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I am a PT. A year ago we found my neighbor lying in the snow with a fractured hip. He is 76. He had a replacement and was diagnosed with dementia after having a severe mental reaction to the general anaesthesia. Of course, being a PT, I was very active in his rehab and helping his wife generally cope with the new diagnosis. Some of us would stay with him an hour or two so she could go to the hairdresser or store. It is a year later. He has moderate dementia and is still driving which I find scary. The wife has returned to her job which entails one weekend every few months in another state. She prepares all his meals, has notes all over the house and leaves on these trips expecting we will "keep an eye" on him. We have a key and her phone number so we can "reach her". I have to tell her that I am very uncomfortable with this. We can see the house across the street, but that is it. I will not go into the house and check on him. She needs to get a carer or quit her job. He has had some falls and tries to work in the yard using tools and ladders. He hurt his back carrying a ladder. His dementia was diagnosed a year ago and I know he has deteriorated. My husband wants me to tell her that I will not participate in this with the exception of giving her a phone call if we see anything. She is 2 states away. This is madness. I have faced many families with the hard truth professionally, but feel lost dealing with this. I really feel like the bad guy here. The other neighbors think he is just fine, but I know better.

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You are a mandated reporter if you are a PT. This set up is not safe for her husband and as difficult as it is to say this to her it is not fair to expect the neighbors to take on this responsibility. Tell her you have no choice but to report this situation. The wife needs to figure this out.
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Reply to Hothouseflower
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I would not talk about this to other neighbors. This is between you and this mans wife. She may have to give up her consulting job. Its what it is. You will need to be firm. Don't expect her to read between the lines. If she has to work, suggest camera's.
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Reply to JoAnn29
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I would tell her what you’ve posted here. Give her a chance to correct the issue. Also, if you are a PT I’d take a guess that you are a mandated reporter in your state? If she doesn’t handle this, I would next report it to APS. If she gets upset about that, I’d tell her you cannot risk your PT license by not reporting!
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Reply to Oedgar23
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Are you not a mandated reporter?

In my home state (MN): "...mandated reporters must immediately report suspected abuse, ***neglect***, or financial exploitation to the Minnesota Adult Abuse Reporting Center (MAARC). The state DHS page also notes that mandated reporters are identified under Minnesota law and must report suspected maltreatment right away."

She is endangering a vulnerable adult by leaving him as the responsibility of others because she knows he's not capable of being completely on his own safely. Think of it this way: If a parent looks at their 12, 10 and 8 year old before leaving on a date and says "you're responsible to watch the baby" (2 yrs old)... then who is actually in charge? Answer: no one because they all think the other is in charge.

Consider getting together with the other neighbors (who may also be uncomfortable with this situation) and decide as a group that to no longer be her solution. He is declining and will need more and more help eventually. Why should you be liable for his safety? She is being clueless, selfish and ridiculous. How do you know she's even actually working? Maybe she's having some Girl Time with friends or a lover? If she's only working such few hours then it won't be a stretch for her to quit or pay for a true caregiver.

Please stop being an enabler and appeaser (people pleaser). My husband, a wonderful guy, has trouble with "difficult conversations" with people, even his own family members -- so I understand it -- but it doesn't excuse it.

Your neighbor won't look for other solutions if you and others keep being The Solution for her. You do not have to tell her why you are all ending it, just that you are. No is a complete sentance.

During the conversation with her (and all the neighbors should be present for this) you can also give her names of agencies and Care.com.

I wish you wisdom and peace in your heart that you are NOT the "bad guy" in this situation.
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Reply to Geaton777
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I agree that this is putting you in a difficult position.
I have a question before I start. You say you were "very active in his PT" was that as a neighbor friend that happened to know what needed to be done or were you being paid as a PT while you were very active in his PT?
The reason I as is I am wondering if your continued help may put your license in jeopardy.
Now...
Have you discussed your discomfort with the wife? I think sitting down with her and telling her that you think this is unsafe and that as a medical professional you are MANDATED to report unsafe practices and you think that she should have a caregiver helping her, particularly when she is out of town. Because you think it is unsafe you can no longer be an observer when she is gone. Obviously if you see him fall outside or happen to see him do something unsafe you will call 911.
Tell her that this is not personal but it is the advice you would give anyone that you were seeing on a professional level.

Does this couple have adult children that you know? If so can you talk to them about your concerns? If they are unaware of what mom is doing and the potential danger that dad is in they may step in and try to talk to mom. They may be unaware of what is going on and how compromised dad is. Many people with dementia can "hold it together" for brief times fooling the people that are visiting.

I think a call to APs is well within the scope of what is necessary. And I suppose if you really want to drive the point across you make the call when she is away.
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Reply to Grandma1954
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Sandra2424 4 hours ago
This is all on a 40 year neighborly relationship. I have no professional relationship with him. I am retired and have not renewed my professional license.
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You are being nice your neighbor is taking advantage of you all intentional or unintentional. As soon as possible you and your husband need to tell her that you cannot be responsible for her husband's safety and from this day forward she needs a make other arrangements. He has dementia and it is not IF something bad happens it is WHEN something bad happens. You do not want that responsibility nor do you want it on your conscience when it does happen. I would not speak for the other neighbors. Now do not tell her the following because she obviously does not understand dementia. If you know she is gone and you see her husband wondering around outside and you feel he is unsafe call 911 and report it. Seems harsh but dementia is harsh.
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Reply to RK1234
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Sandra2424 6 hours ago
Not If, but When. Excellent point. I know this but I just have to tell her.
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It's certainly more complicated when it's a friend, isn't it? If this was your client and after education, offering resources, etc. his wife continued to leave him alone for extended periods, your agency would be calling APS. I'm not making recommendations per se, but it's just so much clearer in a professional relationship and I feel your pain.
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Reply to MidwestOT
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Sandra2424 6 hours ago
Thank you, OT.
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You have more than done your part. I agree with your husband.

Also, why is the wife working 2 states away?
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Reply to brandee
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Sandra2424 6 hours ago
It is a consulting job. Not sure why this cannot be done online. Even if we had to call an ambulance, it would take her 6-8 hours to get home.
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I think you owe it to your neighbor and to yourself to tell her truthfully how uncomfortable you are with her leaving him alone for days, expecting neighbors will look after him. You have been there for them as a friend, and I'm sure they appreciate it. Now it's become expected, that your help evolves into more as his needs evolve.
Tell her that you are not able to keep him safe, and it is time for her to hire a caregiver. She probably just doesn't know, and it may come as a shock to her to hear it. If she harbors any resentment toward you, that will be unfortunate, and hopefully short-lived. She needs someone to tell her that the husband needs more help. You are able to see it, having had first hand experience with others in a similar position. Hopefully your friend and neighbor recognizes your professional experience and benefits from your opinion.
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Reply to CaringWifeAZ
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Thank you for your help. I think I know what to do now. A fine balance between professional advice and a friendly neighbor. I would feel terrible if something preventable would occur. I will be kind, but honest.
Mods can remove my post if they wish.
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Reply to Sandra2424
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It's so beyond tricky having to be so forthright with family members, especially because you know better having worked with so many seniors. I would tell her, as gently as possible, that it would help to safeguard her husband and ease her peace of mind immensely if he had a caregiver to keep an eye on him "inside the house" because as neighbors, what's in your sight line is so limited. I have been in your shoes as a CNA who tried to reason with family members on keeping the LO safe when I wasn't there. I have never witnessed such denial as I would come back on Monday with my patient being black and blue or really hurt from bathroom accidents because " she doesn't really need her walker just to go to the bathroom.". I don't know if your neighbor understands that dementia is progressive...it seems not. Her husband is still relatively young and she may think his behavior is not that dangerous. I would try to let her know that whatever you advise comes from a place of caring and what your experience has taught you. She may need help with how to look for a caregiver etc..
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Reply to Hrmgrandcna
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Be sure to use "I" statements like "I'm very uncomfortable", "I'm scared that...". Maybe present her with names of some agencies that could provide some support when she's gone. If you state anything as "you should...", she's very likely be become defensive and shut the conversation off. Hope it goes well.
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Reply to pamela78702
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With some people you need to be blunt because anything less gives them room to interpret things differently than intended. IMO even keeping an eye out when she goes out for something like getting the groceries goes beyond neighbourliness, especially when it becomes an expectation instead of a favour. All the rest goes well beyond the limit.
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Reply to cwillie
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Tell her exactly what you posted here .
If the wife is not agreeing with you, then you back out of this arrangement and return her key .
Hopefully , the wife listens and you are not forced to call APS.
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Reply to waytomisery
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I have to admit some responsibility in this because I let it drag on without saying anything. About six months ago, she went on a short trip for a family event. I ageed to it since it was family and she needed a break, but this work thing is too much. Also, the dementia marches on. Week by week, month by month.
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Reply to Sandra2424
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Yes, you must tell her what you are not comfortable doing. If the other neighbors think the expectations of them are fine, perhaps even talk with them a bit since you are a professional in the field of healthcare and most likely know more about the situation than they do. Him driving is absolutely nuts. He will get lost or cause an accident. His wife is in denial. When she leaves for work out of state someone should live in the house with him or he should go to respite care. From what you say it seems he is also at home alone even when she is at work locally. At least she is close, but he most likely needs home care whenever she is gone. Let her know that you can see it is time to make some changes. Maybe give her some reading material on dementia. She is with him so much that she may not see the decline clearly.
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Reply to ArtistDaughter
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Sandra2424 22 hours ago
I did tell her that although he seems fine at home with her, who knows what goes on when she is not there. We have noticed that as soon as she goes somewhere, he is out shoveling snow or pulling weeds. Doesn't leave the house much when she is there.
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This is a terrible situation you've been put in! Your neighbor must be in denial about her husband's dementia and need for care and to stop driving! As a medical professional yourself, I feel like it's appropriate for you to have The Talk with her, especially since you've been involved with his rehab and helping them over the past year. I'd tell her the truth about how dangerous it is for him to be driving, staying alone, climbing ladders, using tools, and that you're not going inside their home to check on him. That's out of your comfort zone. She needs to hire a CG to stay with him and stop depending on neighbors to do that now.

I know it's a rather delicate topic, and I'd be a bit nervous myself broaching this subject, but somebody has to have enough cajones to do it. What if the poor man fell and injured himself inside the home while she was gone? You'd feel terrible if you'd said nothing before she left. At the very least, he needs a First Alert lanyard around his neck to call 911 in the event of an emergency. It needs to be connected to a service too.

I'm sorry you're in such a position. It galls me how much neighbors sometimes expect from one another. Best of luck to you.
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Reply to lealonnie1
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