Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
It probably isn't realistic to think that there will never be contact, but I don't have it in me anymore to fake a relationship of any kind. I'll just be one of the growing number of people who are assisting her now--I don't want the label of 'daughter' or 'family' anymore.
This site is very helpful and I feel better as well sharing my story. If it helps someone else, then I have accomplished something. My mom thinks I am just incompetent and don't know how to do anything. She is the perfect one. If I can give you any piece of advice and you take it, that would be NOT to move your mom closer to you. I repeat, DO NOT move your mom closer to you. Hire someone from her hometown to help out or at some point be looking for an alternative like assisted living in her town. I made the mistake of moving her closer thinking it would make it easier than me traveling an hour every week. Be careful what you wish for. It is much harder with her knowing you are close by. You will NOT get any relief. I see my mom every week and talk to her two times a week and it is still not enough for her. She acts like I am a terrible daughter. My mom, too, insinuates to me that I am not doing a good job by using other's as an example. (i.e. that man's grandson put him in here, because they don't know what to do with old people, they stick them in a place like this) When I ask her if she were pointing fingers, she said: If the shoe fits...
As you have read, my mom told someone this very week what kind of daughter puts her mother in a place like this and leaves her. How soon she has forgotten that I abandoned my family last summer and moved in with her. So, that daughter decided with the support of others, to try and get part of my life back. My mom is much like yours, she only cares as long as it is convenient for her. She doesn't care that it might be a burden on my family..she just says it, I know I am a burden or I know your so busy you don't have time for me. Pushing me farther and farther in the ground. She has told me several times that she would have never put her mom in a place like that. Well, my mom didn't have kids at home and she was retired when she would stay with my grandmother two times a week and she had a sister to help out as well. I work two jobs, my husband works two jobs, my daughter is college and my son in high school. She does not care. It doesn't matter to them they just EXPECT us to do it. My mom truly thinks I owe her something. All we owe our parents is respect. That is all I hope from my own children, that they just respect us. Our support goes to our children free of charge. I would NEVER expect anything more from my own kids. My mom's dementia is not the reason for all this, she was like this many years ago. It is hard to distinguish the difference many times.
Keep reading and writing and we will all get through this. Just like learning curve stated, "good, faithful servant"....
We do what we do before God and will answer to Him alone in the end. Other than my occasional outbursts regarding this injustice I believe he will say: "Well done, good and faithful servant."
I believe He will say that of all of us here.
I've had a bit of a shift, personally. My attitude has gone from wishing for a day when I would have no further contact, to making it a reality now. And being calm, organized, and FINE with it.
I don't need any more incidents to hurt me or infuriate me in order to validate this decision (which has been coming for a lifetime). I guess I'm lucky in a way, because my mother has always been so disinterested in me (or anyone who doesn't give her Narcissistic Supply) that I know she doesn't "miss" me one bit. And of course, w/dementia, she doesn't realize the days passing like they do. I am positive that I'm not leaving any kind of emotional hole in her life.
Anyway, my earlier down-in-the-dumps moment last week about not always getting the feedback you hope for from people, kind of freed me a bit too, after some thought. There IS a lot of support and understanding out there, no question. But this is also very much something ALL our own, and it's good to be able to hear our OWN voice above the clatter of all the other noisy opinions and attitudes out there, whether it's our parent, a neighbor, a friend, or whoever.
I have been talking this whole thing through with a therapist, and will see her again later this week. It'll be one entire month of no contact by then. It's a very good thing. I hope it lasts.
I feel some better that I am able to write my thoughts before I go to bed. Here is where I want to say: GO AWAY, MOM!!! LEAVE ME ALONE!!
Emjo- I agree with you about needing to change the lies we all lived with. That is exactly what it was. I have only realized lately that my life was one big lie with her. She made everything always seem so great. Maybe in her eyes it was. Maybe because everyone was doing what she wanted. We did everything she ever asked and if it seemed impossible, we did it anyway. I am tired now. Worn out with keeping it up. Now I realize I don't have to. I always wondered why mom could go on and on when she started a rage, you answered that: she got her energy from the rage. It is all making sense now.
Kazzaa-- I try also to change the subject, but we always seem to end back up to her misery, woe is me, what about me, and all the negativity about what I am NOT doing. I hope one day they will see what we do for them and what we have done in the past. If not, that isn't any loss for me, because I do what I think is right for me and I don't need anything from her.
Judda--I am trying to think the same way--a lady that needs my help. The emotional attachment still makes that very hard to do. Since I have so many years ahead of me with her, I hope with each month, each year, I can lessen the attachment more and more.
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I know there is some new therapy i saw on a programme that can erase trauma and bad memories???? gosh bring it on? i dont know its new but alot of people have tried it? Yes if i could erase mums bad memories and there only be good ones this wouldnt be as hard? I hope when she progresses that maybe she will forget her past and be a happier person but who knows?
Sounds a bit too good to be true though this new therapy to be able to erase all the bad shit in your life? Mmmm?
I pray for compassion and understanding.
It's strange how I thought I was over the horrible childhood stuff and now I must face it, relive it, in order to let it go. Little by little I let it go.
I think that she won't be here soon. What will that feel like for me? Sadness, then a celebration for my new freedom! There will be many times I will miss her. I already miss the person I was close to. These times are like a dress rehearsal.
It's so comforting to know I am not alone in this kind of journey. It is helpful to see each other in our different stages of healing. I have full faith that we all will discover our own compassion for ourselves and our sick family members, and that we will forgive ourselves and them. We will accept them. We will accept ourselves fully with peace and joy. It's already happening now in such small steps we can barely see it maybe.
I pray that my mother will find some peace and joy at some point...and if I don't see it happening for her, it's really not my fault, my responsibility, or even in a way, none of my business. I pray for my own reunion with the Divine Mother/God in my heart and that I am whole enough to make those around me smile with joy. It's a ways off but I am doing it bit by bit of awareness.
PS: meditation and prayer help so much too.
Hurray for us all!
Family secrets - I got so tired of putting up a front and keeping the family secret that all was well and we were a happy family. This also relates to communicating and not getting the response you hoped for. I have shared with several cousins, and it seems they just do not want to hear it. I got one snappy reply, one very delayed response which side stepped the issues but let me know they did not want to deal with it, and one non response, though this cousin had said more than once, we know you are going through a hard time with your mother. So batting zero there – very little family support. It is complicated by the sister who puts up a wonderful front when she wants to visit someone, and then, according to my nephew, goes home and bad mouths them all. My nephew is the only one who has been supportive – he knows his mother, and therefore understands his grandmother. I am happy for that support. I did once have some support from a relative in Norway who knows mother well, and also from a cousin in England when I laid things out after other sicced him on me. I think they are both dead now. Her siblings were supportive as they knew her, but they are all dead now.
I once found an excellent web page which had biblical bases for dealing with abusive parent. We are not required to put up with abuse. If fact we should protect ourselves from it.
Young adult days and phone calls and messages, and fears that I was doing heaven knows what. So embarrassing to come back to one’s room and find a bunch of messages to “Call your mother” pasted on the wall going up the stairs and then have people ask what the emergency was. “Nothing”. Mother always instinctively seemed to like the boyfriends who turned not to be good for me and disliked the ones who were good for me.
We have to learn to set boundaries, to not second guess or over think things (hard one for me). To readjust our self-images – too fat, not smart enough, too smart, not well dressed, can’t get along with people (because I would not put up with her sh*t) and so on. We need to unlearn the lies.
I have felt alone most of my life and that I had to deal with things by myself – which I did as a child. There was no help. I find it hard to accept help at times – but more feel I have to give it. Getting better at that.
Tirades - mother ranted on and one and on and on and seemed to gather energy from it. The rest of us would be wrung out and she was on a high. It was such cr*p.
Being two people - I always said that my mother and my sister did not know me. They constructed me to be who they needed me to be - the scapegoat, the black sheep, the fall guy. They even decided what kind of clothing and jewellery I could and could not wear, and what type of man I would end up with. I would figuratively shake my head in wonderment. They really do not know me -and I guess, don't want to. Their loss. I would say that my mother has a better idea of who I am than my sister has. I know they have talked about me behind my back ad nauseam and bad mouthed me. Whatever.
Yesterday was my birthday and, for the first time, I had no communication from my sis or my mother. It was awesome and liberating. YAY!!!!!! I am looking forward to a good year and one with more mental and emotional space. Oh, how I long for that. They “left me alone”!!! That they did on my birthday was the best gift. Loo, if you look at sites for children of parents with personality disorders and/or narcissism I think you will find it. We find ways of withdrawing from the abuse even as children.
I am slowly decreasing contact with mother. The crazy phone calls last year were awful and I cannot have that again. She does not have a private phone in hospital but will when she is moved to her new facility. If she is still on the meds, she will not call as often or at least not be as crazy. Once a week is enough. The staff can let me know if there is a problem.
Pats on the back for everyone for dealing with these nightmares and surviving intact.. The support here is great. Have a good day and do something good for you!
A little girl, a grown woman and mom sucked in by mom's negativity--check
Taking her abuse most of my life--check
Doing what she wanted instead of what I wanted all my young and adult life--check.
Moved mom three times--check
watched her decline- check
moved in with her to hopefully make things better--check
left my family to do this--check
watched her get better--check
tried to please her--check and not check because nothing I do will do that
Finally move her in to a facility for help and get somewhat of a break--check
visit her and call her each day--check
visit her less because of the negativity--check
realizing I cannot fix it--check
blogging about my experiences--check
trying to find peace through reading other's experiences--check
Next Steps:
Break free from most of the guilt
Do not let her bring me down because I cannot fix it
Realize not matter what I do, It will not matter
Visit less and less
Call on her less and less
Find a way to get my happiness back and my life and home back in order
Break the guilt, pit of dread
These are just a few things I have realized and checked off (much more but not enough space to write) and a few things I want to check off in the near future.
My mom did the same thing to me when I was in college, called me and always asked stupid quiestions about where I had been. She still ask me questions about where I go, what I do, and why don't I come earlier to visit. Never satisfied=that woman.
Emjo: hope you feel better soon.
Even now, at 77 she can still do it. Rage and rage and rage and rage. I finally got to the point in high school where I was just sick of it. Fed up. It didn't scare me. It bored me. I started mouthing back things l shut it down, like "how long is this going to go on? I have somewhere to be." Or "can you finish this some other time. I'm really bored listening to this. You've been at it for hours." I do not know where I found that kind of bravery. I must have been thinking what the heck do I have to lose? Oh gosh, what if she throws me out - whatever shall I do? A happy dance for one.
She would call me in college and stalk me by phone. In my first dorm, we only had one pay phone on the hall. Mom would call and call and call, interrogating who happened to answer on where I was, what I was doing, etc. Obnoxious! I transferred to a school farther away the 2nd year, and mom would call non-stop. She would fill up the answering machine and then start calling the dorm office. Then she would call her brother & sisters and my dad's brothers to hash it all out more. I must be out prostituting and selling drugs since I am not in the room. There couldn't possibly be any other choices.
I know now that was her OCD that set her anxiety off, which fueled her paranoia. When I did talk to her, I'd get the third degree and just emotionally eviscerated. Over & over & over. It was difficult for me and probably scary to my hall mates to see me having to listen to this shrieking voice on the other end. At some point I found my brave pants again.
So I started giving smart answers back - "yes mom. I am currently shagging the socks off the biggest darkest sailor I can find. And we're doing drugs off each others' bodies while listening to devil music. I may be carrying his child." She would get so worked up that I didn't take her obsession seriously. I would ask her why she was on the phone with me instead of finding some friends of her own and doing something interesting for once. I had a great time in college, but if my life had been half as wild as her imagination, I would have had a much better time, but I don't know when I would have had time for classes and assignments.
If I go to to a beach or public place, I always head for the far end where there are few people. I can entertain a large crowd for my work but I prefer to be alone. I sure can understand where all these preferences come from! If you lived one day of our crazy family, you'd be that way too. Maybe you are?
Where did you find the info?
I will throw another one in here. For years I have had this phrase in my head "LEAVE ME ALONE". Finally I looked it up on the internet several years ago and, lo and behold, it relates to children of people with personality disorders. I didn't find it so easily now, but it came out then when I needed it. I have a very deep need to be left alone, from the continual interference of my narcissistic/BPD mother. Anyone identify?
Today my mom called once again with a list of items she wants from her mom's...those items are gone, of course. She tried to pull the woe is me, everything I want is gone, attitude. I told her straight out that she had first dibs and was asked every week if there was anything she wanted There is was, the awkward silence. That was my cue to say, I need to go back to work. I am going to take this time to say I don't really care that it is gone, she had her chance. With that said, I do realize her mind was not right to be able to make decisions about what she wanted. Now she is thinking about things in the house and wants them. For my own sake and the guilt I hold on to, I cannot worry about what is done.
My thoughts are with each of you tonight as you think of how tomorrow will go. Let's try to remember: Nothing we do will change the way it is.
Found out mom has (had) schizophrenia with paranoia. That explains even more than bi-polar. They started Risperidone with her last night. She believes everyone is out to kill her. Thus the flip out when she saw EMTs coming to get the lady next door to her at the NH. She thought she was next and they were going to cart her off to kill her. She has verbalized this kind of thinking to me many times over the years. This is not new thinking. The dementia just keeps her from hiding her reaction to the thoughts now.
Probably 5+ years ago I made an anonymous call to the county APS to report a vulnerable adult. They were worthless, but she wouldn't let them in the door because they were going to cart her off and kill her. It took me on the phone, my uncle next door to her, and the Sheriff to get her to open that door and let the SW inside. I told her, you can open that door or they will open the door. But the door will be opened. You aren't helping yourself look very sane right now by hiding like a child. They know you're in there.
I think MORE people ought to be trained on what schizophrenia looks like and how to respond to it. Mom was never a drooling idiot. She wasn't picking at her poop in a corner of a room. It's not always like it looks on TV. She could get dressed and have a conversation. The dementia made her stop keeping secrets like the voices she hears and hallucinations she sees.
Her deepest fear was anybody finding out and taking her away for lobotomy and shock treatment. Because that is what they used to do in the past. She never could understand we have progressed past that and a good doctor plus the right meds can set you on a terrific path. Sad.
I'm questionning my own sense of what I thought were lifelong ties. Even if we're hardly in touch anymore, I've known this person since she was born, and her parents and my parents were close enough that they were listed as guardians for each other, if something were to happen to us kids. I know people have falling outs, and drift, and I have no problem with that. I just am feeling a little like...if this person sends baby announcements the old-fashioned way, in the mail, to my mother and to me, then we are officially still in touch right? So, why not even a courtesy "i'm so sorry to hear..."? Sigh.... I guess I needed/hoped for/expected more, which is my mistake.
This is one of those times where I feel more alone for having reached out, then I would have felt if I'd just kept to myself. I feel that way a lot, actually. Kind of burned out on human interaction. Sorry for gloomy gus attitude today :(
Ready for Monday. An email appears from Mom. What? It reads like, like, an apology? I think that's what's underneath it and the words are almost there!
Ladies, get on board this boundary thing! It's a good thing. If the parent is not totally 100% sanity gone, there may be a few moments left of a thread of communication. Not much, but at 93, that's pretty good for her. Either way is ok with moi!