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So my mom is on EOL was transferred to Nursing Home from Hospital then to home. No nurse came to set up the oxygen then when it was delivered the previous delivery on oxygen was not even connected correctly. They did not show me how to use the portable ones if electricity went out No key was left to unlock it. When my mom got home I had went to Walmart and bought diapers as the Hopsice nurses didnt contact me about anything. Several of the favorite nurses have quit and my favorite Chaplain quit. Now the Social worker who I really like is leaving and going to another Hospice where most of the nurses who quit the present Hospice company have went to. Its Elara Hospice who I am with now. I was wondering does anyone think I should transfer to the other company Luminoes. Also another reason several times I had called the emergency Elara and was on hold then one time no one answered. I had to call 911 both times is that normal for Hospice Companies?

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None of that is normal and it’s always your right to change hospice providers. Join Nextdoor in your community and ask for your neighbor’s recommendations on hospice providers. You’ll get information on the good and the ones to avoid. I wish you well in finding good care during a hard time
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Reply to Daughterof1930
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Soldier4Christ Jan 20, 2026
Yeah that's what ai thought its just difficult not being able to compare since this all new to me but with so many staff jumping ship makes me very leary.cThank you...
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You have the right to change Hospice companies.
I would first call and talk to a Case or Team Manager and explain the problems you have had. Changing or not none of what you described is acceptable.
If you want to change, and you have every reason to want to change do not expect to get the same people that you liked previously as most Hospice have Areas that a Team is assigned to and you do not know what Area you are in.
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Reply to Grandma1954
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Since it seems all their staff is jumping ship, maybe you should try the company they are now working for. Call the company and ask for an evaluation. Ask them how do you go about transferring to them and getting discharged fror the one you are presently with.
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Reply to JoAnn29
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Soldier4Christ Jan 20, 2026
Yes I already contacted that company and they got everything approved but I talked to the nurse who is been my moms nurse on Hospice for over tear and she assured me things are changing. She gave me her home cell amd to call her anytime if I needed anything. Its just hard transferring during a snow storm was thinking of maybe giving them a few weeks see if things getting better. Seems things are a little better. Its so stressful of transferring. Guess just so very tired. Thank you for all answers.
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My heart is with you. My dad at 94 was on hospice for 15 months. I chose the local favorite. We had great bath aides and SW and chaplain. I never had a good relationship with our primary nurse. Which is often the key role. It got pretty rocky for a while. She went “on vacation” and fill in nurses were great. Eventually, I asked the nursing supervisor at hospice to visit and oversee. It’s a very stressful time, agency caregivers coming and going, dad declining and behavioral issues. Trying to find the right medication. I had geriatric psychiatry consult. It was all awful. I thought about changing hospice companies and came very close. I ended up sticking it out because of the bath aides, the familiarity of them and our caregivers, the SW and the hassle of changing out DME, hospital bed, Hoyer and learning a new routine and persons. It was already overwhelming. Dad had some recognition of the aides and the routine. Aides were so kind and supportive with him. The nurse and I basically buried the hatchet and rode it out. If it’s early, and things aren’t good, I would encourage investigating changing hospice. They are so deeply involved in your life for that period of time. It’s all so difficult. Doesn’t last forever. Keep him comfortable and hire caregiver to help you.
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Reply to Beethoven13
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Definitely change!! Go to the Medicare website and look up hospices in your area. They are rated. I found another excellent hospice for my brother that way. You and yours deserve better. They get rated on pain control, and many other factors. You can also find nursing homes there and find out how they rate in case you are interested.
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Reply to katepaints
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Yes, change. Shop around and ask questions. You are basically hiring them.
We had three different hospice companies and had terrible, unethical problems with the first two. I should have reported both companies to HHS. Hospice has become a money maker that many individuals have bought into, so he careful. We now only use home health and are much happier. My mother is not at “end of life”. All three hospice companies had to look for ways to qualify her.
I hope you have success in finding what meets your loved ones needs.
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Reply to klhsho
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Soldier for Christ,
 
I’m really glad you shared all of this with us. I can hear just how tired you are, and I want you to know first and foremost that everything you’ve been doing for your mom is loving, responsible, and more than enough.
 
What you experienced early on — the oxygen issues, lack of instruction, missing supplies, and not getting through to anyone during emergencies — would have been overwhelming for anyone. Needing to call 911 because hospice didn’t answer is not something you should ever have had to deal with, and it makes complete sense that it shook your confidence.
 
At the same time, I also understand why you’d want to pause right now. A snowstorm, everything you’re carrying emotionally, and the thought of another transition would exhaust anyone. If things truly feel a bit more stable and your mom is comfortable, it’s okay to give yourself permission to take a breath and not make a big decision this minute.
 
What I do want you to remember is this: you already did the hardest part. You advocated, you lined up another option, and you proved you can act if you need to. Waiting for now doesn’t mean you’re stuck — it just means you’re choosing the least draining option today.
 
Please don’t doubt yourself. If at any point the responsiveness drops again, or you feel uneasy about emergency support, that’s your signal — and you’re absolutely allowed to switch. Hospice care is supposed to support you, not add to your stress.
 
We’re here with you in this, and I’m always happy to listen or help you think things through. You don’t have to carry it alone.
 
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Reply to HaveYourBack
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I don't think you need to ask. It sounds like you already know you are unhappy with the current hospice provider, and they are not providing for your mother's needs. You should use any hospice provider of your choice. If you think this Luminoes is a better fit, go with it! The sooner the better!

Oh, you ask if that is normal for a Hospice company. NO! It is unacceptable.
It sounds like this one you initially chose is having trouble and will not be able to meet your needs!
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Reply to CaringWifeAZ
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Yes, I would definitely switch hospice providers.
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