My father with dementia is becoming a nightmare to live with and care for. I guess I’m preaching to the choir to say that I do more for him than I do for myself, and I’ve limited my own life to try to make him happy and more comfortable. My reasoning is based on the fact that my parents went out of their way to make me happy and successful as a youth and I wanted to repay their generosity.
My dad is currently in an ordering around phase. An example: “I’m hot”, so I turn on the A/C. 2 minutes later, “Who’s in control of that thing, I’m f*%#*ng cold!!!!”, so I get up and turn it off. 3 minutes later, “ I’m f*%#%ng hot”, and the circle continues all day. I let him know what I’m doing every time I go to change the settings.He doesn’t get up once to change them himself. I wonder if he knows he’s working me or if he really feels helpless or if he’s getting off on bossing me around.
I don’t say a word in situations like this. I don’t argue because I know it’s a losing proposition every time I do. I used to argue with him or try to reason in it got me nowhere but angry and frustrated and on his bad side for a couple days, which was not worth the argument or standing up for myself. I found that it’s easier to just give in and just not argue. But when I don’t stand up for myself, my self– esteem suffers. My self– respect suffers. I just feel like I’m being ground down to a nub.
Today he intentionally said something very personally hurtful to me. He said it was one of those things you think about which you never bring up in the open. And he said it with a smile. It was like he completely lost it, like he was taken over by an alien. Then two minutes later, he raises his hand out to me to have me help him walk over to the other side of the room, completely depending on me, the person who he spewed venom at and apparently has no respect for. It was mind blowing how disconnected he must’ve been.
I guess my question is, how do you swallow your pride over and over again and take bad treatment with a smile, and seemingly let it roll off your back for more of the same tomorrow. I’m dreading tomorrow morning because means it’s another day of having to spend it with him and his antics. Thanks.
PS - he lost his driver’s license a few months ago, which seems to have changed everything in his life. Although he’s not mentioned it much, I think it hit him really hard. I think he might be jealous that I still have one. He’s become very me me me and my my my.
Suspicion and Delusion
A person with dementia may suspect or accuse others of theft, infidelity, or other impropriety. This can make for some awkward situations at family gatherings, where the patient may openly accuse someone in front of others. Unfounded suspicion, and more broadly delusion, can take many forms, including believing that someone is following or spying on them, that family members betray or steal from them, that the words and actions of public figures are directed at them personally, or that the events depicted in books, poems, newspapers, and movies are about them. While such beliefs have no basis in reality, the patient nevertheless believes them to be true. Delusional thinking usually occurs early in the course of dementia progression and may persist for a long time.
Help Others Respond Appropriately
· Make sure everyone understands that the patient’s behavior is not malicious and that it is dementia that is at the root of it.
· Give the accused party a heads-up so they are not taken by surprise in the event that the patient openly accuses them in the presence of others.
· Do not take accusations at face value, and do not take offense, respond defensively, or try to fight the accusations.
· Deal with the patient with understanding and compassion. Stay cordial. Be more of a listener than a speaker. Keep in mind that these beliefs are quite real to the patient.
· If the patient has gifted an item and now believes the item has been stolen, ask the recipient not to wear the item in front of the patient, or better yet, return the item.
Dealing With Delusion
· Do not try to convince the patient that they are mistaken. Remember that their judgment is impaired and they are not able to follow your reasoning. Trying to convince them may even lead to aggression.
· Try instead to find the reasons behind the suspicion and, if possible, eliminate them.
· If the patient believes something has been stolen, help them find the missing item or replace it with a new one. If they have gifted an item, ask the recipient to return the item.
· Be mindful of your demeanor. Speak in a calm and reassuring tone. Stay relaxed and help the patient calm down.
· Do not endorse suspicions and do not try to refute them. Instead, try to distract the patient with something else.
· Use relaxing and easy activities, like a walk outside, to divert the patient’s attention to something else.
Stop plugging your book. This is not a promotional website to boost your book sales. Tell your literary agent (if you have one) to arrange a book tour and signing if you need to boost sales.
Also, with all due respect to you the advice from your book is no different than any other fluff and crap every other "expert" on dysfunctional senior dementia behavior hasn't been pushing for the last 60 years. If it worked, there would be no need for support groups and forums like this would there?
Unless you know what it's like to be bullied, berated, belittled, lied about, accused of horrific crimes like you're the very devil, disrespected, and treated like you're less than garbage while at the same time having to live as a slave to someone's every need on a daily basis - you really should not be giving advice.
There are reasons why elder abuse happens and so many times both the elder and the caregiver are victims. That reason is because a person can't live in abuse without becoming abusive themselves. Sometimes they abuse themselves with alcohol, drugs, food, smoking, physically hurting themselves, or engaging in dangerous and risky behaviors.
I have lived with an abusive senior. I have been a caregiver to abusive elders with dementia and have seen what they can do to a family member when everyone is living in one house and even when they aren't living together.
You sound very much like Teepa Snow, Samad. Like Teepa Snow, your advice sounds good and works in theory but not in practice. It may be useful if the senior with dementia had a staff of round-the-clock caregivers. It will not work when there's one caregiver and maybe a homecare aide coming in. No one has unlimited patience.
It's obvious you have never actually been a caregiver living with an abusive, demented elder. Neither has Teepa Snow. If either of you have, you's be giving very different advice.
Also, I would not say this if I have not seen and heard it many times with my own ears. People with dementia controlling their abusive behavior around certain people and in certain situations. This is often referred to as 'Showtiming'. If a person still possesses this level of control, there should be some type of consequence for their abusive behavior. Like being ignored, or appropriately told off, or a bit of shaming.
I was waiting for any response to my question about any ideas how a person can change in a difficult situation like you are in.
I assume most of us has heard about BOUNDARIES. I didn't understand it well at first, thinking it was putting a boundary on someone else but it is really about me setting up my own boundaries. What can you do when your Dad talks to you in a rude and disrespectful way?
Would this be a possible scenario? "Dad when you talk to be like that I feel hurt and disrespected. If you continue talking that way I'm leaving the room."
Or just simply say, "I don't like how you are talking to me." Then leave the room.
Please take care of yourself and teach your Dad how you want to be to treated. You are important part of his life but it does not need to be abusive.
Can you change your father? NO
Can you change? YES
But you ask how? Any thoughts?
God Bless you.
Stop visiting him then. Or cut down your visits to once or twice a month and don't take him anywhere.
If he can't be distracted and can't enjoy anything with you because all he can do it mock you or put you down, stop visiting him. Let the administration staff of the facility keep you updated on him. Why put yourself through it?
Now, with moderate dementia, it feels as if she’s slipped back into old patterns of emotional abuse. She becomes furious when I advocate for her at doctor’s appointments, especially when she can’t remember what’s being discussed. If I have to tell her “no” to something, it feels to her like the end of the world. Too often, I’ve been her emotional whipping post.
I reached a breaking point when my brother responded to me the same way as I tried to talk with him about Mom’s care. In that conversation, he told me he was handling her well-being and not question him. So, despite living just five blocks away from Mom, I stepped back. I stopped trying to do it all for her and chose instead to focus on protecting my own well-being.
This journey is incredibly hard, and no two experiences are alike. My hope for you is that, in your own way, you find moments of peace along this longest journey.
You did the right thing. This is what I had to do as well with my mother. I will not tolerate any abusive behavior from anyone. I put up with that for too long. I don't care if someone has dementia or mental illness or anything else. No one has to tolerate abuse or live with it. Dementia or mental illness can be an explanation for abusive behavior but it does not excuse it.
You did right stepping back.
You DO NOT cater to them or humor them. You make them wait for things. I don't mean make them wait all day for food or their medication. No. I mean if you are the only person who shows up to do for them, they live on YOUR schedule. Not the other way around.
You NEVER take the bad treatment with a smile. Never. When he's acting up, totally ignore him. If he's really going at you, give it right back. Tell him to shut the hell up because no one cares what he thinks. Then walk away and pay him no attention whatsoever. Let him bark demands and orders until he wears himself out.
Some years ago I worked in a nice AL facility as a staff supervisor. Every time I walked by a certain resident who supposedly had dementia, she would always say snidely, 'There goes that fat b*tch'. I let this go on for some time and ignored it. One day I just stopped in my tracks, got her backed up against the wall (I did not put my hands on her), got about an inch from her face, staring her right in the eyes and said, "What did you say to me?" Of course, she wouldn't repeat it but instead got very flustered and pretended she had no clue what I was saying. Then rather loudly I said in her face mind you, "That's what I thought". She never said a word to me ever again and I worked there for about another two years or so. DO NOT tolerate your father behaving verbally abusive to you.
Start looking into memory care facilities to put him in. No one has to tolerate or live with abuse even when the abuser has dementia. Dementia is an explanation from bad and abusive behavior. It does not excuse it or make it acceptable. For your own sake, put him in memory care.
And, you are jeopardizing your own self-respect and self-esteem by jumping up to change the thermostat every time he complains! Stop doing that! Let him complain, and try agreeing with him; "Yes, it is a bit hot in here." Period. Don't jump up and attempt to "fix it" for him. You wonder why he doesn't get up once to change it himself. It's because you're doing it! Let him change it if it makes him feel better. Give him some agency. Is he able to get up and change the thermostat? Does he know how to do it correctly? Let him.
Meet his other complaints in a similar manner. Simply listen to him, and validate his feelings, or do nothing. Empathize without trying to fix everything for him.
He needs to work it out and feel as independent as he is able. He is probably unhappy about a lot of things, much larger than the minutia he complains about. He is getting older, his health is failing, he doesn't have control over his mind and his brain function. That must be scary and unnerving for him. He is trying his best to function, but has forgotten how. You can help guide him to better behaviors, without making it an argument. You can give him small tasks, such as folding dish towels or matching socks out of the dryer, something simple enough that makes him feel useful and productive. Use whatever skill he has and give him a related task. This will help keep him occupied and he may forget to complain. Try walking away more often, if there is nothing you can do or really need to do to placate him. Just turn around and take a little Me-Time.
Don't try and argue with him when he says something hurtful. Just walk away.
You say he was a good father. He doesn't want to hurt you, he just doesn't have a fully functioning mind. It will get worse. Brace yourself. And find help if it is more than you can do! You are not letting him down by providing professional skilled help for him!
It was hard making this decision, but my mother was not safe because her nighttime wandering and pulling things down off of high shelves, etc. made me fear that she would get hurt at night and I would not find her for hours. Even though she relied heavily on a walker during the day, at night she seemed to have the ability to stand up and walk all over the house. I am glad I decided to do it because I can just be her daughter and enjoy our time together. Being a caretaker is not in my nature and it was making me behave in ways I was not proud of and it was taking my life from me, which she would never want!
When she started to get a little testy because she was frustrated with something, I would say something like, "I can only imagine how frustrated you must feel right now. Can I help with (whatever it was)?"
Or I would let her know that it was normal to feel (angry/scared/whatever), because getting old is hard, and it's not for sissies.
Whenever I could, I would somehow make a joke or lighthearted remark that would change the tenor of the interaction.
Sometimes, after I was finally able to internalize not taking things she said personally (THAT took a monumental effort!), her "antics" would seem so ludicrous it would be all I could do to contain my laughter at the absurdity of it all until I was out of earshot of her.
In their lucid moments (which can sometimes be few and far between), they know something's wrong, even if they don't know what it is.
Sometimes just being present in the moment with them, being part of whatever "their" reality is and letting them know you care and understand, can help reduce the temperature.
Of course, not always. It's definitely a matter of on-the-job training. You learn what works as you go. Until it stops working... because their brain takes them on a new path. So you pivot and try something else.
My mom would many times say what would normally be hurtful, out of her own anger at not being able to do things for herself anymore. I would tell her, "that was a mean thing to say," and then just go on doing what needed to be done for her at the moment.
In her final year or so, she would often tell me I took such good care of her that she would live to be 100, and I would smile and say "Maybe so!" all the while thinking, "Dear God, please no!" She would also say she didn't know what she would do without me. I would respond, "I don't know. Let's not find out, shall we?" For some reason, that always tickled her.
I was one of the lucky ones. My efforts eventually paid off, and we had a good relationship at the end of her life. She stopped being able to speak at all about 24 hours before she passed. The last words she ever spoke were, "I love you."
I suspect most family caregivers don't get that at the end. Nevertheless, I wish it for everyone on this forum.
Parents are responsible for their children's wellbeing, not the other way round. Also, for the majority, parents have a finite time when they are ultimately responsible: children grow up and leave home, then they are responsible for themselves.
Also, you can't make your father happy; unfortunately, it isn't possible. He doesn't need his son to turn the a/c up or down, or to lift him from his chair - a carer can do that - nor does he appreciate it.
Lastly, you can't make your dad better. His condition will continue to deteriorate, yet he could live many more years, robbing you of your own adult life. Being your dad's main carer isn't good for you and isn't contributing anything meaningful to your dad's life.
Repaying your dad for being a good father to you would be better done by you assisting him into a suitable facility and being an advocate for him. No, they wouldn't constantly jump up to adjust the a/c, but all reasonable care needs would be met.
This would enable you to continue to be his loving son who visits his dad once a week.
If you keep this up, you will become a shell of the man you once were. You will end up with caregiver burn-out and be less able to look after yourself, let alone your dad.
In the meantime, you deal with your dad with humour and a constant stream of words that counteract what he's saying. When he gets annoyed at you for talking, make a joke out of that, too. Or sympathise with him, even while you're not doing everything he's asking of you. And stop jumping at every demand of your dad's. Realise how unreasonable his constant demands are.
While doing this, find him a suitable facility for his health and care needs. Stop doing what you're doing. Ask yourself what would happen to your dad if this constant care runs you into the ground and makes you ill.
24/7 is not working any longer . Consider adult day care , help coming in so you can get out part of the time.
Or Dad moves to assisted living , which sounds , imo , to be what is needed.
You’ve been more than generous . But it’s time for a change.
Parents are supposed to be good to their kids and teach them to be self sufficient adults, that’s their job . That’s apples compared to the oranges of taking care of an elder with a broken brain .
In the mean time , tell Dad you can control the A/C by your phone so you don’t have to get up . Pretend to use your phone . Leave a blanket by Dad .
The simple answer: You don't. You stop swallowing your pride. You take back control over how you choose to react/respond to unacceptable behavior in others. It doesn't matter that the "other" has dementia. It doesn't matter that the "other" is or is not able to control their behavior. You can no more control a dementia patient than fly to the moon. THEY sometimes can't control themselves. How will you?
So... since we cannot control others (even without dementia), and the only person we can control is ourselves... that's where we must begin.
I understand what you're going through, and I speak from experience.
When I decided I was going to be my mom's caregiver and moved in with her (still working full-time, remotely), I also decided I wasn't going to be a martyr to the cause. We had been in one of our "nice, getting-along" phases prior to my taking an increasingly hands-on role with her. I knew what I was getting myself into, in terms of her possibly switching to "mean Mom" at any moment. I also knew that if she were mean on a continual basis, and it became more than I wanted to deal with, I would say, "I hope you can find someone to put up with your behavior. It is no longer going to be me. Have a nice life." And I would have moved out.
Once I was living with her, when she would act out (which is probably inevitable for a dementia patient anyway), I would look at her and very calmly say, "What you said was mean, and I don't deserve it. I'm going to leave now." And I would leave her bedroom (which was where she basically lived the last few years of her life, and where we mostly interacted). She would usually fling some additional cutting remark at my back as I just closed her door and went to my room, or for a walk, or did whatever I wanted to do -- away from her.
She was still somewhat mobile with a walker during the worst of it. She could no longer fix her own meals, so when it was time, I would fix her meal, take it into her and set it up so that she could eat it, get the TV set up for her (she could no longer figure out how to work it) and I would then walk back out of the room. We watched TV together while she ate her meals, which made her happy. She would invariably say, "Aren't you going to stay and watch TV with me?" If I didn't sense a change in her demeanor, I would say, "No, you've been mean to me today without a good reason, and I don't want to be in the room with you. I'm going to have dinner in my room tonight." And I would again leave her to herself. She was also napping a lot by then.
Eventually, maybe a day later, she would apologize for her behavior. The first time she did that, I was absolutely stunned. I was in my sixties by then, and I hadn't thought I would EVER hear her apologize for her unacceptable behavior if I lived to be a thousand! It wasn't her way.
It's not necessarily likely that you will get the same response. Every dementia patient is unique, although with a lot of similarities. Caregiving for a dementia patient is hard. Full stop.
What you WILL get is a greater sense of control over the situation and be master of your own actions/reactions. And that's priceless.
Also: Before it gets too hard to care for your dad on your own (maybe now?), start looking into facilities where he could live, so you know what is available. And even without that, look into hiring some part-time caregivers to come in to help. Toward the end, I was looking at putting my mom into memory-care, but it turned out she was further along in her journey than I realized. She immediately went on Hospice (for the last four months of her life), and that was a help as well. I had already hired two great caregivers to give me a break during the weekdays for two months before Hospice. It made a huge difference.
Thanks for your time.
Even so, when the parent becomes abusive, you can’t have an obligation to put up with that. Set a firm limit that you won’t put up with abuse, and stick with it. Punish him by removing yourself from his immediate presence, or just flat out tell him that someone else will have to care for him. Investigate care facilities, or in-home care services. Take breaks, or just end the care relationship. You have an obligation to yourself.
Have a look at your own behavior now and whether that is also about “feeling good” about yourself. Are you earning compliments on your own behavior – from yourself or other people?. Your parents got their own pay-off already. You don’t need to suffer now. It spoils the whole deal.
Have a look at your own behavior now and whether that is also about “feeling good” about yourself. Are you earning compliments on your own behavior – from yourself or other people?. Your parents got their own pay-off already. You don’t need to suffer now. It spoils the whole deal.
BurntCaregiver has described over her years here how she has told clients to “shut the hell up” and even slapped them back. She also warned them that continued behavior would get them put in a home. For the first time, I’m seeing her perspective in terms of enforcing behavior that your dad needs to meet to stay where he is. It’s either that or dad goes to a facility where no one cares what he thinks and if it’s a snf they will get him on Haldol like one flew over the cuokos nest. If there’s any hope of correcting his behavior for a longer period, it starts with you stating to him that he needs to stop being a brat now or go to The Home.
Parenting is meant to be paid forward, not backward. Your parents provided for you, and you in turn do the same for your children, if you have any. Parents are responsible for planning for their own old age. If your dad failed to do so, that's on him, not you. He is not entitled to manipulate and verbally abuse you.
Are you living in your father's home? If so, make plans to move out. Do you have a job or income of your own? If not, start applying. If your father lives in your home. make plans to move him out. I know this is easier said than done, but you can read other discussions here about how to accomplish that.
In the meantime, stop enabling his abuse. Set the AC at a comfortable temperature, and give him a blanket. If he gets cold, he can cover himself. If he gets hot, he can uncover himself. If he drops or throws the blanket, he can stand up and pick it up. Or he can walk to the thermostat and change it. Meanwhile you stay out of the room and work on whatever you need to do to achieve living separately from him.
I wish you well. You deserve a normal full adult life, not one limited by an abusive parent. Let us know how things go.
It may help to remind yourself (over and over if needed) that the rudeness and venom you’re seeing is not the father you grew up with — it’s the disease talking. Dementia often strips away filters, impulse control, and empathy, and unfortunately, the caregiver becomes the safe target for all that anger and confusion. He lashes out because he can, not because you deserve it. That doesn’t make it hurt less, but it helps to see it for what it is: illness, not truth.
Practically, you can protect your self-respect in small but powerful ways. Some caregivers find it helps to step away for a breather when the cycle starts instead of rushing to fix things every single time — even just saying, ‘I’ll adjust it in a few minutes,’ can give you space and remind you that you have agency too. If possible, set boundaries where you can: maybe a cooling fan he can control himself, or a blanket within reach so he has some power back. And don’t underestimate the power of respite, even short breaks — your sanity matters as much as his comfort.
And please know: you’re not weak or failing when you feel ground down. You’re carrying an impossible load with grace, even if you can’t always see it. Your self-respect doesn’t come from how he treats you now, but from the courage it takes to keep showing up in love despite the cruelty of this disease. You deserve support, breaks, and compassion every bit as much as he does
No, you do not have to take mental abuse from a parent even if they are ill. This may come as a shock, but parents are responsible for providing for their children they bring into the world. Offspring do not owe parents because of this.
Don't set yourself up to become a sacrificial lamb to someone's illness and mistreatment. You deserve your freedom and some happiness in life. Dad has had his time, and now he is ill.
The best way to help dad at this point is by finding him a reputable source of help either in a care facility or home health if he is not willing to go into a home yet. However, it is not about what he wants, it's about how much more care you can provide and how much longer you are willing to sacrifice of your own health and sanity. He pays for his own care even if it means selling off assets to provide for his care.
Children are not old age insurance for parents.