Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
My sincere advise, not that it's easy to take, is to always respond positively. She hates her hair? You respond, "I'm sorry you don't think so but you look beautiful this way!" She hates the food? You respond, "Really, I think it's delish!" She hates the staff? You respond, "Do you think so? I always think they're so nice!"
Let her know you understand this is not how she thought things would be and that you're so sorry that thing aren't always the way we envisioned them but that you feel so much better knowing she's safe and well cared for. Let her know how much you love her and wish that all her expectations had been possible. But don't let her pull you into her negativity.
Change the subject, take her out now and again, bring her treats you know she likes, be positive - and have a good scream in the shower now and then! It's hard to deal with but she won't always be with you and when she's gone you'll truly be able to smile when you say in a most loving way, "She was a pain in the neck sometimes but I miss her."
I called her earlier to tell her of her appointment on Monday for the ultra sound. She seemed fine with it but she is worried about getting her clothes on. Not sure if I have mentioned but my mom has been in her pajamas for over a year now. She refuses to get her clothes on. She attends their church service in her pjs, she sits out on the patio with the ladies in her pjs and any other activity that she participates in--in her pajamas. Ha! She does change her pjs and washes off, but hasn't been in the shower but once since March. I first worried about it, but that is trivial. As long as she cleans up, I don't care. Even the nurse and doctor stated how much better my mom looks. Well, she minds them better than she minds me. Ha! But the back side to this is she always asks me where she can get some new clothes.--So and so brings their mother clothes, on and on. She won't even freaking put them on!!! :-0
I did what I said today--I painted, did laundry, ran errands, paid bills and cleared my mind a bit. Since I called my mom this morning, I will not talk to her until I go on Sunday. Yay me. I am going to complete more on my list tomorrow. When I can complete my list of things that will help put my household back to some normalcy, I am going to celebrate. It may take me a few months, but I am diligently working toward my goals.
I did the above things on my list today without complaining or disputing. :-)
Now, Sunday, I will probably complain, but I won't dispute.--just to give a heads up. Happy Friday night!!
After a full week of nothing from her, this morning I got 2 phone calls and 2 different emails. As usual, she was talking a mile a minute, leaving out details that would have been helpful...just FREAKING OUT. After trying to get my own adrenaline to go down, I try to calm HER down enough to get some facts. Turns out that my mother found her other golf cart key and was going to try to drive it (no license anymore, she can't drive). I'm 99% sure that the electric golf cart isn't plugged in, AND the batteries are dead, so I'm not really worried that anything would happen--plus, I'm at that point now where if something DID happen, I would probably be able to tell myself that I've done everything I could.
Anyway, this neighbor actually ended up being able to take the key away (see? she's actually helpful in many ways). My mother can't possibly have more than 2 keys to the golf cart, and now the neighbor has both of them. So, there is no REASON to panic. Why can't she just email me and INFORM me of what happened, so at least I know. Instead she has an absolute TIZZY FIT, and I spend my time AT WORK no less, having to calm HER down, then THANK her, then process all the b.s. going on in my stressed out head and body.
The other phone call was about my mother misplacing her prescriptions. I reassured her that I had shipped new refills last week, and yesterday. The emails were about how she believes the gardeners still haven't come, after 4 weeks. I was down there myself on Tuesday, and frankly, things look fine. I had asked her last week when she brought it up if she'd be able to get me a phone number or two of other gardners -- but she never responded with any info. When I was there Tuesday, I drove around and took down a few numbers of gardeners I saw, and will follow up this week.
Anyway, I guess the good part of this is that it gave me more info to put into my letter to her neurologist, whom she'll see next week.
Linda: When I lived at home my mom had me to the doctor many times for being so thin and sick all the time. Any time something went around, I caught it...I was always sick to my stomach, headaches, etc. As I got older, I got better and after I got married. Viola I was better, I gained weight, I didn't sick anymore...I didn't really know the difference honestly until a few years ago it hit me. I was so anxious living at home with her that it physically made me ill. I wake many times still with that ill feeling, but as the day goes on I am able to shake it. But yes, looking back, her behaviors made me ill. Emjo: I know what you mean about not having the ability to have that compassion or empathy for others. They are missing the link and I do believe that is real. My mom was a middle child we sometimes "blame" that, but mental illness carries with it so much, who knows what the real culprit is. Most of it also comes from most of us, including their parents, have always enabled these behaviors.
The nurse called back about the place that came up on my mom's neck. They are wanting an ultrasound of it and labs drawn. I am dreading that, just getting her ready and encouraging her to get out to go will take an army. They will let me know today when that appointment is. I know most people look forward to Friday and the weekend, but I have never hated the weekends to come so bad until now. Philippians tells us to do things without complaining and disputing, but I will tell you, that is so hard to practice especially when the one you are doing these things for complains and disputes. I will pray for less complaining even if it is on my part. :-)
Multi: Your mom's behaviors are also out of your hands. If she washes windows, then let her wash windows. Tell her you bet they look good... HA! The laugh is on her. I wish I could take my own advice, even though I do take all of yours at different times.
I have a life to live, laundry to do, painting that needs to be done and the list goes on. I MUST put her misery--that I am NOT responsible for, out of mind and get busy with my own life. She had her chance at life and now I am wasting my chance thinking how to do hers better. How wrong is that? It is wrong I will tell you! Boy, I think I just had an epiphany. I just saw in front of me what I just said out loud. I am losing what I could be doing because I am trying to redo her life for her. Not today I am not!!! Today I will do what I want and what I need to do for my self and my household.---tomorrow may be a different story I tell, but TODAY is a good day to have a good day! Hope you join me!!!
"Oh, I'm just sitting here thinking of all the things I have to do. Yesterday really wore me out sanding the window frames and I'm in so much pain. You see, it's an ordeal - I have to take all my equipment out and then I had to wash each window afterwards - let's see how many are there - 16 sections, yes 16 - it's a BIG deal." (Oh, I'm sorry, by now I only hear the adult-speak that was displayed in all the Charlie Brown TV specials...)
Yikes! Ok, Miss Sunshine and kitten farts! She wanted me to know just how bad it was because we didn't run down there to paint a window frame. The sky is falling! I'm more concerned about her health, so I suggested she talk to her doctor about better pain management. But, no, that's just crazy talk according to her.
She would jump up and down if I told her I would give up my husband and home to come live with her. (Maybe in secret, but she'd do it.) I've really detached myself from her martyrdom. I hope she doesn't hurt herself but she won't listen to me. Frustrating. Have a great day all!
You've detached in many ways, and that's good. Keep it up! And may I suggest investing in a good punching bag and some gloves? It's a fantastic stress release! ;) hugs....
But probably not served up deliberately as part of a class-hatred conspiracy, as I suspect my MIL would insist.
Jewel at the other extreme my mother is the prime candidate for getting genuinely forgotten about. She'll sit there for hours until the smell of burning martyr becomes so overpowering at the nurses' station that she gets remembered again. "Speak! Use words!" I urge her. "You cannot expect people to be psychic." Nope. She'd rather weep silent tears…
Just agree, it's quicker. Or offer to 'write to The Times'..?
When I hear those words from her it is so hard to comprehend: when she says, "I guess I have to do what you say"--like I am making her do things. She didn't do what I asked before (that's why she is where she is) why would I expect her to do it now. She just knows that she can't move without me. I am NOT moving her, I am NOT, sam I am. I don't care if there isn't anything left when this is all over, I am not doing it. As each day passes and more of these conversations come up, I am thinking how I can break free from all this. I feel like I am planning a prison break. I can see the sunshine and the green pastures, but they look so far away.
It is not your responsibility, but, I know, hard to shed those feelings of guilt as we have been blamed for the time of day since childhood. You are doing well, as are others here. Just keep detaching, sharing here, and setting boundaries. Reading about the disorder helps too. It is a disorder. They are wired differently. People the age of our parents were not diagnosed, never mind treated. There was no awareness, and not much even now. Even when there is treatment it is not often successful, unfortunately. Have a good day, regardless.
She always ends the conversation by putting the blame back on me! It is my fault that she is miserable, it is my fault that she didn't get breakfast on time, it is my fault she cannot stay alone... (I don't really believe all that, but SHE does) That hurts..but more than anything it makes me angry!! I would love to give her away as though she were an old sweater that I cannot wear anymore!!
Okay, had to get it off my chest so I can go on with my day! Thanks once again for listening and carry the burden with me...love to all
Oh so done with this BS! he rang mum while i was there and brother answered he spoke to mum and she was soooooo chirpy! no she cant come in and see him this wk she has visitors????? has she? yes maybe next wk? doc got a bit agitated and said no you have to come in as i cant give your pills until ive seen you? so shes seeing him next tuesday anyone want to bet that she will turn up? oh will bring brother if she does and BOY are my ears going to be burning that day BUT i got in and told him all i mean OMG its like classic text book dementia!
Anywhoo im done im not happy or relieved or anything im just so angry it came to this it will be hard to switch off from this but it will take time.
I do not want to see my mum for a long time im too mad as for siblings i think we are most definetly done! so whats next another hospital visit for mum so theres nothing i can do anymore.
Mmmmm what to do am twiddling me thumbs now!! i have started reading again which is good as havnt read a book in years! i am trying to eat my veg ive been walking so baby steps! Not going to be easy walking past my mums house everyday but for now its better than nowhere!
Will move cat and stuff this wkend that will be hard but get in and get it done!
Brother texted me to say there was a letter in the front porch for me? treated like im dirt after five years of mums care? but the sh*t hasnt even begun yet when mum knows im off for good she will get so mad and is bound to snap at brother she cannot fool them all for long!
anyway mum is now on her own so she is SS and brothers care now doc wants to see her before he decides on SS? EH DOC ive already contacted them! but they will not move until Doc says so?
I am sick drained and just wish i could hit a switch and it would all go away but its going to take time to adjust to my new life and my future. I tell you its sureal like ok now what do i do! well first i have to start eating lost 7pounds this week once i stop shaking and let go of so much anger ill be fine!
I mean who knows i may get a job as a carer for some nice little old lady who dosnt have dementia! Eh i have experience!! LOL
Hugs to all ill still be here not as much but i will now concentrate on helping you guys!! i could be the agony aunt of carers!
Hey my journeys far from over here but at least i have time to retreat and find out who the hell am i anyway! yes i think i need to regroup and get stronger so when mum needs me ill be mentally able to face her again!
My guts are telling me something will happen soon in the next few wks so we will see! be nice to have money and totally get away far away but that wont be possible. sad isnt it i wanted to be mums daughter again and not her punching bag hopefully this all works out and i can visit her and take her out but never be her carer again i could never go back to that unless she was just further gone and placid and also drugged up!
Doc wanted to give me sanex but i declined im very shaky but ill calm down once i get used to this change of life!
I will now take up my spanish lessons and go to the beach more then i have to look for work as Social welfare are on my back yeh get a job or care for mum they dont care what youve been through i just had a look today and there are no jobs here its just scary! but you have to try or they will cut your money so fast! gosh i signed off today as her carer and like that im a jobseeker now.they dont mess around! no respite money!! anyway im no better or no worse off finacially so thats ok i just feel so bad to have to ask a friend to help me even though shes fine about it its not easy to depend on someone else!
Things will get better so i just have to be strong now!
Hugs to all ill catch up with you all soon! jeweltone have you written that book yet??
1) The endless demand for our GRATITUDE. I know (now) what healthy and heartfelt gratitude is -- and I'm grateful for that ;), hee hee. Example from my mother: I work part time at the place where my mother used to work. She's been retired for at least 25 years now, but as one of her perks, she is supplied with a free "park anywhere you want" permit -- which she hasn't had any need for the entire time. Normally, I would have to pay quite a bit for my own permit, or park on the street, which is very difficult. She offered me her parking permit, which is a huge convenience for me. It's only been within the last year that she seems to have forgotten about having given it to me, which is a blessing, because she'd bring it up all the time -- "how is my parking permit working?" "are you still using my parking permit?" And I'd have to SHOWER her with the most effusive thanks every time in order to please her. "It's working great, Mom! Thank you SO MUCH!!" "Yes, I'm still using it! And I'm sure the others are so jealous of me, since I can park so easily! It's like GOLD!" Sheesh.... No wonder I'd be so drained after visiting or talking to her.
Next story, which would always really upset me. My mother has always seemed to be a dog lover. We've always had dogs, and I never questioned that she seemed nuts about them (I am too, by the way). However, her only involvement with them was to pet them, talk to them, and give them treats. My father always did all the 'grunt' work. When I was an adult, married, etc., they adopted a retired grehound (wonderful, sweet dog). This dog favored my dad (I called her a 'flirt' because she really loved men!). That did NOT please my mother. But it was my dad who really interacted with her, so what did she expect? Anyway, she'd make all sorts of wistful, sigh-filled comments over the years, about how this dog didn't like her as much as my dad. Time goes by, and the day comes to put her down. My mother LOVES to tell this story -- how my father was in the room with the dog during her final moments. My mother, on the other hand, was in the waiting room, crying, and being comforted by the staff. My poor mother, such a sad sad day for her...
Anyone who's gone through this with their own pet, I'm sure can relate to the anger I feel, every time she'd bring up this story.
I so agree we need to qualify for something. Vacation sounds great! I think when it gets like this, we should get permission to walk away without guilt or shame.
CountryMouse: I am SO SO sorry about you needing to have to make decisions about the cat. That is hard enough in itself. The emotions with your mom and now this. Today is a new day, then tomorrow. As time goes on the sadness will still be there, but it will lessen each day, each month. To some of us, animals are very much a part of our family and we miss them terribly when they are gone.
Cheers to another day! Let us rejoice and be glad in it....
your mother didn't want you to pay for the scarf but you did
she didn't want you to even though you did
she did want you to but, according to her, you didn't
she didn't want to tell you about it but somehow it just popped out - she did want you to pay for the scarf
so you paid for the scarf…
but she didn't want you to.
So, sorry, who is the one who's dazed and confused? Because, hey, you're just trying to follow her train of thought.
Moral: make your own decisions and don't worry about it!
I've just had my own object lesson in carrying my mother's emotional can. Her pushing 20 year old cat, who actually I've grown very fond of, has had chronic respiratory problems for more than 2 years. Back and forth, back and forth, surgery, antibiotics, anti-inflammatories, you name it. But the little thing is a trouper, seems content, just gets on with life, no trouble, even makes friends with the dog. Really endearing. Anyway. This morning, she is bubbling bloody mucus from both nostrils. And as I swab her little nose - no complaints, she sits patiently and lets me get on with it - I take a critical look at the rest of her. And I think: if I went to someone else's house, and I saw a cat this underweight, flanks heaving with every breath, obvious spinal problems, not able to purr or swallow more than the gravy off her food…
So I take mother to task - we've had numerous discussions over the years about 'when the time might come' - and after some confabulation (apparently it's one of the children's cat. She has no idea whose. She can't remember where the cat came from, but definitely one of the girls said Gretel was her cat…) and some tears, and the mulish face that says "you are being horrible to me but I refuse to comment", I pick up the cat, tuck her under my arm and go out to call the vet.
So I'm on the phone, describing today's symptoms, and realise that I'm rubbing the cat's ears and she's rubbing her cheek (now clean, thank God) on my shoulder - one perfectly happy, contented little cat whose euthanasia I'm discussing in urgent terms with the vet's office. I have a qualm. But next thing I know the receptionist is saying that the vet is already on her way to our house. It's almost as if she'd been expecting us to ring, or something.
The vet is brilliant with her patient - that is, with mother. She explains. She asks permission. She reassures. Mother agrees that ***I*** think it is the right thing to do (I've said nothing!) and gives her consent. We proceed from mother's room ceremonially bearing the cat on a warm, clean bath sheet. The cat co-operates fully. She has had extensive experience of vets, all of it positive. I feel a total traitor. The deed is done. I weep buckets, as does the vet's assistant - the vet herself is being professional but accepts a bolstering cup of tea. Mother? Tchah. Mother takes this as an injury done to herself. Not a question of the cat's suffering and lines being drawn. A question of whether mother will be upset to lose her cat.
She will be, of course, once she does grasp that the cat is dead and therefore will not be pinching salmon off the table ever again (actually she never did - this was just mother's conviction that she would if she ever got the chance). We both will miss having a cat around the place - first time in 22 years for me, first time in heaven knows how long for mother. It's going to be feel very odd.
I don't know, I just feel really resentful that I got left holding the baby. I didn't want to kill the cat any more than she did. I'm sure the decision was right but I still feel terrible. Not fair.
The big trap is that the Borderline is constantly looking outside herself for a fix. In contrast I think of a Buddha saying I heard somewhere: "The moment one ventures outside himself searching for peace, he is already going in the wrong direction." What a great lesson for us! Did we need our crazy family to demonstrate that truth in the negative? Who knows? Maybe God knows.
Sandwich, I love the idea of qualifying for therapy and vacation. I already gave myself permission for the therapist and I am so glad I did. Next week I am working a week in Maine and it will certainly feel like a vacation.
With borderlines (new name is emotionally unstable disorder), it's about control and manipulation. "I'll smother you to death so you won't leave me because I have no self-image or control over my emotions" and "You are all good or all evil to me".
Either one is a ticket to crazy-town for caregivers. Combine them and add a dash of other common companion problems (co-morbidities), and as a caregiver, you will find yourself running ragged for no acknowledgement, no appreciation, constant manipulation, emotional blackmail, stress, anxiety, and eventually PTSD of your own from dealing with this "package" on two legs.
Having a parent or care-receiver like this ought to qualify us for free lifetime therapy and annual vacation to some place with no internet access and 24-hour open bar.
One survival skill that is hard to do, but a real sanity saver is detachment with love. Google it. It's a technique for people who have any kind of destructive/toxic person in their lives. I can say it works. Between this and learning some anxiety control mind exercises, I am here today to vouch for it.
If it hadn't been for this site and the wonderful people on it, I probably would have a total breakdown by now with my lovely Cluster B mother. This is where I learned about detaching with love, boundaries, and got connected to some pretty life-changing support to deal with all this.
The hard part was admitting what was really going on, embracing the reality that mom's dementia was too far along for therapy to work for her, and finally getting her to care givers who could see through her monkey-shines and manipulation. And who were willing to be honest with me about her!
My mom bought me a comforter once (I was looking for a certain color and she found it when I wasn't with her) and I tried to pay her when she first brought it. She told me no because I may choose to take it back and I could just wait. Well, first of all, she bought it and I would dare take it back or I would have heard how she couldn't pick anything out for me, blah, blah, blah. Later, I told her I was keeping it and tried to pay her. She refused to take the money once again. About 6 months to a year later, she brought up the comforter and how I never paid her for it...uuugghh!! When I explained that I had tried, her remark was "not hard enough" with a big laugh!! Really?? I sent her a check for the comforter and she never cashed it. Shew. She just wanted to complain.
The saga will continue, but at least we have the encouragement and support where we need it. Go Super Heros!!!
I mean, that isn't a priority to me. My husband and I are still getting back on our feet. We have tried on three occasions to make small payments back to her and you know how she responded? With a brushoff of "oh, just don't, you can wait until you have more." Ok, that's rather insulting, especially when I find out that she told my brother that we have not made any effort to give her any money back. The paint on our home is peeling, too. However, like her, we live 200+ feet off the road and it's certainly not a priority. Not surprising, coming from the same women who complains that the leaves are falling off another neighbor's tree already and blowing into her yard, because certainly none of HER trees are causing any problems.
Oh, and this really bakes my cookies: when my parents divorced 25 years ago, my mom had to send my dad yearly insurance information, since he has to send her money to maintain health insurance. Well, because she was so devastated and didn't want my dad's new wife "to see her handwriting" because she's a private person, I agreed to pass the info along to him. What I did NOT agree to, though, was to follow up on it and she constantly complains about the timing of his payments, and asks me if I've talked to him. So, I just told her, "I agreed to pass the info along to him, but that's it. If you want to follow up with him I suggest you send him a letter." She was not pleased about that at all and said I was being a "smart-aleck".
If nothing else you may find this entertaining - once again a parent putting a child between them. Sorry, don't mean to hog this post today but I still am fascinated by my mom being so prudish and particular and proud of being naïve about the world. She would have made a great debutante. She was most likely this way when I was young, but I didn't notice it as much because I was living under her wing. Smart lady, and has given me some brilliant advice in my lifetime, but she would never follow it herself.