Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Emjo: Glad the visit went well and as hard as it may be, the non recognition may be a blessing for you. There will be less and less worry about things that way. I still cannot believe your mom is 102..wow. I don't think I can make it with my mom if she lives that long. She is soon to turn 69 that will be 33 more years. Holy good golly, I don't even want to think of that. I will say her grandmother and great grandmother lived up until their 100's. It could happen. I KNOW for a fact I will walk away before then. The difference with them, though, was they still had good minds. Her mother lived to 90, but her dad died at 67 with cancer. All her aunts and uncles are still living in their 90's...it is looking scary from here. ha ha. Surely God will give me the strength I need by then to walk away and let someone else deal with her sassy a#$ by then.
My mom too will not recognize some things I bring her that are her own. She will say well, if that is mine it is old and I don't want it. She is starting to remember some things she had and is wanting me to go to storage to retrieve them. Finding them will be the key.
When I go home from work and my dad is next door working on the home he got, I get so angry--I don't even know why. Maybe because I feel trapped once again, I feel betrayed once again, and/or maybe it is my mom in my head looking through my eyes being mad and therefore, I am upset. Either way, I need to find a way to get through this. JUst when I thought things were looking up and I was getting more courage each day dealing with her, now this. Maybe I will put my house up for sale and move. That would probably be the best. I love where I live, but now, I dread going home. Home was my refuge, my safe haven, my resting place--now it is also causing dread. HELP!! I feel like going to the top of a mountain and screaming until I lose my voice. I am back to point A only on a different board.
jewel - sorry you are not feeling well. I expect it just hit you - dad moving next door??? Crazy!!! It really puts you in the middle, but you have to resist that. His moving there is his choice. Your mother getting upset about it is her choice. I know it is hard. You will have to practice what you have learned here. Once when my mother was going on and on about someone I had already heard too much about, I told her that I had heard it all and I did not want to hear about this person any more as it ruined our visits. She actually hardly mentioned her again and it used to be a regular rant.
Yesterday's meeting and visit went well. On the drug, mother is about as good as she gets. Gary said he saw no spark of recognition towards him and that was a first. I don't know that she recognized me till I talked to her. I went through her clothes with her and took some for alterations and some she did not want. I will try them on her again later. She did not recognize the coat she had asked me to bring her, but accepted that it was the one she had asked me for. I can see the decline in small ways - the dementia is progressing slowly, but we had a good chat about family.
Back home tomorrow and will be happy to be there. Although it all went well, I still find it is draining.
Once again, thanks for reading and know that you are not alone with all the daily stresses, there is someone else out there living a stressful day, week, month, life...today--it is me sharing it with you!
So, my mother has cancelled her neurologist appointment for the second time. I was hoping she wouldn't remember that he had been the one who helped me with getting her drivers license revoked. Not that she ever had any proof, but she suspected correctly that it was him. Now, I'm not sure if she even remembers why she doesn't trust him, but obviously, she wants nothing to do with him.
I won't push it anymore -- if she refuses, then so be it. It's just that I was hoping that he would be willing to sign a document stating that she's incapacitated, so that I could bring it to my mother's banker. He said that having that document would really help protect her accounts. Now, I don't know if he'll be willing to sign it, since he won't be able to examine her. Anyway, I asked that he call me when he has 5 minutes, so we'll see...
Hope everyone's week is going well. Fight the good fight :)
jewel - not the move yet - pre-move arrangements. This will be my mother's 4th residence in the last 5 years, not counting 10 months in hospital - and I know she will want to move again after a few months in her new place. No way, Jose', unless they throw her out. Then, after moving her, we have to dispose of the extra belongings she bought for her last place. We got rid of much of her stuff when she moved from a 2 bedroom apt into a one room unit Alf. Then six months later she moved into a 2 bedroom unit in an ALF and refurnished with new stuff. I hadn't gotten rid of all the old stuff yet. In May, we emptied the 2 bedroom ALF unit into storage while she stayed in hospital. Now we have to set her up in a one room unit again, and dispose of what is left. Certainly she will not be moving into another 2 bedroom unit again, if anything, to a nursing home. There is a lot to dispose of and G has suggested an auction. He has done those, so we will include the stuff of hers I still have at home (truck it back down here) and, hopefully, get rid of it all. I look forward to that being done and will rest easier once it is. My house has way too much in it and I long for some open spaces. Oh my, what we do for them and with no appreciation which would help. She did nothing for her parents, and once my father died when she was about 65, spent her time doing exactly what she wanted and traveled a lot. I wish!
Jessie - I think I waited too long with my dog - "keeping them alive is less about them than it is about me keeping them alive" makes total sense to me. I think the vet would have put him down sooner. But on the other hand, I find the time comes when you "know it has to be done and that decision is made on a mixture of their condition and your thoughts/feelings. With Toonie, when the vet said he would be in distress within hours I wanted to spare him that so we proceeded. Never easy, no matter the circumstances.
loo - I like the matchmaker image.:)
better get moving - passed breakfast by sleeping in so need lunch and to compose myself for the meeting - write down questions more than anything.
Have a good day and do something good for you.
But I hope she was glad to be breathing freely again, and not thinking "you bastards!" It's not easy. Actually, I don't think it *should* be easy - after all, we owe them some hard deliberation before we decide for them, don't we?
Looloo are you a fan of the "Mog" books? Judith Kerr used exactly that image to try explaining things gently to children.
There comes a day when we realize that keeping our pets alive is torture for them and for ourselves watching and caring for them. I wouldn't be surprised if your cat was thinking "Thank you!" when you helped him to the bridge. I have a feeling you didn't make the decision lightly. And I have the feeling your decision was the right one.
I like to think of our pets as being free from pain and in fresh bodies running and playing on the other side of the bridge.
Bravo!! We all are doing better, I can see. It may not seem like it at times, but I can hear in your writings that we have all stepped up and letting roll off our shoulders a little easier. It will take many more screams out loud before we are able to say "I am done"! We may never be done and that is okay. Walking away from a bitter, hateful, ungrateful person is not easy...why is that? If I had the answer I would share the wealth. Ha! It is that invisible spell we all possess.
The famous line: I will be dead by then. I have heard that for 3 years now. I always give a chuckle and say "Oh, no you won't, you have made it this far" then she will reply, "well, not this time". I too hear, "what do you have to do or better yet, what did you do all day yesterday?"--This is insinuating that I did nothing and should have been with her. Even if I did nothing, that is my business. Everyone needs a day of rest.
Emjo good luck with moving, I have moved mine 3 times and she would love to move again, but until I absolutely have to, she isn't going anywhere. CM: as hard as it is to move past a decision that we look back on and wish we had made a different one, just remember: The decision you made, was the best decision for you at that time. The kitty would still be suffering if you had made any other decision. This was all put on you unfortunately. Mom has moved on and you are left to grieve for both of you. You made the right decision regardless and no one wants to ever think that is a right decision--make any sense? The kitty is at rest and hopefully soon, your mind can rest too.
Me - [thinks] "I've heard that one before…"
Juddha and Emjo, I marvel at your patience. Do you never, really never, just think "oh eff off, mother..!"?
Mind you, I'm a fine one to talk, still guilting myself over that poor little cat. Was it really that urgent to have her euthanised, or was I in part punishing mother for showing no concern over her pet's obvious physical problems? - something which I know is a very deep, sore point for all of us, her children. Now I know how ridiculous that sounds, and not only did I have genuine reasons but those reasons were backed up by veterinary support above and beyond the call of professional duty, not to mention further thanks to so many of you who sent me comforting messages. But still… Did it have to be that day? Was there also a spark of anger that made me act then and there?
Well, what if there was - it doesn't alter anything, and it doesn't make the decision wrong, either. But tellingly, I'm still worrying away about this while dearest mama has already put it all behind her. Don't worry, mother, I'll deal with it...
jewel - I hope you enjoy all the time away from your mum. Years ago I found myself taking my work problems home to three little children and their dad. As a result, I was not ready to enjoy my family when I got home. I decided that once I touched my car to drive home, I would stop thinking about work and start thinking about my family and looking forward to being with them. It worked.
judda - you did well and are writing about having good times by yourself or with friends - getting some enjoyment out of life and not letting your mum's nastiness throw you too much. Great.
Jessie - I wish you could have more good things on your life. It seems to be a very grey existence peppered with spots of black which is somewhat soul destroying.
Had to laugh on the "I'll be dead by then." Mother uses that one too.
Mother - "I need my sweater NOW!"
Me - "Mother, I will get it as soon as I can."
Mother - "I may be dead by then."
Can you hear the violins playing?
I haven't had the "What do you have to do?" verbally, but all her behaviours show she thinks like that. When I was working, she totally ignored that I had to go to work and would ask/expect me to jump any time she wanted.
I am getting to a point that I truly don't care - not that I don't care about doing the POA job as best I can, but I am caring less and less about her manipulations and tantrums. I need to let it be her problem and not mine. It takes work to get there, but is necessary.
Meeting with hospital staff tomorrow about moving mother to her new place. Have to buy a new mattress for her (it us policy due to concerns about bed bugs) and arrange to have to delivered when they give us notice.
((((hugs))))) to all -
Looloo: That is exactly what life would be like. Peaceful, restful, and less stress. I am counting on the day I can live like that again. I spent the most of the morning taking care of doctors appointments so we can get more test done for my mom. It literally took 3 hours today. I didn't get much anything else done, but I will tell you, I haven't been as stressed as last week. My daughter told me today before she left back for college.--She told me to stop letting my visit with my mom on one day determine how my week was going to go.--wow, I do that! I really do. If I have a bad visit (which is almost every Sunday), then the first few days of the week are ruined for me. My mind goes full speed and I cannot calm it down. Every thing she said runs over and over in my head. I feel like she lives in there.--in my head. I look at things as though it is through her eyes. I must stop this. I must see things through my own eyes again. I am determined to let Sunday stay in Sunday and see Monday as a new day for ME. I am with you, let's break free from their circle and live our life peaceful and restful. They chose their life, now let's choose ours.
Have a great week!!--I plan to.
I had a great time last week in Maine working for a new client making him a video.
I meditated with some friends, walked in nature, the weather was lovely, the fall leaves are incredible. What a nice break! But now I am home.
What time is it? Why it's Momma Trauma Drama Queen time! Geez, she gives me the I need an eye doctor appointment demand in as nice a way as she can put it. She forgot that last week she asked me to find her a new eye doctor close to where she lives. I did that before I left. I emailed her where she could go and it's only a mile or so away from her new home and she can get a senior shuttle bus there, no problem. I told her that I did that before I left.
Mom: I REALLY need to see an eye doctor! (implying death if it doesn't happen this minute and only I can deliver her.)
me: Yes. I sent you the information of a good one only a mile from you and you can take the bus there very easily.
Mom: How much more out of the way is it for you to take me to the one I went to before?
me: Well, the one you went to is in Hudson. That means I'd have to travel about a half hour to your place, take you back to Hudson, wait for you, take you back to Sudbury, and then drive myself back to Hudson, taking time off from work. OR you take the senior bus and get there whenever you wish and it's only a mile or so away.
Mom: WELL! you have NOTHING to do all day! No kids, no husband, why can't you take me?
me: I am working.
Mom: Oh, what are you like a doctor or something? You think you're so important!
me: Yes, I am working and we'd have to wait to make an appointment that is good for me, the doctor, and you...
Mom: (interrupting and getting more and more agitated and sarcastic) Well, I am GLAD we had this important conversation. Now I know how much I mean to you!
me: You asked a question. I answered it. You can think about it anyway you want to.
Mom: I can't talk to you. YOU get me so upset!
she hangs up.
Ha. Welcome back, daughter.
Yucky, yuck.
Now back to editing: my peace therapy, and later meditation.
Oh, one last chuckle: I wrote this account to my friend. We were sharing inspiration from someone in our meditation group, so the title of our email subject was: Meeting Daily Problems Develops Inner Strength!
Love,
Judy
I spent a good chunk of time trying to get my head around difficult, overbearing people who, at first, seem to want nothing more than to help -- but who become impossible to deal with. I found a few articles on "pathological altruism" and am just so satisfied that someone gave it a name! According to what I've read, it's yet another co-dependent behavior. No surprise.
Argh, I don't want to be part of my mother's circle anymore. I'm tired of these exhausting interactions. I'm starting to feel downright ridiculous, continuing to engage. Guess that's a good thing.
Anyway, I'll put on my invisibility cloak, say all the right mantras, remember to breathe, and keep the boundaries up. Eventually, this will pass, and I'll have learned some very valuable skills.
Have a peaceful week everyone :)
-----
92-year-old, petite, well-poised and proud man, who is fully dressed each morning by eight o'clock, with his hair fashionably combed and shaved perfectly, even though he is legally blind, moved to a nursing home today.
His wife of 70 years recently passed away, making the move necessary. After many hours of waiting patiently in the lobby of the nursing home, he smiled sweetly when told his room was ready.
As he maneuvered his walker to the elevator, I provided a visual description of his tiny room, including the eyelet sheets that had been hung on his window.
I love it,' he stated with the enthusiasm of an eight-year-old having just been presented with a new puppy.
Mr. Jones, you haven't seen the room; just wait..'
'That doesn't have anything to do with it,' he replied.
Happiness is something you decide on ahead of time.
Whether I like my room or not doesn't depend on how the furniture is arranged .. it's how I arrange my mind. I already decided to love it.
'It's a decision I make every morning when I wake up. I have a choice;
I can spend the day in bed recounting the difficulty I have with the parts of my body that no longer work, or get out of bed and be thankful for the ones that do.
Each day is a gift, and as long as my eyes open, I'll focus on the new day and all the happy memories I've stored away.. Just for this time in my life..
The peace I feel at this very moment, I pray for everyday. How nice it would feel to have this peace more often. The stress hormone doesn't exist in this body today and I know how much healthier I would be without it. Hallelujah!!
May the Lord bless you and keep you. Hope everyone has had a stress free weekend as well.
Thanks for reading.
Emjo, hope your insurance issue is all squared away. Many times, it seems that the information in the letter is not the most updated, so you probably DID get it taken care of over the phone. Still, one can never rest until it's all resolved.
Kaz, hope you're getting used to a little calmness in your life! It can feel downright weird at first! And like Emjo said, it's never fun waiting for the other shoe to fall.
Anyway, hope everyone has a nice weekend. We're getting an incredible heat wave again, and I'll be so glad once fall weather decides to stick around!
Emjo- I hope you get everything worked out with the insurance. No matter what the dealing is, when you have to call to deal with things, it can take hours off your day It is hard enough dealing with things of our own, then to deal with someone else's , especially those who don't appreciate it, makes it worse.
Have a great weekend and SMILE!!
Kaz - glad you got your cat and the rest of your stuff. Good the social worker is involved. Hope you are recovering somewhat.
loo - it seems like there is continual pressure from one place or another -and if not then we wait for the other shoe to fall which it inevitably does - stress one way or another. Sorry you are not feeling well.
jewel - lies, deceptions, good that the staff have her number. If people listen to mother, they think I do nothing for her and ignore her. Most people find out the truth - all except my sis who prefers to believe mother. I would rather not have a sib, frankly.
judda - as cm says - forgive but that does not mean trusting her again. One definition of forgiveness is "giving up my right to hurt you for hurting me". Doesn't mean we don't protect ourselves.
I know about the seemingly endless phone calls taking care of business. Had a doozie today. Got a letter from mother's insurance company saying they were cancelling her insurance. Thought I had straightened it out last week. Called the toll free number - all lines down - got directed to voice mail which gave me the message that it was full, and sweetly said "Goodbye". Called the number I called last week - it was down and gave me the toll free number. Looked in the internet and found another number, called it, got a live body, eventually, who said I had sorted it out last week. I will check again before the end of this month as it is due for renewal then. I don't trust them.
Hopefully next week's meeting will go well and we will move mother soon and she will stay put for a while.
Take care all.
I like the nanny cam idea. I have had social workers involved before and they turned on me...it put me over the edge. This is when she first went way down hill last summer and I called the doctor and they called hospice. Social workers always come too with hospice. WEll, I thought calvary was coming and they almost threw me under the bus. I have told this story once, but it was a very tramitic experience for me. The social workers called the doctor and told them the same story I told about my mom not eating and wouldn't get out of bed, blah blah, but they told it in a way that I was doing this to her. That my mom was a fragile little old lady and I could make her eat and get up. WHAT!!??!! If the doctor and I didn't already have a relationship about my mom, it could have turned very bad. The doctor couldn't believe that they were in the home for 5 minutes and made their assumptions about me and what was going on. We asked for new nurses and social workers and viola--they saw a different picture. You have to be really careful who comes in the home and checks on things. Everyone makes their own opinion before hearing the whole story. That is what really worries me about my mom's lies, but now that she is in AL the workers and the director knows and it keeps it all good. Being in a public care facility is definitely what I recommend if it is possible.
LooLoo and jeweltone, if you get the social workers involved, they are independent witnesses to the abuse you take and the mess she makes. A nanny cam is a good idea too. Pictures and sound and HD color protect you from lies.
My mother's frantic, "almost in tears" (as she put it to me yesterday) neighbor has been emailing me all week, and I'm doing my absolute best to handle things, but being sick has made it extra difficult and stressful. It doesn't help one bit to get her constant comments such as "This can't go ON!!!" "What is GOING ON???" And so on. My adrenaline rushes every time I see her name, and I'm exhausted having to deal with her. Maybe, someday, I'll get things together in some way that she doesn't have to be involved anymore (please, God). I fantasize about no longer needing to be in contact with HER anymore either, not just my mother, lol. I daydream about FINALLY moving my mother into AL or memory care, or WHEREVER! And then NEVER having to speak to her neighbor again.
Anyway, I have gotten more stuff done for my mother today. About 3 hours' worth of time spent emailing, phoning, faxing, filing, bill-paying, gathering info, UPSing her magazines, etc., etc. In between my 'real job', of course....
Oh--I also really let a customer service rep have it today, and now I feel kind of guilty about that. I'm usually so good about not taking my frustration, fatigue, anger out on people. And to do it anonymously, to people just doing their jobs, makes it worse. Anyway...I just need a little time-out, I guess.
I dread visits, phone calls, anything to do with her. She stresses me out to no end with all her issues of self absorbed nonsense. LIke I said, I do agree with her to a point--but would never tell her because she expect more from me with it and it wouldn't be worth the more stress it would put me under. I do not want to be isolated from family just for her. She would love that--just me and her under a rock knowing we shut out the rest of the family and the world...how sick is that? VERY!! But truly, that is what she really wants--until she got it, then she would find something to complain about under the rock. If you have ever read the book, IF You Give a Mouse a Cookie, that is my mom. Give her and inch and she takes more than a mile.
Kaazzaa--I am glad things are smoothing out for you. When we hit rock bottom the only place to go is up. It may be a slow and hard climb, but when you get to the top, it will all be worth it. Your peace of mind is worth it. I know you still worry about your mom, that is normal with all of us. If we didn't care and didn't worry, we wouldn't be on here letting it all out. I just wish for each of us, it didn't consume our daily lives. I am also happy your cat is settling in too.
Hurray looloo: I feel the same way, round and round we go. I cannot reason with my mom either. That is it, she just cannot see what is really happening in front of her. It is only what SHE thinks is happening. She truly believes it. Even when I tell her I was there and heard the conversation, she still doesn't believe it. The brain and mind is a powerful thing and it will lie to us at any minute.
Moving on CM takes time and money so yes things wont be sorted quickly so once i got SS involved mum will be kept an eye on.
Also moving stuff out is not easy with no car im sure the neighbours are wondering whats going on? but my brother is making things harder by not letting me in everyday to get stuff so i have to take things when hes around? I should get everything out this wkend. Cat seems ok just sleeping and hiding alot!
I have no intention of resuming the regular phone calls. And if the calls from her escalate, become unproductive (going round and round and ROUND, trying to explain and reason over and over and OVER because what she's really doing is trying to start drama), or if she starts insulting me and my efforts in any way, then it's break time again.