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Hi, I am new here but I felt the need to search for possible solutions to my situation or, maybe not solutions but people who have experienced such circumstances as I am currently experiencing & I just happened to come across this website and am so glad that I did. My mother is currently on hospice and she suffers from COPD and she smoked cigarettes up and until about a week or so ago and now she is declining in health pretty rapidly. She is also hunch back and she stayed in her recliner until about a month or so ago and then she was moved into a hospital bed. It is just myself and my twin brother here with her and he is constantly upset about everything when it comes to her health and the people who work for the hospice company. I probably should back up and let it be known that he is a manipulative narcissistic sociopath who knows everything, is always right & he has an excuse for everything if and when you take issue with him. Growing up I always knew that both of my brothers could be very judgmental of others and they never held back when it came to criticizing anything for which I did but, it wasn’t until I had been gone for 15 years and after getting out of a relationship I was in I came back to my mothers house(which was a huge mistake) that I realized the depths of his ways and ever since it has been a nightmare for me while trying to keep my sanity, work a full time job and, take care of my mother too but, my twin brother has just become so hard to deal with that it is unreal. I know that he is not ready for what’s coming when our mother passes because she has babied him his entire life and he has hardly worked a day in his life. He’s been a victim for so long that it’s made my mother think that he cannot take up for himself so she has always taken up for him and defended him on everything. It was probably about 10 years ago that my mother, who is a neat freak, attempted to climb up on the toilet in the bathroom so she could dust the top of the valance on the curtains and she fell and broke her leg real bad and had to have 2 surgeries. Afterward she went in the swing bed and I and my brothers made the agreement that seeing as I was working a full time job and my twin brother wasn’t working at all, that he would be tasked with taking care of our mother. So, now that she is rapidly declining and hospice has came in he is just unhappy with the entire situation and keeps saying that she needs to go to the hospital and get a drip put in her. She has lost so much weight, won’t eat anymore and drinks very little liquid which is to just swallow medication or to get the taste of the morphine from her mouth. She has bedsores on her and it’s gotten to where it’s more than we can handle to get her moved around in order to clean her and bathe her and the hospice people had said that they were going to start coming daily but no one has showed up over this weekend and he is just coming unglued. I am not happy that they told us that they would come daily and haven’t showed up either but, I am more laid back about it and I am not wanting to make things more complicated than they already are. An on-call nurse contacted me and said they would be by sometime this evening and now my brother is saying that he is going to give this guy a piece of his mind when he gets here and I am just tired of all the fussing. There is only our niece besides the two of us, my oldest brother, her dad, is in rehab and my twin brother has sent her all kinds of rude text messages about the situation yet, she has a new baby and is in nursing school and lives 2 hours away so, she can’t just come help all the time. Anyway, I’m just about at my wits end with his constantly being unhappy with everyone and I just want peace and for my mother to be as comfortable as possible. I thought that hospice was on call 24/7 yet they have been dismissive towards us but I’m sure it’s because he’s been ugly to them at some time or another. I’m just tired of all the fussing.

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AJLZ88,
I just read your follow up.
I'm sorry this has been so hard on your and your family. It brings up so many emotions when a loved one, especially a parent, is dying.
For your brother, it brings the added stress of losing his financial support.
I hope you all find a way through this, with some counseling if you can.
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Reply to CaringWifeAZ
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You are dealing with so much. It is often hard to see things clearly and make decisions when your mind is clouded and you are mentally drained.
I'm going to side with your brother on this - your mother should be in the hospital - or at lease a skilled nursing facility.
And your brother's mental health is not your problem to fix. You can not.

You put yourself in this position when you moved back in with your mother and brother, and you have been dealing with an unhealthy family dynamic for a long time. It's time to let go. Let go of your mother's care. She probably doesn't have much time left. Let her be cared for in a professional care setting, and just spend time with her as a (daughter/son?). Plan your next move - Out of your mother's house. Away from the brother. And allow your mother the peace and comfort she deserves and you want for her. All this fussing and fighting over her care is not making her feel any better.
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Reply to CaringWifeAZ
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So glad you found this site. I too have struggles with my brother who has complete control over our mother's care. It sounds a lot more intense for you as I don't live with my mother though I am not able to a lot of things I'd like to do for her.

Yikes you are in a difficult situation that you never thought would happen. It is understandable that you have reached your limit. Just acknowledging that is a start but now what?

You need to realize that you will not change your brother. So what to do? Not easy but you need to take care of yourself first. One thing is learning boundaries which is about what you will do or not do in terms of your brother. As hard as it is you need to response to him kindly but firmly in what you desire and need.

Who has POA (power of attorney) for your mother? If you do, it would be good if you are able to talk with your mother about what she wants or needs. Would your brother listen to her? From what I've read a narcissistic person can't hear and listen to another person as they are so wound up in what they think and want.

Do you have an objective person like a pastor/priest or therapist or coach that can help you work through this difficult situation? You need the support of others outside of the situation. You can't do this alone.

I'm sad that your hospice situation has not been good. I don't totally understand your mother's situation other than she just stopped smoking and isn't mobile. If she is bedridden it is so so important that she is turned every few hours and has medication for her bed sores. Can you get help from her doctor or maybe the agency the hospice nurse(s) are working with?

Hang in there! My prayer for you is that you find the way to care for yourself while caring for your mother and dealing with your brother.
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AJLZ88: Prayers forthcoming.
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Reply to Llamalover47
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So sorry about your Mom and that you have to deal w your brother for the time being. Don’t let posters give you guilt or pressure to attempt getting along w your sociopathic sibling. He’s not going to get along w anyone.Sounds like he needs her to stay alive so her social security keeps coming into ‘their’ household. Also, if you don’t know what’s up w Mom’s finances she could have alot of debt fr ‘helping’ out your brother that will be apparent when she passes. If he has a car loan she could be footing that bill,too.
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Reply to Bellerose63
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I understand your position and point of view, but YOU need to try hard to also understand your brother’s point of view too. I have twin boys, and as their mother, it would absolutely break my heart for them to be fighting and so angry at each other. I am sure many issues go back to your childhood.

I am so sorry that you are losing or have lost your Mom, and I am so sorry for your brothers too. Please try to heal these wounds with each other if possible. You are all feeling the same loss of the same mother. It is hardest on whoever was closest to her, so please have some compassion and patience with him. I am sorry if your mother played favorites, I am not sure if she did, but I am sure she lives all of her children. Please know that she loves you and appreciated all that you ever did for her! I know you don’t agree with her babying your brother, but sometimes that just happens. It feels to me like my twins were just in their strollers, now they are in their 20’s! Yes, I still baby them.

It is always a shame when families fall apart, and when family members treat each other badly. I know that sometimes it can be fixed, but usually too many things have been said or done to repair the damage.

just imagine how happy your Mom must have felt to know she was having or adopting twins! Twins should always have a special bond. Please try your best to fix it, if it does not work, at least you tried.

Best of luck to you and your family.
🙏❤️🍀
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stuckinVA Oct 18, 2025
Healing a relationship takes both. To encourage someone to excuse years of bad behavior is belittling the toll it takes on the abused’s, yes it is abuse, well-being. As someone who has had to protect herself from abusive family members your reply lacks awareness of the role her brother has in this.

AJLZ88 you have to take care of yourself. I encourage you to seek out some counseling to help you through the grief of your mother’s passing, but also the grief over the breakup of your family group.
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Just read your response below. So glad mom is in hospital now and the hands on caregiving is being accomplished there. Please feel no guilt on what you should or should not have done, you’ve done your best, no one could expect more, this is a learn as you go role and none of us get it perfectly right. Our brothers seem to have a lot in common, when my dad got close to death, mine completely disappeared too. He also leached money from my dad for years. Just don’t communicate with your brother now, at all. If he wants updates he can come to the hospital and get them himself. Ignore the texts, I do it all the time with mine, it preserves my well being. Absolutely cut off the money. I was dad’s POA, on his banking, and executor of his will. The financial abuse ended when I stepped in, no apologies. Spend this time just holding mom’s hand and reassuring her of your love and care. Do not worry about being present for the actual moment she dies, she will leave this earth exactly when she’s meant to, you have no control over that. Our hospice nurse told me the day before my dad died that I needed to understand that my dad was already gone, his body just hadn’t quite gotten the message yet. It was very true. You will go on to have good people in your life, who are kind and positive, don’t let awful siblings ruin it for everyone. I wish you much healing, rest, and peace
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Reply to Daughterof1930
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They are available by phone 24/7 not sure if they work on weekends. But they should be coming everyday now because seems Mom is actively dying. Those sores are probably Kennedy ulcers meaning Moms skin is breaking down. Here passing probably be soon. Make sure the nurse is aware of them.

You have your hands full with brother. Please, do not feel you need to be responsible for him. After Moms passing, I would find another place to live. I will assume that older brother was made Executor. If so, just let him handle everything.
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Reply to JoAnn29
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I would talk with someone at the hospice. Even just to discuss your brother's behavior, as I am certain they not only deal with the patient but also family members.

What I learned is that after my brother had been living with my parents for years, they sort of became entrenched (or perhaps enmeshed) and learned to live with his behavior.

Your brother might see your presence as a threat to his relationship with your mom--meaning that you might expose his behavior for what it really is.

Reach out to hospice and explain the situation. Let them know that you would like to speak to someone about your family. I hope this helps.
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Reply to DaughterofAD3
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Mom was enrolled in hospice twice. The first time she threatened me and the hospice workers: chaplain, social worker and RN in the house.

I was scared of my sister and the hospice workers were scared of my sister.
With the second enrollment 6 years later I eventually moved Mom to the hospice facility. The hospice facility had security.
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I'm sorry that your mom is dying and you're having a difficult time. It appears that your twin brother has been mom's primary caregiver for a while. He's probably grieving, too. I hope you can both cut each other some slack.
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Reply to Rosered6
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I’m sorry you’re in the place and time of losing your mother. I took care of my dad during his time on home hospice, also much of the time with a mentally unwell sibling around, and well remember the strain during such a sad, hard time. From your description, it does sound likely that the hospice staff has found your brother difficult and may be avoiding being around. You cannot fix this, just like you cannot fix him. Get away from him entirely and call the hospice, let them know your brother is mentally unwell and your awareness of him being hard for them to deal with, ask if mom can receive hospice services in another setting. Sometimes there is a hospice in patient facility or it can be done in a hospital setting at times. Make sure they know her current level of function and about the bedsores and positioning problems. Ask for advice. Back in the home, do your best to tune out and ignore brother, don’t argue or discuss anything with him. I had to do this with my brother, he thrives on an argument and needing to be right, so he got no audience from me. Rest at every opportunity, don’t worry about being present for the moment mom leaves this life. Death is a solo journey and mom will go exactly when she’s meant to, not depending on anything you do or don’t do. Hold her hand and assure her of your love and care. Again, let go and tune out others. I wish you much peace in a tough time. When this ends, decide on some firm boundaries with difficult siblings, this has been vital for me and will be for you as well
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AJLZ88 Oct 15, 2025
Thank you so much for your reply. I found it informative and from the heart. Things have not gotten any better except for the fact that I had the ambulance come and get my mother due to the fact that it was just more than we could handle. She had gotten in such bad shape that when the hospice nurse finally showed up Monday she made the decision to put her in for GIP care. The thing is this has been pretty traumatic for me and I am having a really hard time processing it all and am racked with guilt. Should I have called the ambulance sooner? Should I not have started the morphine? It’s just all went down hill so fast and I wasn’t expecting her final days to be like this. Last night, at the ER, they told me to call in any family that wished to say goodbye and that it would be maybe an hour she had left to 6 hours. Then that turned into through the night. Now they are saying that they cannot believe that she is still hanging on. She looks so so bad. She has lost so much weight and looks like a skeleton laying there. She moves her head every now and then and gives a look of agitation on her face and I just told them to give her whatever amounts of medicine they felt necessary in order to keep her as comfortable as possible. The guilt I feel is due to a few things. One being that I was hesitant and reluctant to get her to the hospital because I knew that once she was there any and all help from my brother would cease to exist just as it has in past experiences when she or my grandmother or my dad had gone in the hospital. He was fussing all weekend about wanting to get her to the hospital but the only reason was so that he wouldn’t have to deal with it anymore. He always said that he couldn’t handle it yet, one, he’s never tried to so how does he know whether he can or not and two, he was handling it when my mother was here at the house so, why wouldn’t he be able to there. Anyways, when I got home last night I went to cleaning up and washing clothes to try and get my mind off of everything and I found myself squalling like a baby til 4am this morning while my brother slept like a baby til late this evening. Then, he gets up and immediately text me telling me that he didn’t know if I was aware of it or not but mom gave him $75-$100 every month when she got her money. I couldn’t believe he would text such so I text him back and told him that yes, I was aware that our mother was giving him a lot of money every month and I said I guess you better get what you can while you can huh? I said yea, I’m sure mom would really want you to have some of her money when you can’t even get off your butt and go down there and see her and that I couldn’t worry about that and that all I could do is worry about what I did. I should maybe mention that I am on my mothers checking account with her and I pay all her bills for her each month and I would then give her money just to have, which was what I meant when I said that yes, I was sure that she was giving him a lot of money every month. I knew that whatever amount she would ask me for was being given to him. Whatever she would have leftover I would by her groceries as needed but, the majority of the time she would be asking me to get her more out of the bank so, I knew where it was going but, they would think that they were hiding it from me so I wouldn’t fuss about it. I took her debit card away because he had gotten it and had done major damage to her account on a couple of occasions for which took me 6 months to get it straightened out this last time he did it. I told him awhile ago after he text me what he did that this was the last time he would get money from me and that I was absolutely not going to support him when she was gone. This has all just taken a toll on me and I’m not sure that I will ever be right from the manipulation and the deceit and between my twin brother and my older brother they’ve both made me to where I dislike people altogether. I’ve just had a very bad week.
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Hospice offers social workers and chaplains to all family members starting on admission and on for 13 months after death. Ideally you and your brother would attend, but if he won’t, you go.
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