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Hello. My mom with dementia has been in a home for almost a year. She hates the place and hates being locked down. She is getting more determined to return to her home. To be fair she is a very sweet and long suffering lady.
I'm guessing from previous posts that there is no way to continue her care at home with a live in aide. I have contacted the NH's social worker but it is hard to get a return call. Still hoping. I was going to ask if her meds can be adjusted to help settle her. She does not participate in activities and prefers to stay in bed. This is troubling. I tried sending her things like large piece puzzles, snacks, clothes but nothing seems to help long term. I am getting a notebook so I can remote log in and play videos for her.
Today a visiting friend said she was so frustrated that she did not want to eat and became exhausted.
Honestly I wonder if a couple of years at home would be better than who knows how many unhappy years in a NH? Not sure what to do for her. Any ideas would be appreciated.

Pretty much every person with dementia wants to "go home", even if they're sitting in a home they've lived in for decades. "Home" to a person with dementia is more of a state of mind where they felt comfortable and life still made sense.

My mom has been in memory care for 6 months. She's doing better physically and cognitively than she was in her home with 3 shifts of 24/7 caregivers. A low dose of Lexapro has made a world of difference in her mood.

She is participating in most of the activities and has made friends with several residents. I regularly see pictures of her with a big smile on her face. When she lived at home, she was a shut in whose only human contact were a few family members and her caregivers. Without mental stimulation, she was losing her words, and her demeanor was flat. Now she smiles and talks up a storm, even if it doesn't always make sense.

When she asks to go home, I'll answer "when the doctor says it's ok". This at least gives her hope instead of telling her all the reasons she can't go home, which would just upset her. In her dementia-mind, she THINKS she's doing all her ADLs herself. She has no short-term memory and doesn't realize she needs help with everything.
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Reply to Dogwood63
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She can't go home. You aren't even in the area, right? As sad as this is, she has to stay put. She could endanger herself or others. You have sadness for your mom but sending her home will only result in a lot of awful outcomes. She won't be any happier there.

Suppose she turns on the stove and gas fills the house and then the house blows up, taking the neighbor's house with it? It's just an example, I'm sure there is something she could do at her old house that would create a disaster.

You have no way of knowing what the friend really saw, or how familiar they are with dementia. People with dementia can't live alone. They may want to, they may say they can, but they are not able to make good decisions, so they can't live alone. Complaints are normal. So is not remembering they were out of bed that day, saying they don't do activities when they really do, and saying they haven't eaten all day when they have.

It's part of the disease process. She is where she belongs.
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Reply to SamTheManager
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At this point in her life, there will be no making her happy. Moving home will not make her happy. She needs to be where she is cared for properly. At this stage of her life her needs outweigh her wants.
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FWIW, my mom often says she is bored and has done nothing the whole week, spending a lot of time in bed. Thankfully her MC has a Facebook page and I get to watch mom play games and attend concerts and such. When I ask her about them she acts a bit guilty and has to admit yes she had fun that week.
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lealonnie1 Apr 10, 2026
My mother was exactly the same. They save their complaints for us.
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No, being at home would make her even more secluded and lonely. Ask the doctor about meds to help her. She may be experiencing depression. My mom was very upset at being placed, but we are two years in and she has found friends and adjusted to the routine of memory care. She is also far happier than she would be at home.
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My mother lived in Memory Care and told only me and visitors how much she hated it there. In reality, she was doing fine.

Dementia is a no win situation for all concerned. Blame the disease which strips the dignity away from an elder, nothing else. Keeping mom safe is all we "children" can do for them, really. It's very hard to hear the complaints, I know, but it's also not helpful for visitors to relay them to you. "Happy" is not part of dementia for most, and folks who've never dealt with it have no idea what it's all about. These folks wind up causing more harm than they cure.

Best of luck to you.
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Kelly631 8 hours ago
Just wanted to say thank you for your post. I am struggling myself to make the right decisions than how my heart feels with my father. I'm not familiar with this memory declining. Its all new to me. But everyday I see him i leave with tears afterwards. It's my dad and I want him cared for best possible. But when im getting calls from him saying he's not being properly cared for, it still makes me think he is in the mindset as he used to be. Its very difficult. But reading your response to Dogwood63. I know 1st, it's not just me, and 2nd we are doing what's best for loved ones ❤️
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By bringing her 'home' what can end up happening is she will not remember the last home she lived in before memory care. Then you will really have a situation because her place at the facility most likely not be available for her. As it is there are many people who are on waiting lists to get into memory care facilities. When it doesn't work out and it won't because you would not have placed her if she could still be cared for at home, you'll have to find her a new memory care facility. It will be traumatic for her to have to get used to a new place.

The home your mother is demanding to go back to may be her childhood home. Or the home of some friend she knew. Or a fictional home she saw on tv. Dementia is a sad and tragic disease. The delusions are real to the person with the disease. They believe them.

Really the best you can do for your mother now is to try and have her medications adjusted. If they can happen on the right meds and right dosages it can help her feel better.
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Reply to BurntCaregiver
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Dementia in itself is troubling. And being
in her home will not fix the problem. My friend’s mother kept leaving her house to “go home”. She had to be placed in a locked down unit for her safety.

Taking her home would be the worst thing you could do for her and you! She would need more than aides. She’d need someone watching her the entire time. As in staying right next to her. 24/7. That would probably stress her out more!

Next best step is med adjustment.
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kenmtb Apr 10, 2026
Thank you. Unfortunately meds seem to be the only real answer at times
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That's very sad, but some things are sad and there's nothing to do about them.

Your mother must live in a locked place. That's very hard to do at home. My SIL who had dementia and was getting out of her house even with her caregiver there - her family put her in a guest house on their property with only one door. Three shifts of caregivers, which is what it took because the caregiver must always be awake to watch her. SIL still tried to get out and almost did. It was scary for the family because if she'd wandered off in the mountains where they live, no telling where she'd have ended up. Nowhere good, that's for sure. She lives in a memory care facility now.

My husband got out of our (secured, I thought) house and ended up as a John Doe in a hospital many miles away after strangers picked him up in their car and called an ambulance. It was a nightmare. Those people could have had bad intentions and could have hurt him.

So even though you think that taking mom home might be possible, please don't. No telling what she might dream up, such as my neighbor's mother who somehow escaped their house and went walking down the middle of the street naked. In a cold climate in October. My neighbor even worked in a memory care facility and was sure that mom couldn't leave their house. Mom moved to memory care after that incident.

You know mom's safe where she is, and her fantasy of leaving is just that - a fantasy. She doesn't understand the ramifications of her going home, she has no judgment and is basically a child in the way she thinks.

I wish you well and hope mom adjusts to where she is, because it's the safest place for her now.
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kenmtb Apr 10, 2026
Sorry you had to go through all that. It is amazing that we can send people to the moon but cant provide a dignified end of life scenario for the elderly. I am shutting the door on her returning home. My only thought is if I were in her place, I would rather have one day of freedom over years trapped in a NH. Its sad to see her trapped. Thank you for the thoughts.
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That's very sad, but some things are sad and there's nothing to do about them.

Your mother must live in a locked place. That's very hard to do at home. My SIL who had dementia and was getting out of her house even with her caregiver there - her family put her in a guest house on their property with only one door. Three shifts of caregivers, which is what it took because the caregiver must always be awake to watch her. SIL still tried to get out and almost did. It was scary for the family because if she'd wandered off in the mountains where they live, no telling where she'd have ended up. Nowhere good, that's for sure. She lives in a memory care facility now.

My husband got out of our (secured, I thought) house and ended up as a John Doe in a hospital many miles away after strangers picked him up in their car and called an ambulance. It was a nightmare. Those people could have had bad intentions and could have hurt him.

So even though you think that taking mom home might be possible, please don't. No telling what she might dream up, such as my neighbor's mother who somehow escaped their house and went walking down the middle of the street naked. In a cold climate in October. My neighbor even worked in a memory care facility and was sure that mom couldn't leave their house. Mom moved to memory care after that incident.

You know mom's safe where she is, and her fantasy of leaving is just that - a fantasy. She doesn't understand the ramifications of her going home, she has no judgment and is basically a child in the way she thinks.

I wish you well and hope mom adjusts to where she is, because it's the safest place for her now.
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Wanting to "go home" is part of Sundowning, which is a very common phase of dementia. Often the elder wants to go to a childhood home or a home in their distant past where they felt safe. My very elderly Aunt with advanced dementia wanted to "go home" every afternoon like clockwork, while sitting in the home she lived in since 1975. No amount of convincing her she WAS home changed her agitation. She was even on meds. Eventually when her dementia progresses she will move past this.

DO NOT entertain bringing her back to her home. Maybe consider relocating her to a facility near you. I realize this is a long-distance move and a lot of grief and one-time effort but once she's in proximity then her care will become easier for you. Of course she won't like it but caregiving happens on the caregiver's terms or else burnout is likely.
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kenmtb Apr 10, 2026
Very true. Things seemed like they were starting to settle until a visiting friend told me how upset she had become about staying in the NH. I thought she would start to adjust by now. Im not sure if time will ease her desires. I feel like a rat for diverting her desires. Unfortunately, getting ahold of NH staff is very sketchy. I would like to discuss adjusting meds. Seems like a dirty thing to do.
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Don’t even think about how “to continue her care at home with a live in aide”. It’s 3 shifts every week day and night, and 6 shifts for the weekend – ruinously expensive. And she would still be 'locked down' if she was at home.

Explain this to her, and say that there is no way she is going to be able to leave. It's up to her to make the best of things. Staying in bed and refusing to eat is up to her. Forget about the puzzles, lay it on the line about the (very limited) options and ask her what she wants to do with the time she has got. You aren't in charge, it's up to her.
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kenmtb Apr 10, 2026
So true. Returning is not even feasible. The house is in bad shape anyways. I am trying to avoid telling her anything but good things and keeping her occupied/deatracted
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Yes, medication adjustments can help. Also, do you know for sure that she is not participating in the activities? It is somewhat common for residents to be well-adjusted and participatory but still complain to family members and friends.
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kenmtb Apr 10, 2026
From visitor feedback, she spend a lot of time in bed. I am going to have to get through to the staff there and ask them to push her into activities. It is her choice but laying in bed is not good for her
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No don't bring her home. She is safe and is being cared for 24/7. You alone cannot provide her the level of care she is receiving. She is healthier being in the NH because she has better routine nursing care available to her which she would not have in an in home setting.

You can try to have her meds adjusted and see if that helps. It would be nice for her to have a better quality of life and participate more. If you can't make it happen try to understand that some things can't be fixed and give up on it and be at peace. It is no reflection on you that she is losing interest in living.

My father is in a NH nearly 3.5 years and I used to visit my father pretty often and observed that most of the residents who were sitting through the social activities had checked out, my father included. Very few really participate, most sleep or stare off into space, just so you know.

Visit and treat her with love and kindness. Try not to feel guilty. This is not your fault.
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Reply to Hothouseflower
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Unfortunately there is not much you can do to make her happy. What you need to focus on is that she is safer and her needs are being met better at the NH than if she were at home where she wouldn'tbe able to afford 24/7 care. She would be in the same situation in a matter of time.

The video idea is nice idea, but will she be able to operate the device?

Absolutely request that her meds be adjusted due to anxiety and anger.
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kenmtb Apr 10, 2026
I have an Acer notebook that Im setting up with remote management so all sh needs to do is turn it on and I can play youtube videos for her and send pictures.
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