My spouse helps me take care of my parents. He helps prepare our meals and I do everything else. Dad cannot get around well and Mom is bedridden. I'm trying to do right by them and take good care of them. My husband is tired of us not being able to do anything or take a vacation because of them. That's hurtful for me to have to hear. My parents didn't ask for this. I know that we didn't either but here we are. I am under so much stress and don't know what to do.
Book a 2 week cruise for you and your spouse.
Put Mom in 2 week (or 1 month) respite care while you are gone. Dad can visit her there every day.
Alternatively hire a care agency for the two weeks while you are gone with Mom's money. They can cover Mom's care 24 hours at the house while you are gone.
"In the end....it is you or them."
A nursing home will do this. Dad can visit her there.
Care is tough for caregivers of bedbound seniors. Mom was 110 pounds. It was tough. I can't imagine the work at 300 pounds.
You are taking care of bedridden mother, father who cannot get around helps you.
Mother is 300 pounds, you are working, so who is taking care of her or him?
Is your husband working as well, if so do you have extra help?
Or is he home taking care of both?
If so then it is not fair to anybody.
Parents need more help, you cannot possibly do it all. Maybe your husband is tired of all of it and he would be rightfully so.
He sees two declining seniors, you are stressed out.
How is this scenario good for anyone? And you as couple don’t deserve it and perhaps parents deserve better help.
I am not saying you are not doing right by them.
Sometimes first step is admitting to ourselves that we cannot do it all.
Perhaps your spouse is seeing what this is doing to you and realizes this cannot continue indefinitely before you are the next one down ( 3rd person ) needing to be taken care if. He lives you and doesn't want to lose you and your life together.
Be a caregiver manager. Move Mom and Dad to care facility, will be taken care of by staff who are well trained and rested. You can then have the gift of quality time with them. Like reading to them, holding their hand, telling them about special memories you cherished. And then time to spend and treasure with your spouse.
Okay, so now the thoughts from.me at 80. In assisted living where son, daughter, spouses and grands visit with happy smiling faces, full of life, lots of news, stories and good times together. It is life experienced all over again. I know they love me and aren't bogged down with stress of how to manage all that can happen.
Good luck. Prayers
I personally know of a friend who fell into a rocky river while taking a photo. She became a paraplegic. Her husband divorced her after a few months. He said he was just not up for taking care of her. So much for the vows of in sickness and in health. Her MOTHER and SISTER take care of her. She is a wonderful woman and her family loves her, as well as her friends.
If you do place them in a facility, you should visit often and do your research on the place and people that work there.
I suggest hiring someone from Care.com to come in occasionally for time with your husband and a break for you both. Maybe even a house cleaner. Anything to help lighten the load and relieve some of the stress of extra tasks.
I wish you the best of luck.
🙏❤️🍀
Your parents need to pay for caregivers. Ones that will come in and help out.
You also need to come up with a way to get Respite care.
Any option that would give you some time.
A relative.
A paid caregiver.
Placing them in a facility for a week or better yet 2 weeks.
Now you need to look for options.
Placing them in a facility that can meet their care needs.
Full time caregivers.
Applying for Medicaid if that is necessary.
If mom or dad are Veterans see if they are due any benefits.
Check with your local Senior Center and see if they are aware of any programs that might help
If either mom or dad ..or both would be eligible for Hospice you would have a Nurse check in 1 time a week. The Nurse would order all medical supplies and equipment that is needed.
A CNA that would give a bath or shower 2 times a week. the CNA would order all the personal supplies.
All supplies and equipment would be delivered to you'
And with Hospice Medicare/Medicaid would pay for Respite care.
You can not do it all. You can not continue the way it is.
Nursing homes today aren't like the ones years ago. The aides get ongoing training, the rooms are usually light and bright, and the food is mostly appealing and served with a smile.
Please, for mom's sake and yours, find a good assisted living home and get mom into it ASAP. There is no need to break up your marriage because your parents dumped their care onto you. Doing right by mom would be providing better care than she can get at home, and it might save your life and your marriage.
I wish all of you the best.
We are going to try to go on vaca in a month or so, with dad going to respite care at a nursing home (which he will pay for). This isn’t easy to arrange and I can tell dad is nervous about it. A lot can happen to mess it all up. My husband is counting on it being doable (and I am too).
I guess I’m just trying to say, I would recommend that you don’t keep getting in deeper and deeper like I have, where options for everybody become less and less. A hoyer lift and the care needs of a bedridden person would absolutely go beyond my personal boundaries of caretaking (and believe me I have done a lot of extreme stuff I never dreamed would be required). As some others have mentioned, your dad in particular might enjoy assisted living where he wouldn’t be isolated and a caregiver himself. I know my dad would have enjoyed ALF, but now his care needs are more in the lTC/SNF realm, even though cognitively an ALF would be more of a fit. It is all very hard, I know. And the financial end of it comes into play too. But I encourage you to look into other (not-your-home) options now, when the options are more plentiful and maybe more attractive, at least for your Dad, and maybe your mom too. And for your and your husbands’ futures, as well. Right now your dad sounds like he does a lot, and you work outside the home. This can’t last forever. When you become all there is for caregiving 24/7/365 and are isolated it is very hard. Investing in other relationships is challenging and sometimes impossible (even when they need you). When I had Covid a couple years ago, it worked out because I could double mask and glove and set out food and meds clearly marked for dad, etc. Now he isn’t able to navigate that. I worry all the time what would happen if I became incapacitated. (I do not expect my husband to do hands on care.). You should consider that, too, and make plans just in case. A lot of factors go into it that aren’t clear in the beginning!
A more likely scenario is that you or your husband become ill and unable to assist with your parents' care, and now one of you will also require care. How is that going to work? I know it's a terrifying thought, but from what you describe, you're heading toward a caregiving cliff if you don't make some immediate changes to relieve the caregiving burden on you and your husband.
Your husband is well within his rights to complain. He married you, not your parents.
While the Bible says "honor your parents", that means to respect them. It does not mean setting you and your husband's lives on fire to keep them warm - or turning your home into a nursing home with family members being unpaid caregivers 24/7.
It is admirable that you want to "do right by them", but that doesn't mean you need to be the 100% hands on caregiver. Why haven't they hired help? Your mother being bed ridden indicates major health issues that need proffesional help. Please realize their wants are no longer top priority. You have to establish in them their needs are greater than you and your husband can manage and more help is necessary for everyones well being.
They need to hire aides, cleaning help, maybe move to a more medically friendly community that will enable your parent to age in a continum level of care.
Stress will kill you and your husbands unhappiness will only become greater. Do something now before it is too late. I wish you strengh and clarity during this difficult journey.
*I just looked at your profile and you are my age. I am POA for my uncle and two years ago he experienced a medical emergency that prevented him from walking and is now in a nursing home. I found this forum when I was under an enormous amount of stress with the false thinking that I needed to do everything. Please use this forums knowledge and guidance with coming to terms with you absolutely needing to change course and get additional help or have your mother admitted to a LTC facility. You will kill your self if you keep this up. So sorry for you situation.
Time for a new plan for your parents . Most likely this will be a unanimous thread on your husband’s side.
Additionally your mother needs her diaper changed more than twice a day . Your profile also says you are trying to keep Mom out of a nursing home but that’s where she belongs because you are not changing her diaper often enough . She’s not getting proper care at home.
Mom needs to go to SNF . You can not continue to take care of a 300 lb woman and work your job either . If money is an issue, SNF can be paid by Medicaid.
SNF care is what your mother requires and is what you should be doing to do right by her and your marriage.
From your profile , Sounds like Dad is home with Mom when you work . So perhaps Dad can still be at home for now while you work . But you must have a life with your husband. Go away on vacation . In general , hire someone using your Dads money to come weekly make him some meals, clean and wash laundry . So it’s less for you and your husband to do . Also , Dad could go to respite care in assisted living while you are away. Assisted living permanently for Dad is an option too if he has the funds
This is obviously a marriage issue and not a caring for elderly parents issue, so perhaps it's time for some marriage counseling before it's too late.
Your husband is your priority. . He comes first. Figure out what needs to be done to get help in or put them in AL.
You are risking breakdown and injury yourself, and possibly the end of your marriage. Find someone appropriate to talk this through with.
Finding a good and safe place where they can be cared for is not “putting them in a home”. Think of how your parents cannot have any interaction with other people. Keeping them with you is isolating them more and more, and that’s not good for anyone.
It sounds like your parents assumed you’d be their retirement plan. If so, that was very selfish and irresponsible of them.
Your husband and marriage became the first priority when you said “I do”.
Your parents have other options. Find an assisted living or skilled nursing home for them. It has become too much of a burden on you and is unfair to your spouse to be expected to help take on this burden.
Your parents can not help growing older or suffering from ailments. It is a part of life. But it is not your job to take care of everything for them. You can place them in a setting where they can get all the help they need from professionals (who get to go home after their shift) and still be a loving daughter who visits and advocates for them.
If you insist on taking care of them at home, at least consider a short respite stay in a care home - for a week or two - allowing you and your husband to take a vacation, or to simply take a break and re-connect.
Its time to get your parents placed in Skilled Nursing care now. Taking care of a bedridden patient is way too much for one person to manage at home anyway. Apply for Medicaid and use up your folks funds first, if there are any, and take your home and your marriage back.
Best of luck to you.
"Through the National Family Caregiver Support Program, your area agency on aging and other local providers are ready to assist you with supports that may include:
Training, resources, information and support groups;
Respite care, adult day and medical alert services;
Personal care, chore services and home delivered meals;
Yard work and home repairs;
Durable medical equipment and home modifications; and
More.
Contact the area agency on aging serving your community for information and referral, as well as a free in-person assessment to identify your needs and link you to available resources. Call 1-866-243-5678 to be connected to the agency serving your community."
I dearly hope the help you need is available in your county; I haven't found that to be so in my state, hopefully yours is more advanced on the caregiver support front.
From your brief description it doesn't sound like spouse is whining because of having to take on extra household chores, because somehow you're still doing all of those too. It sounds like spouse misses being with you. And probably can see that this will only get harder and worse.
You have lots of options at a range of prices (which your parents would pay or qualify for by being unable to) and you need to learn about them so you know what your options are. You could start by taking a break with hired help for your parents and spend a day or two away with your spouse. You don't want to lose your health or your spouse to caregiving and a lot of people do just that.