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I dread thinking of myself reaching a stage where I have dementia and make my loved ones and caregivers suffer. I'd honestly rather be gone.

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My mother is somewhere in the middle stages of dementia, and it has been the angry kind. I do have a fear of it happening to me. After learning 16 tons of valuable information, my husband and I totally overhauled our retirement plans. We are earmarking a ridiculous amount of savings so he and I will BOTH have enough money for assisted living, whether we ever need it or not. We weren't big spenders before, but now we are TIGHT, bro!!
I have given my husband the "I can't take care of you like 4 aides so don't even try to stay home with dementia" speech. And the "Put me in assisted living while I'm still halfway making sense so it's not a big scream-fest" speech. NO UNCERTAIN TERMS.

I joined the Y.
Thirty minutes of exercise a day - walking and lifting a little weight can help. Even if it doesn't keep dementia away, it helps me feel calmer and less worried.

I have given suicide a great deal of thought. Some people aren't able to set aside their religious beliefs and I respect that. I think it's sad and brave when a person ends their own life rather than suffer through years of incurable pain and fear. It seems that refusing food and water can work, although it is a long process, upsetting for family, and many professional caregivers aren't really able to get on board with it.

I am pretty sure I wouldn't be able to muster the huge courage it would take to end my own life. It looks good to me on paper, but I think I'd wuss out. That's okay. I'm planning for memory care.

I have started looking at my house as something I can live without. I refuse to develop an unhealthy attachment to it. It can burn down tomorrow, I have a totally Zen energy about it.

In my dementia world, I want a comfy bed, a recliner, a bookcase with lots of picture books, some Laurel and Hardy movies, some games, baby dolls and toys.

I even bought books for my husband and myself to fill in our final wishes.

I don't really know how many of us will end up with dementia. But I'm preparing to put myself in as calm and therapeutic a space as I can afford. It helps me not worry so much.
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Slartibartfast Apr 2024
Remember that unless you designate medical POAs your loved ones might not have the freedom to follow the wishes you have so kindly laid out in your book. And for some silly reason standard end of life documents come with phrasing to the effect of "I would like to spend my last days at home". I made my attorney take that right out and replaced it with that I preferred to be cared for in a proper facility.
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I feel the same . Paranoid of giving my kids grief. I’d rather be gone too .
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I’m planning to re write my will, advanced directive , trust etc as best as I can. I hope my son doesn’t have to put up with too much nonsense with me
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Same. I think about my aunt. I never expected she would end up like she has with dementia. She was always feisty, fiercely independent and kept herself healthy with diet and exercise. If she could end up this way, so could I, but I would rather be dead, truthfully.
Also, I wouldn't expect my nieces and nephews to take care of me. I say this now but when you're in a vulnerable state, wh knows? I live cheap and am saving every penny I earn.
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My thoughts exactly. I’ll never put those I love in this misery
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Vote me in with the others saying they would rather be dead than living with this disease. You will be drain to your family because everyone around a person with dementia has to pick up the slack and have the patience of a saint to endure the repeat conversations.

Then when it is done, you leave them with misery of a memory. I wish we had a "eject" button.

I just do not know if someone wanted to push that button though, how do you manage the gap between when you realize you have a problem and then become unable to do anything about it.
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strugglinson Apr 2024
I think the answer is to plan ahead and communicate ahead with our families/ children , while our brains are clear. If I can learn something from my care and management of my dad with dementia, hopefully it will be to my son's benefit so that he does not have to go through similar with me and my wife. See this ongoing discussion also:
https://www.agingcare.com/discussions/expectations-486599.htm?orderby=recent
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Hopefully by the time we, ourselves, reach that stage, modern medicine will have advanced.
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olddude Apr 2024
That's what I'm afraid of.
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Me too. I don’t want dementia or Parkinson’s disease like my mom. Or a stroke and heart disease like my dad.

I want to die like my grandma. She simply dropped dead from old age. She never suffered.

I actually think dying in our sleep is an ideal way to go! We should all be so fortunate, huh?

A guy that I worked with died playing golf. An unexpected storm blew through and lightning struck him.

At his funeral his son said that his father died doing something that he dearly loved. He was going to retire shortly before he died.

I think unexpected deaths are tough for a family to endure.

Look how far medicine has progressed. I don’t think I want to live to be 100 plus years old! People are living so much longer.

Aren’t 3D printers going to be printing out body parts in the future? Who knows what else will come into our future health care?
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BlueHeron Apr 2024
I knew an old gentleman who dropped dead while fishing in his boat. My husband thought it was the ideal death.
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The more I’m around my mother the more I think about this too. I hope they have something I can take if I ever end up this way.
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Who Knows - what I do know is Most of My friends have Passed young mostly from cancer . 50 - 60 . Maybe that is a better way to go ? Alzheimers and Dementia seems to be on the rise . Some People swear by alternative remedies = Lions Mane Mushrooms , Yoga , meditation , exercise , a healthy diet such as a Mediterranean diet , eating organic , growing your own food, staying away from canned food and anything with hormones . We also Put chemicals on Our skin . No one really Knows the cause , at One Point heavy metals were to blame and Aluminum . Assisted suicide is becoming Popular . I think if you make it to 80 that is a good age and yet some people are Living to 90 - 102 . I Hope I Just drop dead of a heart attack . I dont want to be Lying around a Nursing Home waiting for someone to change My diaper or feed me .
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