with one another. But when I think about trying to change it… can't. Too hard.
CM, yes, it does reflect her attitude, and my unhappiness and anxiety about her attitude. I am lucky and have worked hard to not be in the position where I'm beholden to her for financial reasons. Her attitude is a sad cycle -- where, even though she's narcissistic and believes she's superior to others, conversely, she also believes that there's no reason for a relationship if some practical purpose isn't being served. With me (probably because I'm the child, she's the parent), she thinks it's money related. And I've mentioned before how everything with her feels like a transaction. You can't just DO something with no ulterior motive, or expectation of something.
Anyway, I ordered a nice bouquet of flowers to be delivered to her next Tuesday, and signed "Love, D and A...." A few months ago, when I had new shoes delivered to her, I couldn't manage to add the word "love", but now I can (after thinking about it in a Buddhist 'metta' kind of way--you know, loving everyone/everything because we're all connected, so how could you not?). It doesn't actually reflect particularly warm feelings for her though, I must say.
I will wait and see if she acknowledges them with a phone call. I've seen evidence within the last week that she is still quite capable of taking the initiative and making a phone call if she wants/needs to (she managed to call a plumber last week and handle that--I double checked by calling the plumber myself after I saw the check clear online). So, if I receive a phone call, that would great, but I'm not betting on it. And if not -- well, then I'm thinking that reimbursing myself for the flowers wouldn't be the worst thing.
I am not a Freudian, but I'm sure my psychotherapist friend would call that dream a classic. I think it almost certainly reflects your anxiety about your mother's attitude rather than your innermost secret desire to pinch her money, don't you?
How nice to be able to heave a sigh of relief that your mother's getting on well with this carer. Umm. Not to cast a shadow, but don't get too comfortable about it, will you? - I hope not, but she might be biding her time…
I scheduled a short phone update with my mother's home care person, and she called me this morning after finishing up with my mother. Maybe I'm naturally anxious, and maybe it's because it's mom-related, but I prepared for the 10-minute casual phone conversation several days in advance, writing out my questions (in yes/no, check/not check format -- because I'm anal that way, lol), making mental notes to myself, and so on. Last night, I had trouble sleeping, and had my usual stress-themed dreams (this one was about how I completely accidentally arrived home with my mother's purse, and she told me how it was an example of what I "really cared about", which is her money of course). I woke up with feelings of self doubt, wondering sadly if she was right? Because otherwise, why would I dream that??? Ugh. My mind is my own worst enemy sometimes.
Anyway, her care person called me right on time, answered all my questions, and left me feeling reassured and confident that my mother is doing as well as can be expected -- maybe even a little better in some ways.
This is the part where I felt smug -- the care person mentioned how she solved my mother's problem of her keys going missing, and described her solution, which was a very good one. What is such a strange coincidence, because the nosy neighbor had emailed me maybe a month or more ago, describing the exact same scenario, and explained to me how SHE solved the problem, and how great it was working out. I couldn't keep such juicy news to myself, so I mentioned it to the care person (I had asked her in the course of the phone call if she had much interaction with this neighbor, and was happy to hear that she had only spoken to her twice in the 5 months she's been working for my mother). She laughed and said, "Ohhh, okay!!!!" I felt so vindicated, even though it was such a little thing.
And, I asked about my mother's general mood, and she said she's pretty cheerful, and getting to be warmer, more conversational, and so on. I was truly happy to hear that, but I did feel a little down, knowing that she is just not that way with me. I related the whole conversation to my husband, and he said "well, isn't she usually pretty cheerful?" I said "Not when it's just me there. When it's just me, she's down in the dumps."
So, the phone call was a success on may fronts. My mother is doing well, it sounds like the leve of care she's getting is appropriate for now, and I have confidence in her home care person. I don't think I can ask for anything more! Christmas has come early :)
My visit today was short and sweet.--sweet?, maybe not, but I was in and out in 30 min. She started crying as usual but about her mom and dad. Her mom died this time last year and her dad has been gone over 20 years. Now she is feeling remorse for all the meanness she put forth on her mom too. She told me she wished she hadn't sold her house, she would have taken her mom home with her and taken care of her--NO, she wouldn't either, because she was retired for 5 years and never once offered to bring her home with her. That is just a guilt tactic toward me. She said I had no idea what it was like to not have a mom and dad. I told her no, but I was very thankful I had both still with me...she just looked at me, because she hates it when I am thankful for my dad. The next issue is to tell her about my dad and this elephant next door.
Thanksgiving?!? What will I do with my mom? Today, I have no idea. I did offer that she could go with us what ever we chose to do. She just snarled her nose and said she didn't feel like it--that is a week away and she already doesn't feel like it. They are having dinner on Tuesday at the AL so I assume we will go there with her. I know it is terrible, but I would rather not. I guess I feel like that is the "right" thing to do as a daughter.--well, her daughter. She definitely has a way like I have said, to make you feel that way. How does one do that? I cannot seem to break the spell.
One more week, then three more weeks. The first of the year is around the corner. We can do this!!