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My 85 year old mom started having issues for last the 2 years with keeping her house clean, mice were getting in, rugs laid out everywhere, using the remotes and phone, and also had severe hearing loss and incontinent. We didn't know what was going, she also had been having several falls and walking problems, was using walkers, partly due to stenosis. but she still drove her car and paid bills, but having a harder time understanding when talking to her, and did get a ticket in her car. One day she ran her car into side of garage and was disoriented and confused so we took her to the ER. They did scan and said she had 2 minor brain bleeds, maybe from earlier fall., and encephalopathy. After 3 days she was sent to a skilled nursing facility for rehab. She wanted to go home though and I should have taken her home, I could have moved in with her. She started going downhill and causing trouble when they tried to change her briefs. She was then kicked out and sent to hospital for falling. They did scans and said front and side brain atrophy. She was then sent another rehab place, fell there and was sent to hospital. She was confused and not talking right but could still recognize family. Had a brief problem with aspiration pneumonia. She kept wanting to get out of bed at night at nursing facilities. and fight with aides. My nephew got her home once with a nursing aide, but she fought with her.This continued and she kept falling, last time out of a wheelchair and hit her head/small brain bleed. This was all so confusing at the time and we didn't know what to do for 4 months. During the last long hospital stay we finally got a neurologist, who mentioned atrophy but couldn't say what type of dementia she had. Two hospitals recommended hospice, the last one said hospice home and 30 days estimation. I had one other family member and her friend were involved, so we finally said OK, although I was not happy with it. We felt it was unsafe for her to be home by herself with her falls and her primary care doctor said this also. She passed back in September and I have been second guessing this the whole time, thinking if I could have just got her home, she might have improved. Once she started going to rehab places, she just went downhill fast. I keep thinking I didn't do enough, we never did get a dementia diagnosis. I have been upset by all this and on leave from work, I wish now that I had not had to make any of these decisions. With hindsight, she did have some dementia from some cause, but how could she go from driving and to store earlier last year to hospice in September. I keep going over it and wishing we had tried harder to find an answer. Thanks for any insight...

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Lealonnie gave you some great advice. My mom had a TIA and that's when I realized that, even though she lived next door to me, she needed more supervision. I started going over every day and staying for quite a while. I still had a teen aged daughter living at home. Other family members would come and be with her, too. My brother lived an hour away, and sometimes he would take her to his home so that I could take a few days to take care of hubby and daughter more. But, then she had another stroke, more serious. Daughter had married by now, so I moved in with Mom. She had stenosis and never knew when her legs would just not cooperate and she'd take a fall. It would happen so quickly and without warning, she wouldn't even have time to sit on her rollator. She fell one night and "broke " her face. She was hospitalized, then Rehab, and when we went for follow up care, her doctor told her that he felt she needed to go to NH. She declined, saying she was done with hospitals and doctors. He told her that she gave him no choice but to put her into in-home hospice, because she needed more care than I could give her, due to my own health issues. Mom was 92. So, hospice started coming. Things went downhill pretty quickly. She fell again, getting out of a rented hospital bed, and broke her wrist. Within 3 months, she passed away. Hospice was a blessing. They helped us every step of the way. Mom's dementia began to be noticeable after that first TIA. But it really sped up after the fall when she damaged her face. She was tired of living and had a DNR in place. The bad falls began in August of 2020 and she had been depressed because of being homebound from COVID-19 restrictions.
The point is, once older people start taking falls, it's just a matter of time before it takes a toll on their bodies. It's a lot harder for them to recover from the falls as their body isn't as efficient at mending.
Mom wanted to die at home. We made that happen. I think that she might have died sooner if we had placed her in a facility.
There are so many scenarios and we have no idea which one is best, so we make the best informed decision we can and go with it. It's hard when a LO passes and grief can take us down the "woulda/ coulda/shoulda" road if we let it. I did have trouble, but there were some other factors that came into play at her death. It took me quite a while to get back to a peaceful place, but I think I've made it.
Don't blame yourself for decisions you made. I'm sure you made the best possible decisions at the time. You did what you could, as well as you could, and there was an inevitable ending. Give yourself time to mourn and heal and find peace in your life.
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Reply to MTNester1
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Kellot, these things can just progress no matter what. If you had taken her home, you might be writing to us that if only you had put her into a care facility, she might have improved and still be here. Your mother would not want you second-guessing and dwelling on this. She would not want you to be putting your life on hold. Please realize that you did the best for her under the circumstances. I wish you peace of mind and heart.
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So sorry for your loss. Take comfort in knowing her miserable ordeal is over. It was never going to get better, no matter what you think you could have done. Don’t feel guilty. It was her time.

(((hugs)))
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The answer was dementia for a much longer time than you'd realized. She shouldn't have been driving at all, as evidenced by tickets and crashing the car into the garage. She didn't progress from "driving to the store earlier last year to hospice in September." The dementia had been progressing, as dementia does, unbeknownst to you, for a long time. She was falling, hitting her head, going in and out of hospitals and rehabs, displaying obvious signs of dementia and agitation the whole time. She was just adept enough to live on her own for 2 yrs w/o attracting too much attention, yet dealing with mice, lack of cleanliness and incontinence. She likely had vascular dementia which is the most aggressive of all the dementias, and it was a blessing she didn't last for years more while declining and suffering.

Taking mom home would've done nothing to halt the dementia process at all. You did nothing wrong and nobody killed mom except circumstances and disease.

My sincere condolences on your loss. Don't beat yourself up over allowing mom to live life on her terms, till the end, and to avoid Memory Care or an extended stay in Skilled Nursing. My poor mom hung on to 95 yrs old, suffering daily with dementia, praying to die daily. It was awful. Be glad your dear mom was spared such a thing, at least.
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