Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
emjo: It is difficult when our days are scheduled around "them" even when we aren't really doing for "them". My mind is consumed day after day. I do feel some freedom now she is in AL. It has only been 4 months since my mom's move and I am hoping I can get less and less discouraged through each day. I hope my mind gets less and less consumed with what needs to be done for her.
juddhabuddaboo: You are welcome, I hope when I write it helps others understand they are not alone because coming to this site, so many others have given so much encouragement. It helps me to write it all down (even if it all doesn't make sense) it helps me and if it helps someone else in the process, then I am even happier. I am so glad your day went as planned or maybe better than you expected. Now, you can enjoy the evening in some sort of peace and face tomorrow without looking back.
Good night friends.
Feeling torn between just doing whatever I want and feeling like I could take her somewhere today. I need quality time alone and exercise. She talks non-stop and is so annoying, insulting, or such a brain drainer. If I hope for a fun time, a quality conversation, of course I am disappointed. Doesn't happen anymore. Ok. Time to call her. It's 10:30.
Tactic 1 worked. She already took a short walk, doesn't feel good but wants something to do later.
Tactic 2: Fine. The freedom bell is ringing. "I'll pick you up at 1:30 and we can go to the dollar store and places like that." success! She ilked that idea and I could go for a short hike!
I discovered a new short hiking trail, had my quiet time with God and a few of his insect friends, got home, made a big salad and then took my happy mother to a new thrift store. She was delighted at the surprise. We took our time, had a lot of fun. She was happy looking on her own while I wandered on my own. I kept checking back with her which she appreciated. We ate out at a buffet place on the way home an had a really wonderful day!
Enjoy your music fest in your hot beer tent...you will have a blast!
Trust me. And allow yourself to BE on vacation when you get there.
Happiness is the best revenge. Happiness is a really healthy break from the normal guilt/stress/anxiety of all this. You'll get used to this feeling and will stop allowing other things to take away from it on regular days.
My mom did/does the big guilt-trip when we travel as a family without her. When she lived in another state, it was hilariously outrageous that she would expect us to go down there and get her first. We're 1800 miles away! Now that she is here, she expects to go along on everything - especially if it's a trip that would make no sense to bring an incontinent dementia patient along with us. Like hiking around Lake Superior. Or sitting in a hot beer tent for a weekend for a music fest. The answer is just a big fat unapologetic NO.
You take care of yourself and your family. Stop depriving everybody else because your mom might get her nose out of joint over it. You are all adults, so you get to make the calls these days. She can just lump it.
I mentioned to mom once that I do not recall any of our family vacations where we brought her parents along. Ever. We didn't ever go out to eat with them. Ever. So why does she expect to be the third child in our family?
Make those plans and don't look back.
My mom being 68 always makes comments about the other ladies and gentlemen that live in the AL. She will ask me, "have you ever talked to an 85 or 90 year old woman?, they don't know what you are saying...Really, mom? Some of those 80 and 90 year old people know more than she does at 68. She tells me over and over it is like a nursing home. Hardly!! It is a nice place (building) but her mind is an awful place to be.
I went to see my mom today, well, debbie downer showed up. The visit from last Sunday was great after I said my spill, then today she wasn't hateful to me, but it was my fault she was there (assisted living). She went on and on as she was crying..."you brought me here", "I begged you not to bring me here (no she didn't)", "you told me I couldn't stay home anymore"--(that I did, not alone anyway), so much cannot put it all here. I really became frustrated, but didn't let it show. I asked her not to blame me. She did say something relatively smart though--she stated there was something wrong with her brain and she don't know what happened to her. I try not use the term dementia (she has frontal lobe), I just agree and tell her I am sorry this has happened. She cried and the negativity started all over again today. Complained about everything. She started complaining that some of the girls (workers) that used to come in her room don't come by very much anymore, well debbie downer, can you blame them? She is always woe is me, poor me, look at me, what about me, what if you were me....WHAT ABOUT YOU!!!! Sorry, I really want to scream that at her.
Looloo: No you will never make her happy. I am seeing that with my mom. She does look for me to do that, but it can't happen. I have tried literally everything. She says the same things no matter where she is. Long story short, my mom sold her home of 18 years--started complaining of the neighbors, getting paranoid, HAD to get out of there__this was pre-diagnosis, post retirement. I didn't have a clue where we were headed. She found a house in another county on a golf course--did I say golf course? yes, my mom hated golf..Ha ha. She bought a brand new townhouse on a well manicured golf course must I say a beautiful place. TWO WEEKS after move in, my mom complained about the neighbors, was paranoid no one liked her, oh, I think I heard an echo. The same exact thing as before. She put it up for sale and 6 months later, I moved her back to the county she just came from --she even tried to buy her old house back. oh yes, she did. He wouldn't sell it to her. She bought a newly built home and moved in. ONE week after move in: I hate it here, I got to get out of here, the neighbors are crazy, the movers stole my jewelry, this place is awful, the air/heat wont work (well, you get the idea). She stopped showering, wouldn't eat, and stopped driving. It was like a light bulb went off in my head. I called her sister and told her I think I know what is wrong. DEMENTIA: I called a clinic that is renowned for this type of illness. It took 5 months to get in. in the meantime she was calling 911 in the middle of the night to get her out, several things. Luckily we got in and they put her in the hospital, then rehab and I moved her to her mother's home close to me for one year of hell.--you guessed it, get me out of here, I hate it here, the dogs bark all the time, the neighbors constantly mow the yard, on and on. Then now she is in assisted living and hating it once again--Pete and Repeat!!! This all sounds so fast, but it has been a long, long journey that is never ending. I try to remind her of everything, but she denies so much of it..well, maybe she really doesn't remember.
Now my mom lives in assisted living with two storage buildings full of furniture that came from a 2800 sq. foot, well manicured home. This is all just stuff, but she is struggling with what is wrong, so depressed, and so sad. Sad it is, but this is her new life. I hope for her sake, she doesn't have to suffer for a long time. My wish for her would be she could truly forget things and maybe she would forget how miserable she is. With frontal lobe she may never forget because like MaineMom stated, it affects reasoning skills, personality, decision making, senses, planning and short term memory.
We are all in the same boat and let's keep paddling together and the shore shouldn't be that far away.
My mom was doing her Godzilla over Tokyo impression all day yesterday. I got several calls about it from the care center. At one point, I talked to her for a bit in hopes it would help (yeah, right!)
She was so worked up, swearing, calling me every obscene name under the sun, blaming me for her life, that I thought she might just give herself a stroke. She should have given me up when I was born, she should have sent me away like everybody told her to, she should have left me for the buzzards, etc. Objective- me knows these are her own insecurities & fears she is projecting and it has nothing to do with me at all. Or maybe these were things she heard as a child.
The one detail I could focus on was her huffing and puffing into the phone. She had herself so worked up she was out of breath! Just like the wolf that blew the pigs' houses down. It was really loud. And just made the whole thing comical.
I let her run out of steam and then talked to the nurse. I think he was blown away with the demon that came out of my mother. Meh, I'm used to it. She's been this way my whole life. And it the typical meds don't work on her anymore. I suggested calling the doctor and getting a sedative for her simply to keep her BP down. Or not. Whatever.
Even though I can objectify these really awful abusive episodes better than I could in the past, there is still a PTSD factor there. I cry. I feel depressed. But I try not to allow myself to stay there. Objective-me is on the shore trying to pull the sad-me out of the water. Happiness is the best revenge after all. Happiness is not easy though. It takes purposeful work to stay out of the sea of despair. My mom is a walking after-school-special on what happens to a person who lives in the sea of despair their whole lives.
I prayed many nights to get her in the AL. Now that she is there, I do feel guilty, but not as guilty as I was feeling when I would go to her home and never wanted to go back and knowing I HAD to go. I still feel like I have to go, but not like I did when I stayed with her all last summer. My family suffered dearly and trying to fix it now has been rough.
Viohnson: Please know that you can do this!!! Honestly, my mom has been so overbearing ALL of my life and to stand up to her was a big no no. I would have never done it before and the stress it has caused me over the years, yes, damages us! It damages all the other relationships we are in whether it be marriage, kids, friends, etc. I used to go out with friends or we would have friends over, not in a year. A year, wow, that is a long time. You must find a way to find a place for her. It will be better for her and most of all YOU. She is running you from your home and that is not good. I thought of something my mom said on Sunday after she calmed down. We were talking and she said, "my mom always told me that young people don't like old people, and now I see she is right". Well, maybe people (young or old) don't like people who are mean, nasty, complaining, self-absorb and hateful.--that is what I wanted to say. I wanted to tell her to stop playing the role. That is exactly what my mom does, she plays the part of an "old" hag. I feel you when you say you could leave and never look back. I feel that way everyday. It would not hurt my feelings one bit, if I never had to see her again. I realize this stems from way back and not just now, but after 46 years of hell, I am ready for some peace. Now, she really don't have a filter. She really tells me what she thinks and I don't care what she thinks anymore.
Everyone has been so encouraging and helpful here, just listen to the advice and know you are not alone in this. We deserve so much more than the havoc they cause in our lives. Knowing she is safe is so important. We are supposed to get storms tonight and I do not have to worry if her electric is going out or will she be scared. I know she is in a safe place with someone to look out for her. Do I feel bad that she wants it to be me and it's not? Sure, but only if she were a nice lady with dementia. :-)
I do not have anyone else to take the heat so it's just time I stand up for me. Hopefully, one day soon, we can all thank our lucky stars we made it through. I also pray I do not put my kids through what my mom has put me through.
Good luck to all. Until next time, good night!!