Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I called my mom to let her know my 16 year old passed his driving permit test today and can no officially drive a car--with a 21 year old with a license of course. I thought she would be excited for him. Nah, she just said, he did? "I guess you will be teaching him driving" um yes, mom, don't get excited. I know what is going through her head, she is wanting to say, "at least he can drive and get out"...uugh! She just didn't say it, but I could hear it in her head. That will come. I read something today that someone wrote on a feed that my daughter knows and this guy was talking about his dad, and how his dad died at 41 because all he did was feel sorry for himself and was miserable and said he would die at 40. This guy lived his life to just die. That is what is slowly happening to our mom and some dads. My mom has said many times she won't see 70. Who knows, but sometimes I hope she is right. I know, shame on me. I feel so bad for feeling that way. I am also trying to live my life now the way I want, but it is so hard sometimes when she is on my shoulder whispering guilt in my ear. I, too, sit and wonder what it would be like without the dread and despair of her in my life.
Calm is much better for her overall state. So what if it's more meds. I say bring them! Mom is also in a rehab location for now, which is a transitional time between hospital and whatever your next placement needs to be.
Step down and let the professionals step in. Once the professional psychs get her in a hospital environment, her real self will come out in neon. I also had this terrible anxiety that they would send my mom back and we'd be no better off than before. Mom was not able to put her act on long enough to get away with anything. Her alternate reality came through, plus her paranoia, her anger, her distorted reasoning, her inability to perform tasks of daily living. She was around people who had seen it all before and knew how to deal with dementia patients used to fooling everyone.
Use this time to repair your own life, heal, and get back into your groove. You can also use this time to make changes at your mom's house while she isn't there. If there is something like rehab your mom could do for a while, it buys you even more time to get it together.
One thing must now be true - you absolutely must not return to the way it was before. Social services MUST come up with a plan for her care that does not involve you. Make it very clear you are not able or willing to do it. Say it put you into mental crisis. Get your own doctor to write a note. Whatever it takes.
We're here rooting for you all the way.
Here, people talk about their experiences of being admitted to hospital, in some cases using powers provided by the Mental Health Act 1983, or “being sectioned”. To be sectioned, three people (an Approved Mental Health Professional (AMHP) or nearest relative and two doctors) must agree that the person is suffering from a mental disorder and needs to be detained for assessment or treatment, either for their own safety or the safety of others. Under section 2 of the Act, someone can be detained for up to 28 days for assessment; under section 3 a person can be detained for up to 6 months for treatment; section 4 is used in emergency situations for assessment over a period of 72 hours. Most hospital patients, however, have agreed to go into hospital and have not been sectioned under the Mental Health Act; they are known as informal or voluntary patients.
Read more: http://healthtalkonline.org/peoples-experiences/mental-health/mental-health-ethnic-minority-experiences/being-sectioned-under-mental-health-act#ixzz3CGvWmiMy
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So sad to think if only shed let me take her meds and accept outside help i could care for her BUT now as the nurse said you have to think of whats right for her.
God help me i know it will be hell getting to go into a hospital AND theres only one here for 60miles everyone knows its the "mental hospital" and mum will not go willingly so yes may have to be sectioned.
Feel a bit less stressed but sectioned is a shock?
I cant care for her and be abused like this she is getting worse i need that cleaning lady to come in as ONE shes honest which is hard to find last cleaning lady stole mums jewellery,money etc? she is a good cleaner?
I am just sitting here waiting for doc to return my call and district nurse is on holiday for 2wks?
I am staying with a friend and have the left the house like a pigstye if mum thinks she dosnt need help then lets just see who is going to clean up?
My doc says alot of this is abuse and not all down to dementia she thinks mum should now be seen by a shrink? shrink thinks mums fine?
I am just about to explode here and wish i could just walk out now pack my bags and go. Rang supportive brother last night and he said yes leave when you can then mum will have to face up to the fact that she cannot live alone?
I feel nothing but anger towards her now as her abuse is just getting too much for me to handle and i handle it the only way i know how? walk out and stay with a friend. I come in wash cook her dinner and put it in the microwave so she cant say anything them text my brother and leave my brothers wife is on his case as she dosnt like to be alone?????????
I dont know how im still here breathing smoked enough fags to kill off an ape i just cant continue like this?
Mum will not get POA and i know her shrink will say well get out for your own sake?
Its my birthday next week 49 so ill be here five years the social welfare sent me a letter asking me what am i doing to find work??? if i dont respond they will cut my welfare? looking after mum is not work? i have applied for carers alowance but was turned down as mum is "MOBILE" diabetic with dementia but as long as she can walk i get nothing SO SWelfare see me as an unemployed BUM and now i have to prove im looking for work?
Yep today is a good day! maybe tomorrow ill win the lotto and laugh about all this stress!
Mum got my dads pension backdated which is 100$ extra for her a week AND she fired the cleaning lady as she cant afford 30$ to pay her?
I have no food and no money as mum will not give me money to buy food i spent my money yesterday on gas and electricity so have nothing left?
I am so lucky to have 2 very good friends she will loan me money until next week but sometimes id rather die from starvation than ask?
Caregiving sucks!
Doing something different is very, very hard and unpleasant. I am also facing my old issues with Mom, all of the above. I try different things. Some days I am so disgusted and angry I wish she were dead already and I also don't care if I ever see her again. Other days, when she is not so mean, I feel my love for her and hope she can enjoy whatever days she has left, but heck, I am still having to always fight for the right to own my own life. Many times I try to imagine her gone and what it will be like to be free of this person. Then I vow to make the day mine, no matter what. I am not going to wait for her passing so that I can live my life. I am there if needed, doing my best to enjoy every day, and licking my wounds when needed. It's difficult to feel so damaged every single day by someone. UGH. But finding part of your day: that YOU claim and do for yourself is very important in us detaching enough to be more mentally healthy ourselves.
Someone on my FB posted that their mother passed away, and so many lovely comments were offered about this woman. With MY mother, maybe a few people will offer condolences for my 'loss', but I don't expect to hear any stories about how wonderful, kind, generous, funny, or lovely she was.
The sad part is she will die one day thinking I didn't do enough. If they think it, to them it is real.
I don't need any final conversation or any kind of 'closure'. I didn't necessarily plan or expect the removal of her car to result in no contact, but I'm not suprised one bit. I'm perfectly ok, and rather grateful for it.
I hope to get that book I ordered on outgrowing co-dependency this week. It's time, I think, to do a little more 'internal work' as the pros say, hee hee. I feel like the adult in me has been stunted way too long by the relationship with my mother. Understanding that she's narcissistic has been a huge eye-opener, but now I need take some steps to stop acting--and reacting--like the codependent I was raised to be, but am NOT anymore.
....and yes, we are the normal ones!!!
The trouble is, that now you've done the right thing and got your mother into a safe place where she is taken great care of, she has all the health and energy she could need for complaining. And while it might be tempting to look at her thoughtfully from time to time and think to yourself "maybe we should try it your way..." you know you couldn't do it to her. She wouldn't be happier, even, let alone better off: she'd just be too weak and ill and endangered to give voice to what ails her. Look on this as her chief pastime. The crabbier and more unreasonable she is, the better the day she's having. Oh joy.
Speaking your mind here is safe, and does her no harm, and does us all good because oh my goodness it so helps to know that our cared-for one is not the only ungrateful, discontented, unreasonable, passive-aggressive, plain aggressive, draggy, slanderous, emotionally blackmailing deadweight in the world. HURRAH! We're NORMAL!!!
Have a great day. And DON'T call her unless you feel like it! Hugs x
I know it sounds I am aggrevated this morning, but actually I am not. I am just writing to free some space and take away the things she keeps saying to me over and over. I really want to take her checkbook and everything else I take care of to her and say "I am DONE". Just realizing I have a good 20 years or more ahead of me with her, makes me sad. Surely before then I will be able to find a way to do less and less. She has enough to keep her in the AL another 15 years, then I don't know what I will do from there. Nursing home is the only option after that. She will then be 83 years old. It is sad also to see everything they have worked for and saved go down the drain. I try really hard not to think of it, because that money is NOT enough no way, no how, for me to keep her at my house. That could pay my monthly bills and she would have money left over. She would have enough to last her for 30 years. Let me tell you, if it were about the money--as she thinks it is, I wouldn't be on here, I would be living it up on vacation, buying a new car and remodling my house. There now, how would she like that? HA! No, I wouldn't either--I would be doing what I am doing now, I would be asking how high she needed me to jump. Actually, if I were that type of person, I could do it anyway because I have full access. It hurts knowing they think we cheat them. My sanity and my family's peace means much more to me. We live like poor church mice compared to my mom and that is perfectly fine with me. Who could stand it just for the money. I do know people who do it, but I am not that type of person. I want to know my mom is taken care of in the best way.--Nice place to live, good meals, clean and it is fancy for that matter. It is like a high end hotel with concerige service. I can't give her that. Now, I feel better. :-)
Thanks again for reading!
And yes, I confess...physicians OFTEN forget that the easy problems have been solved already. Oh, sure, once in a while someone is not doing the obvious thing that needs to be done...will never forget the parents who patiently explained why their mentally normal teenager with spina bifida could never be left at home alone (could not get out in an emergency) and why they were fighting over clothes Mom picked out in the mornings (can't reach them) and thank God, another PARENT looked them right in the face and said, build a RAMP and get a REACHER. But these things are a lot hairier than all that - people have rights to be nasty and to refuse to cooperate, its hard to get most people evaluated for depression, let alone effectively treated, especially from that Greatest Generation - and setting limits with your own parent is damnably difficult at best, at least from an emotional standpoint.
Doctors think they have all the answers. Just do this, well, try that. NO!!! IT DOES NOT WORK! The doctor told me not to let my mom tell me no. HAHAHAha, that is funniest thing ever. It sounds so easy. If something happens to them, the doctors will be the ones pointing fingers because they told us what to do. I have learned like I did with my own children, do what we think is best for them and for us.
I feel some freedom from the daily stress of thinking it's my fault and thinking there must be something I can do to fix it. She thinks this so it must be true, right? No, it isn't true and I am starting to believe myself and all of you and not her. Hallelujah...
Be true to yourself, peeps!
I cant take much more I will be putting her name down for a home soon as the waiting could be 6mths maybe more? If she dosnt go im leaving i asked her one thing "do not touch the cooker when youre alone" thats just not going in so for her own safety now the nurse needs to back me up on this. They push you too far and the stress is too much for one person to handle. So glad finally my brother is starting to notice her "madness". Yes he needs to be exposed alot more to her BUT we still have the same problem she cant be alone she will burn the house down so my brother will have to stay whether she likes it or not he just cant handle her when she gets mad and just leaves i cant blame him as he worries she may have a heartattack when she gets this angry! I told him if she does she does she brings it on herself i will see her doctor this week but i know ill get the usual crap that he thinks shes still fairly competent????????? Docs are great arnt they? such a huge support NOT!
I just ordered a book having to do with "outgrowing" codependency. The title sounded very much on target for me, so will let ya know how it is.
Have a peaceful and happy rest of the weekend :)