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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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We get this question very frequently here. The simple answer is probably not. You can search on this site for “getting paid to be a caregiver” and find answers better than mine, but paid family caregivers just really don’t exist. Especially to the point that you’d be able to make enough to support yourself. And, you would not have any health or other benefits. The only way you could do it, if your cousin is still “with it” is to draw up an employment agreement that he will pay you a certain amount of money to be his caregiver, and since he is not only autistic but also has dementia, you’d probably need an attorney to draw this up. I understand that you want to keep him in his home for as long as possible, but it may not be financially beneficial to you.
My sister was a paid caregiver for our Mom, paid by Medicaid. Paid family caregivers do exist. It is not a lot of money! But it is genuine employment, with taxes withheld, etc.
If he can’t afford to pay you himself.....Medicaid has HCBS-home and community based waivers- for those with autism/developmental disabilities, all states are required to have this but the programs and what they provide vary from state to state. You may or may not be able to be a paid caregiver if he gets a waiver. Check with your local social services office.
lorrieklessig, kudos to you for taking on the responsibility of your cousin. Yes, you can probably be paid, but, as Ahmijoy said, probably not enough to support yourself (unless your cousin is wealthy and you provide full-time care). As worriedinCali said, each state has different rules and programs that may provide some funding. And if your cousin happens to be the child of a veteran who served during a war, he may be eligible to receive an Aid and Attendance pension from the Veterans Administration.
In any event, as his legal guardian, the guardianship court has to determine what, if any, payment you can receive from him, but that court ruling will not make funds available to be paid to you, it just sets the amount of payment if funds are available from somewhere. Hope this helps.
I am assuming he has signed up with some type of autistic program and Dept of Disabilities. If not I suggest that you try to get services for him thru them. Dementia mixed with autism is going to be a challenge. You will need as many services as possible. If on SSD, Medicare and Medicaid, ask Medicaid if he can get help to fund Daycare.
Check your local Caregiving businesses. Ask if they have a program where they train and pay you to care for a LO. Call Medicaid see if they have a program.
How kind of you to take on the responsibility of legal guardianship for your cousin. He is lucky to have you in his life.
You want to keep him home as long as possible. How about keeping him home as long as it is the best option for him? Sometimes the appropriate care center can provide things staying at home can't, like social interactions, 24-hour on-site help in emergencies, entertainment, easy access to a barber, medical personnel making house calls, etc.
Does keeping him in his home require you to be his caregiver? Who is caring for him now? I can believe that you might be his preferred caregiver and that you know the nuances of his particular infirmities. I can also understand that you need to earn a living. If funds were available to hire "outsiders," would that work?
Many states have Medicaid waivers that do pay family members for caregiving. It is not usually 40 hours a week (except in NY), and it is low pay. But it is an option worth looking into.
Does your state have a Disability Helpline? They may know of other options in your area.
Because this is a topic of great interest on this forum, it would be a kindness to come back and let us know how this gets resolved for you. We learn from each other!
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
In any event, as his legal guardian, the guardianship court has to determine what, if any, payment you can receive from him, but that court ruling will not make funds available to be paid to you, it just sets the amount of payment if funds are available from somewhere. Hope this helps.
Check your local Caregiving businesses. Ask if they have a program where they train and pay you to care for a LO. Call Medicaid see if they have a program.
You want to keep him home as long as possible. How about keeping him home as long as it is the best option for him? Sometimes the appropriate care center can provide things staying at home can't, like social interactions, 24-hour on-site help in emergencies, entertainment, easy access to a barber, medical personnel making house calls, etc.
Does keeping him in his home require you to be his caregiver? Who is caring for him now? I can believe that you might be his preferred caregiver and that you know the nuances of his particular infirmities. I can also understand that you need to earn a living. If funds were available to hire "outsiders," would that work?
Many states have Medicaid waivers that do pay family members for caregiving. It is not usually 40 hours a week (except in NY), and it is low pay. But it is an option worth looking into.
Does your state have a Disability Helpline? They may know of other options in your area.
Because this is a topic of great interest on this forum, it would be a kindness to come back and let us know how this gets resolved for you. We learn from each other!