Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I am a selfish b*tch, i dont care about anyone but me, i do nothing but sit and smoke all day(really love that one!) lucky i was going into town then i just came home and ignored her sat in the sun cooked her tea am now going to have a bath and PRAY to God,Buddha,Alla whoever that she goes to bed early!!!!!!
I want out of this and her in a NH shes just impossible to live with nasty negative and blackmails me with money or things then throws it all in my face.
Mums personality has been multiplied by this illness ROLL on next week im on a weeks holiday and pray again that my sis gets a good dose of her awful temper as noone has seen it yet?
I know its hard when we say its not thier fault but stuff this for a life? i will visit everyday be the dutiful daughter but live on eggshells for the next god knows how long no way! I just think she needs professional help as i cant be doing with her "vicious moods".
Yeh hang in there y'all!!!!!!!!!!!!
One day we will look back and laugh???????????? just choke me now!
You are right that they are unable to be happy, and making them happy is not a realistic goal. Keeping them safe, seeing that they have the care they need, is doable, as opposed to fulfilling their whims/demands which are endless.
To any one at or near the end of their tether, often the right time for a change is now. It means you have reached or are near reaching the end of your tolerance of certain behaviours which are dragging you down. There is help available though the various agencies. People on this site have made those changes. You can too.
HOWEVER, there is this other thing that isn't so nice and can't be helped with old fashioned adult courtesy & consideration for mom. You can bend over backwards and grab the moon with your teeth, and it won't be good enough.
It's as if they are the only person in the world and we ought to all give up life to sit at their knee and wait for instructions.
If this is a new personalithy change, I'd definitely talk to the doctor about it, as it may be dementia related. The part of our brain that makes us nice tolerable people is on the side that slips first - most of the time. There are so many kinds of dementias, they all have their own different signs. Losing your self control and empathy is a common sign though.
If this is not a new thing at all, and this is how mom/dad was all along, but maybe not this bad, it might be a personality disorder related thing. If mom/dad could keep it together for strangers/outsiders, authority figures, doctors & the like, and just saved it for you at home, then it might not hurt to look at the articles and conversation threads here for Narcissism. You will find people in that boat who are very sympathetic, and are walking that road too.
One of the skills that will help you regardless is learning to detach with love. It's a way to emotionally protect yourself from harm, while not totally abaondoning the other person. Sometimes that is even necessary to get your head & life back together. It's called going low or no-contact. There are some great books out there to help you. Stop Walking on Eggshells, Surviving the Borderline Mother. Just search on amazon.
My mom falls into the personality disorder bucket. It's one thing she does really well. She could be a gold medal narcissist with OCD and Borderline. Her dementia was progressing, so in 2013 I put her in an apartment first, now in the nursing home due to her cognitive decline and medical needs. There is no way on this earth I would ever voluntarily take her back into my home. 3 1/2 weeks was ENOUGH. She is not abandoned, but I get to decide when and how long visits last. Her physical needs are met. She is safe. I am not responsible for anything else. She is unable to be happy, so I don't use that as a way to tell if it's going well or not.
Growing up with a parent who is "difficult/domineering/controlling/abusive" causes damage I still feel at the age of 43 even though I left home nearly 25 years ago. It is not a good idea to expect someone to do physical/intimate care tasks for their abuser. It continues the toxic relationship. It's bad for everyone in volved.
If you need help getting your elder out of your home, and into somewhere else, call your local area agency on aging. You have to put a plan together to make progress. There will never be a "good time" to make changes, even if the changes are good. Use this site as a resource and ask lots of questions. There is more than one way to find success, happiness, and get your life back.
A Social Worker told me not to take her into my house after re-hap stay because she would complain about me, my husband and then start to pick on the dog.
Social worked correct on all accounts except she never got to the dog.
I also moved in with them after my Father broke his pelvis summer of 2012 (another mistake). Could go on but I would be going on for ever.
My house looks like a filing cabnet. Files all over the place from keeping tract of all their illnesses since 2012, Dad, broken pelvis in 3 places, pneumonia, numb fingers---Mom, septis, kindey cancer, broken hip with total hip replacement, her heart beating too fast hospital stay. You name it it all happened starting July 2012.
So I know what you mean about not being able to keep up with your house. My husband and I have done everything for them and they still complain, complain and complain. Both nasty on top of it. Yes, I believe dementia makes people like this. Yes they do suck the life out of you.
Sunday visit with mom was about the tv cable. Everything that came on (even commercials) she would say "seen that", "seen that", nothing on but commercials about dogs and cats... complain, complain. I finally turned off the tv and she asked me why I did. ((shrug)).. I am trying each day to be "happy" again. I used to keep a clean house, have dinner on the table every night for my family, enjoyed being off in the summer and taking the kids to the pool, etc. Now, I am so overwhelmed with "her" that my house looks like it threw up on itself (many times) dinner at the table is a thing of the past, and pool? what is that? Enjoyment? you say?-I want to get back to some normalcy and pretend nothing is wrong.
Even though I was able to tell my mom how I felt on Sunday, she ended up asking me if she had to live there (al) for the rest of her life. What do you say to that? I know she is well enough to enjoy us when she should and well enough that she chooses to be miserable, but I also realize she isn't well enough to live alone.
Sounds like we all have the same mother. kazzaa: you are so right, it is very sad they have spent their whole life being so miserable. I am relatively a happy person, but my mother has sucked it right out of me.
One of my friends Mother's had the same meal as mine, friends Mother said it was great. My Mother said that it was junk. Not happy with ANYTHING!!
I am about to give up. They say leaders will leave you if you are too hard to lead.
I understand that statement now. Cheryl
I had a huge realization when mom had moved into her IL apartment and she started complaining about the same things - verbatim - that she complained about when she moved out of Charlotte to the country (back down home) 15 years ago. People are mean. People are talking about me. Those women at church were looking at me mean. And so on. I distinctly remember her talking about how everybody's going to leave down here, nobody is going to stay. Everybody is leaving at the bank/doctor's office/pharmacy, etc.
Then when she moved out of her IL apt into rehab, she did it again. Same complaints, verbatim. Even "everybody's leaving".
Lastly, when she moved out of rehab into her care center (nursing home) unit room, there it all was again - verbatim. I asked her how does she know that "everybody's leaving" and she said she heard them talking about it in the hallway.
Well mom, the one commonality here is you. And I can't say I blame them. (I know, I'm terrible.)
Something to think about - have you had your mom evaluated for any dementia issues? If not, I would suggest it now. You will need to plan ahead for her care. If there is any kind of dementia, this information will help guide your plan to make sure she get to a place that DOES have not only heath aid/personal attendant services, but also increasing levels of skilled nursing care.You can search & inquire to understand what any given place has to offer for dementia patients (e.g. secured wings, units, or floors, escape-proofing, food services, activities). The escape-proofing is a big one. Nobody knows if your senior will wander until they do it.
You asked me how long I had been dealing with negativity from my mom - the answer is all my life: 42 years 11 months & 10 days. She & dad would have so many fights because all she did was nitpick, criticize, complain, fault-find. Now we know this is the hallmark of a Borderline & Narcissistic personality disorder person. Back then, they were thinking she might be bi-polar.She was on every pill they made for "nerves" and everybody around her had to watch out for her "nerves". She gets so mad now becuase nobody will take her "nerves" as a legit diagnosis and give her more pills for it. They are treating her anxiety and depression though.
My mom too makes all kinds of wild threats about things she'll do to get thrown out. I looked her right in the face and said "good luck with that, because you're not coming back to my house. I guess you'll be on the street." She said she'd run around naked or pee in the hall. My response was "you think you're the first person to pee on the floor around here?" I just refuse to crack and show her any hint of being affected by her childish threats. I'm more like "sit down, eat your pudding, and take a nap. Enough racket out of you today."
I would also talk to the staff & director at the AL and find out if they have volunteers who can take your mom to activities or visit with her. My mom is a product of her own making. She wouldn't go to anything, wouldn't talk to anybody (other than to scream at everyone "B_tch_s - you're all a bunch of b-tches!"), would only sit in the dark and be a jerk to staff, but then complained of being lonely. Well...!!!
Mom can't go to a NH just for being difficult. You have to need a certain level of skilled nursing outside the scope of AL. I think you need to tell mom very candidly that she can lay off the threats and stunts because "it just won't work sweetie. "
Do NOT feel guilty for not visiting. You might think about giving it a month off, so she can acclimate without outside interruptions. She needs to have a long time to adapt. I heard it's at least 3 months for seniors to adapt to a new surrounding, maybe longer depending on the person.
Maybe time your visits with specific activities at the AL, so you have something to take her to. This is going to pre-empt sitting in her room listening to complaining. If she won't go to the activity with you, then you have to get home.
On not calling your mom for a week I totally get that feeling. Even though my dad is safe and secure, I get a feeling that I "should" be visiting him. Last week I didn't call or visit for a week...(we do email however) but even so I wondered what he thought. Then I realize he's fine there and with his dementia, one day seems a lot like the next and he isn't even aware of how many days have gone by. If you distance yourself long enough and often enough it will begin to seem the new normal. It takes awhile because when you've been going over there often trying to make her happy (which you know can't be) then it seems like the normal. Try forcing longer breaks and getting the pill situation in control. Because if you needed to travel or were really I'll, you would need help with it. My dad also made remarks at first (premedication) about us dumping him and throwing him away...you know it's not so and it's the depression etc. talking, but it can hurt unless we distance ourself from that and not take it personally. Accepting that she won't change will help. Try the hiatus approach and pill box fix and you will feel less anxious. Don't let anxiety rule you...it can wreck havoc on your own brain health.
Watching the primary grown up who supposedly had things all together during most of your life, turn into a petulant 3 year old is HARD.
Don't try to do more than you can. If you get over there once a month, fine. If you get over there more or less often, fine. You get to decide how this goes.
You get to decide everything - how long you stay, how much bad juju you get to put up with in a visit.
I never visit my mom without my husband. He's the good one and I'm the bad one. Wild horses and a million dollars couldn't get me to visit her alone. Maybe if you have a buddy you can take with you most of the time, it will help.
Sometimes my mom will be distracted if I bring her candy or a balloon. Sometimes she isn't distracted and could not care less. She's on a big fat dose of Prozac. One day at a time sweet Jesus, as they say.