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I am not understanding what this is all about, but he is 94, and I cannot leave him alone, that is why I now get respite in order to get other things done such as groceries. He is very hard of hearing, and many think it is only that, but there are also behavior disturbances. I am almost 91 and this is a toll on me as to how much longer can I do this. We all know of the 40% of caregivers dying before the ones they are taking care of. I think he is ready to be placed, but don't know what kind of facility.

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The social worker should be able to assist you with determining what level of care facility he needs.
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Reply to waytomisery
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no1cares Mar 22, 2026
I am hoping that is the reason as I can't do this much longer, not qualified for anything more. Thank you for answering.
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My guess is that if you can’t leave H alone, his needs are too much for Assisted Living. That leaves Memory Care and Nursing Home. It might be a good idea to find what places are available reasonably close (so that you can visit), ask any contacts you have for reports about which are best. Then get respite so that you can go and have a look, even if only one. If you start with MC and they say that it sounds as though his needs are too high, then skip to looking at NHs.

Getting an idea of what they are like will help you to get the most out of the Social Worker visit that is coming up.
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Reply to MargaretMcKen
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no1cares Mar 22, 2026
Thank you, I have seen some places, but there are more to see, and I think this will be very hard to get him to see the reasons of all this, he tries to be as independent as always, but I can't keep him from doing things he shouldn't, using a ladder, because of losing balance, not knowing where we are on the way to appointments, I do think he thinks things have not changed much, but there are a lot of little things and they add up to this caregiver not being able to be everywhere he is and knowing what he has on his mind.
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If he's a vet then have you contacted the VA about facility care?

Sometimes a "sudden" drop in cognition or change in behavior can indicate an infection. UTIs are very common, mostly in women, but men can get them also. At advanced ages there isn't always the classic signs, like a fever. He could have something else going on, like a TIA. I would call an ambulance and have him go to the ER to get checked. You tell them you think he may have an infection based upon the symptoms you are seeing. From the ER you can talk to the discharge planner or social worker about having him transitioned directly into a facility -- but again, if he is a veteran it would be helpful to know if you've explored his VA options.
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Reply to Geaton777
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no1cares Mar 22, 2026
Thank you for the info. I forgot to mention that this social worker visit is at the VA clinic here in town, he sees them for his blood work et. so, they are aware, sometimes they don't always convey to me what they see until it is looked into.
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The VA can assess him for more benefits.
If you can no longer care for him at home the VA may be able to help.
If he is Hospice eligible the VA will provide care or you can use any Hospice agency that you want.
Once on Hospice he is eligible for Respite that will give you a break. (If he remains at home.)
IF he qualifies as 100% Service Connected Disability then he may be able to live in a VA facility.. BUT the wait to get in to one of the VA homes is long.
If he does not qualify at the 100% Service Connected Disability you may have to place him in a facility that the VA may not totally cover.
Another option if there is one in your area is the VA now has what they call Medical Foster Homes. A Veteran moves into one of the VA approved homes and is cared for by the people that own the home. There is a cost that the Veteran pays but it is less than what a facility would cost and he would be in a home setting.

When you talk to the VA Social Worker be very honest about your ability (or inability) to SAFELY care for him. Not just his safety but yours.
((hugs))
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Reply to Grandma1954
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I have a friend whose husband is living in a VA nursing home. It’s been a good experience for them both. He’s received good care, made friends among fellow veterans, and is content. She’s no longer exhausted and scared. Be sure to ask the social worker about this possibility and advocate for not only your husband, but yourself. State firmly that can no longer continue caring for him. I’m sorry it’s gotten to this point, but you need your health to be his advocate
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Reply to Daughterof1930
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no1cares, I see you've been on this forum since 2018 and I have re-read all your postings. Oh my gosh, you must be so tired as you have been helping your hubby for such a very long time, going through all the different type of behaviors that are associated with Alzheimer's. Yes, for your own health, it sounds like it is time to look at Memory Care centers for your husband.


As for the sudden drop in cognitive decline, I would make sure your husband has a current Urinary Tract Infection (UTI) test. It is so simple for a man to do, just pee in a cup. That way you can make sure any types of behavior aren't from a UTI, which can mimic dementia. Most urgent care places can do this test and read the result a few minute later.
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Reply to freqflyer
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The next time he gets agitated, you call 911 and say he is acting out in a dangerous way and you don't know what is wrong with him. You can't say he just has dementia/alz etc., as that's not an emergency. Maybe he is having a stroke, you don't know what is wrong but he is frightening you and you are frightened for him as well. Once he is at the hospital being assessed, you tell the social worker that you can not care for him at home. Keep saying "unsafe discharge" and do not listen to any stories about help at home or anything like that from the social worker. They will promise you things that will never happen just to get him out of the hospital and out from under their responsibility.

He is a vet, they may help him a lot more than someone who isn't a vet. But this is crazy for you to keep going around and around and everyone is placating him, saying he has hearing loss and all of the rest of it. You are just as important as he is, and I think you have to say it's time for him to be placed. The only ways to do that are to wait for an accident or crisis, and this can be brought on by him becoming agitated or threatening you. Unsafe discharge. Cannot be cared for at home, has no one there that can help him or you.

I hope you will have a speedy transition with him on this, as it's gone on for far too long. It's not fair to you.
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Reply to SamTheManager
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Get rid of the ladder, or at least get a bicycle chain and lock so you can chain the ladder to a post or other immovable object. I had to use a chain and lock on our ladder when husband kept taking it out of the garage with the intention to climb on the roof.

Was your husband ever stationed near burn pits during his military service? Or was he where Agent Orange was used at any time during his military career? Check any records you may have, you might have something with dates, such as flight logs, that would point to exposure to toxins. Ask the VA social worker about this because he may qualify for extra compensation. The VA has been very helpful to my husband, whose total disabilities are presumed to be caused by Agent Orange and other service-related issues.

Memory care is definitely what your husband needs based on what you have told us. His cognitive issues can only get worse, and you wouldn't want to move him again if he goes to a place where they can't handle his cognitive needs. Also, I've only heard positive things about VA facility care.

I wish you luck.
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Reply to Fawnby
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My father was also a Korean war veteran. He was very cognitive. He lived on his own. He wanted to stay and die at home. For the last few years of his life, the VA did pay for 28 hours of home aide care per week. I had to use a approved agency and check in with his VA doctor every 3-4 months. It was very easy to arrange via their social worker.
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Reply to Arkh64
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My brother is a Vietnam vet and was likely exposed to Agent Orange. He suffers from Parkinson’s.
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Reply to Patathome01
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I visit the local VA hospital often with my therapy dog and the Red Cross. There are many men there like your husband. I am constantly impressed with the level of care and caring shown by the staff. I live near a famous teaching hospital and the care there is nothing like this.

Ask the social worker to help you get him placed at the VA - there is no better care you could buy. If the social worker doesn't help, call the local hospital yourself and ask to speak to a social worker. I did this to get my father placed there.
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