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My 99 year old mom has fallen 4 times and has been hospitalized and sent to rehab each time in the last year. She will not follow through with in home care. She fires every agency that we have put in place. This time her doctors declared her incapacitated. (She lacks the ability to make decisions due to dementia). She is now in rehab and needs to go into assisted living. I am her POA. She disagrees with my counsel to remain in AL. The problem is she appears sentient but when it comes to her living arrangement she is completely irrational. She is screaming for a lawyer and is treating everyone with disrespect and disregard. I don’t know what to do anymore but I know I cannot live in this chaos much longer. I have been caring for her for many years. I guess I knew a while ago that she was getting irrational. But I thought it was just stubbornness or personality. I don’t know what to do. I don’t know what happens next if my mom refuses to stay in assisted living.

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You're the one legally making her decisions now so it really doesn't matter what she wants as far as AL is concerned. There's no one to take care of her at home so she's not leaving. I own a homecare agency. When the client is constantly firing caregivers and agencies, and the asinine stubbornness takes over homecare really isn't a suitable option anymore. There are limits to what homecare can provide. Care clients like your mother get dropped from service every day and get told exactly what I'm telling you. There isn't going to be any perfect agency or perfect caregiver. Your mother will continue firing agencies and dismissing caregivers for as long as she is allowed to. Homecare is out for someone like this.

If her behavior becomes too disruptive and aggressive the AL will likely insist she be moved to a memory care facility. Have a meeting with the AL administrator and ask them if they can handle her or if they think she should be moved to a memory care facility. Give them permission to medicate her when she starts up with the screaming and nastiness towards everyone. The other residents should not have to put up with someone like this. Get her medicated. It will be a kindness to her and everyone around her. Have that meeting with the AL staff though and let them guide you on what are the next steps.
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Reply to BurntCaregiver
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I would love for her to transition to assisted living. I know she would rather be home but that is not possible. This is a beautiful facility with lots of opportunities to socialize and participate in activities. The staff are all friendly and involved with the residents. I’ve seen this from the last time she was here for two months. If she would just give it a try I think she would adjust and learn to like it.
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Reply to Momsgoto
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ShirleyDot Dec 31, 2025
It doesn’t matter if she likes it, it is a necessary placement for her safety. Stay firm and don’t bend to any pressure she puts on you to go home, etc. Stay strong. Make sure she has no access to any funds. I would even consider taking her phone if she has one, or restrict the settings so she can only receive calls from specific numbers. It won’t be easy but hang in there. She can’t just walk out the door, but if she tries and is a flight risk she’ll be placed in a locked facility.
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If your mother is like mine she will refuse any new medication to calm her down .
These are some things I told my Mom.
1) The doctor said you have to stay .
2) You can no longer live alone .
3). If you don’t behave you will get kicked out and put in memory care with much less privacy .

And when she’s attacking you personally . “ Mom I did not make you old and I can’t fix old “.

Make your visits short .,

You don’t have to help her get a lawyer .
Get a letter from the doctor saying she’s incapacitated just in case Mom figures out how to get someone else to help her get a lawyer . Then you show the letter to the lawyer. Hopefully there are no meddling family or friends agreeing with your mother .
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Reply to waytomisery
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If mom wants a lawyer and she is incapacitated then do not help her. Let her figure how to call one. The lawyer will most likely see that she is incapacitated.
Rehab is a greatnplace to get the ball rolling for MC placement. Tell her that the doctor will decide when she can safely go home....not!

I understand that she will try to make your life hell. Stay strong. It is her disease speaking
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Reply to MACinCT
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Mommo longer makes the decisions, you do. Itsjo longer what she wants, its what she needs.
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Reply to JoAnn29
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It’s great the doctor has seen the truth. Mom needs memory care, nothing less. Discuss this with her none, not at all! Make the arrangements and have her moved. Ask the same doctor for medication to help calm mom’s acting out behaviors. She doesn’t have the option to refuse anymore, she’s incapacitated. Don’t expect her to ever understand or accept it. I wish you both peace
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Reply to Daughterof1930
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Her Dementia doesn’t have the right to make this decision. she needs to go to skilled nursing or a nursing home. NOT assisted living. Please don't put her in assisted living.

Place her if you think it’s the safest and most reasonable choice for her best interest and yours because you matter too.

Good luck and please keep us posted. So many people don’t come back and update us and we never found out what happened.
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southernwave Dec 30, 2025
Also, don’t bring it up anymore. It’s not open to debate and she is never going to understand why this has to happen. Just keep her calm and move her there one day.

Her brain is dying so it’s a natural turn of events that she doesn’t get to give her input anymore.
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The key here is her doctor has declared her incapacitated to make her own decisions. That means you as her POA make the decisions on her behalf. If it would help your peace of mind, take the POA documents plus the letter from her doctor (important to get this in writing) to an elder care attorney and explain the situation to them. I think they will confirm that you are now in charge.

It sounds to me like your mom needs memory care (as opposed to AL) but the professionals will assess and advise you.

This is all dreadful to have to experience and deal with and I wish you courage to do what you have to and then peace. I’m assuming you are late 60s to late 70s yourself and I’m so sorry you are dealing with this now.
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Reply to Suzy23
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Perhaps she needs a more secure living arrangement than assisted living if you fear that she won't stay. Would she have the ability to leave the assisted living and return to her home?
She is not in control any longer. You are.
Of course there's chaos. She is unable to clearly make rational decisions. She is scared. Scared of losing control (of her mind, of her independence), she is scared of moving in to a strange place. She's fighting against it with everything that she has.
It's just as scary for you making decisions for someone who is unhappy about your decisions. Be strong. You know you are only doing what you must to keep her safe and take care of her increasing needs.
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Reply to CaringWifeAZ
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southernwave Dec 30, 2025
Yes, assisted living would be the wrong choice.
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Your mother needs Memory Care Assisted Living and a geriatric psychiatrist to evaluate her for medication to keep her calm. The rehab facility should not release her until this has been accomplished, and she is set up in a new facility and calmed down. Refuse to take her home from rehab until she is placed and calm.

Best of luck to you.
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Reply to lealonnie1
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She sounds like she is not even appropriate for AL and may need an extended care facility. She can at least be on palliative care or hospice.
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Reply to Sandra2424
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OK, much of this is DONE. Mom is currently in assisted living, so let's move forward to where you are at NOW.

The problem here is that your mother is either more or less cognizant. This makes it seem as though ALF is proper placement. HOWEVER she is now assessed as incapacitated. That means she may SEEM cognizant but is NOT. And it may be time for medication.
Sometimes a low dose anti-depressant works.
Sometimes it does not.

IF your mother has any capacity at all it is time for a talk and you should do it with medical or a social worker there, or the administration. Mother needs to be informed that this "acting out" will land her in memory care where she will not like her roommate or the conditions. That she will get this one warning, and that then she will be in Memory Care where her money will quickly disappear and she will be prey to less good facilities.

Now if doc is right and there is really an incapacitated woman here, this won't much matter.
And if medication, the second resort doesn't work either...................................................
That means she will go to memory care. And very sorry.

There's only one question here really, and that is one of just how much control does mom have over what she is doing. Either way, things are now in your hands and you are going to have to step forward with firmness and get it done.

You have ALREADY DONE SO MUCH. She is where she is because of your good actions. She is 99. She will soon be gone. Meanwhile you (and she with what little capacity she DOES HAVE) need to make the best of this that can be made.

I am so sorry. It's a new year. There is a good doctor here who finally recognized where she's at. There's medication to try. There are placement options. And she is in care and cannot leave it. That is a good good start. Helpless as you feel, you have been anything BUT helpless in this. You are doing GOOD.

Again, I am so sorry. This has to be utterly awful.
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