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My mom has been tested by two different doctors, taken the MoCA test twice (numbers dropping the second time). She lost her license per her doctor and the Easter Seals test and is furious, saying she can drive safely during the day. She forgets the names of her siblings, grandchildren, etc. She thinks there are people in her house having a party in the middle of the night, and that my sister and I sneak new clothes into her closet to get her to dress better. But she doesn't think she has dementia and pushes back, saying "All my friends forget things sometimes!" What should I say to her?

TeethGrinder,

Your mother cannot live alone anymore. Not even for one day. If her license had to be taken away and she thinks people are partying in her house at night, she's not capable of safely living by herself anymore.

Medicating her to keep her stress and anxiety levels down is a good idea. Though introducing a new medication to her now would be a bad idea if she's alone.

I was a homecare worker for a long time and had many care clients with every kind of dementia. Many looked fine and you would think nothing at all was wrong with them, until you were around them every day. In my experience, the ones with anosognosia are the hardest cases for homecare caregivers to deal with.

It would probably be a good idea to look at a few assisted living and memory care facilities for your mother. Take a few tours. Often there are waiting lists to get into these places too. It can't hurt to have a couple of irons in the fire if homecare doesn't work out, and based on what you're saying here it probably won't. Your mother will become more delusional and more paranoid as time goes on. Whatever caregivers you bring in will get accused of stealing if your mother can't find something that she lost 50 years ago, gave away, or never had to begin with. Caregivers turnover in cases like yours is high. Sometimes it's better to go straight to assisted living while the person still has enough mental faculties to acclimate to the place. You've got a lot to think about.
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Reply to BurntCaregiver
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My mom sounds VERY similar. We did get her to move into AL a few months ago. The challenge right now is she does not understand why she is there, when everyone around her seems to have a walker or some physical issue, and physically she is in pretty good shape! She does not believe her memory is any worse than any other 84-year-old, despite getting increasingly disoriented. She still gets angry from time-to-time about not being allowed to drive anymore, too. It is very frustrating for us to try to help her be more accepting of her situation and her limitations when she believes she is perfectly fine.
I don't have any real advice to offer, just sympathy from someone who gets it!
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Reply to LilacGirl
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It's part of the disease. It's time to start planning for her immediate future. Getting rid of the vehicle and making sure she is never left alone is a start. You might want to talk to her doctor about anxiety meds.
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Reply to JustAnon
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Don’t argue with her or try to convince her of anything. It’s a lost cause. Validate her feelings briefly then redirect. For instance, If she says “I’m a great driver!” Respond “I know it’s frustrating that Dr X said you can’t drive any more. Where did you want to go?” If she then says “just give me the keys!” Say “We can’t do that until Dr X says it’s OK. Let’s go have a snack/ water the plants / watch the birds/ fold some laundry/ whatever.”

If she forgets family names or confuses people, ignore it or be reassuring. “That was Karen, your niece. She does look a little like Marsha.” If she keeps doing it, just ignore if you can. As long as she isn’t hurting herself or anyone else, what does it matter?
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Reply to Suzy23
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It’s not important that she believes her diagnosis and trying to convince her is inadvertently cruel. She has anosognosia, look it up, it’s not denial or being stubborn. She’s lost the ability to make sound judgments. This is the time she needs her family to make good decisions in her best interests. Hopefully one of you is her POA for medical and healthcare decisions. The car needs removing if it hasn’t been. She needs medication to help with the hallucinations she’s having and calm her agitation, something to discuss with her doctor. No more reminding her or trying to make her remember what she cannot, or discussing her condition around her. I’m sorry you're all in this new, sad place. Learn all you can and know mom will likely need help other than family. I wish you peace
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Reply to Daughterof1930
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TeethGrinder65 17 hours ago
I think you hit the nail on the head, Daughterof1930. The car is gone, given to a family member. I do have POA. She won't take the medications the doctor gave her, due to the anosognosia (thanks for that word, btw). We are not planning to put her in a home…we'd bring in a caregiver. Unfortunately, we are waiting for the next catastrophe. Money is an issue, and we can't afford to start too early. She refuses to use a walker, disposable underwear, anything that might "mark" her as old. For now, she lives alone, and every other month, her brother lives with her. I live very close by and see her every day. But God, I'm tired and just wish she would die already. She was never a good mother, she's not grateful for the care my husband, sister and I give her and is increasingly angry.
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