So my mom is on EOL was transferred to Nursing Home from Hospital then to home. No nurse came to set up the oxygen then when it was delivered the previous delivery on oxygen was not even connected correctly. They did not show me how to use the portable ones if electricity went out No key was left to unlock it. When my mom got home I had went to Walmart and bought diapers as the Hopsice nurses didnt contact me about anything. Several of the favorite nurses have quit and my favorite Chaplain quit. Now the Social worker who I really like is leaving and going to another Hospice where most of the nurses who quit the present Hospice company have went to. Its Elara Hospice who I am with now. I was wondering does anyone think I should transfer to the other company Luminoes. Also another reason several times I had called the emergency Elara and was on hold then one time no one answered. I had to call 911 both times is that normal for Hospice Companies?
Oh, you ask if that is normal for a Hospice company. NO! It is unacceptable.
It sounds like this one you initially chose is having trouble and will not be able to meet your needs!
I’m really glad you shared all of this with us. I can hear just how tired you are, and I want you to know first and foremost that everything you’ve been doing for your mom is loving, responsible, and more than enough.
What you experienced early on — the oxygen issues, lack of instruction, missing supplies, and not getting through to anyone during emergencies — would have been overwhelming for anyone. Needing to call 911 because hospice didn’t answer is not something you should ever have had to deal with, and it makes complete sense that it shook your confidence.
At the same time, I also understand why you’d want to pause right now. A snowstorm, everything you’re carrying emotionally, and the thought of another transition would exhaust anyone. If things truly feel a bit more stable and your mom is comfortable, it’s okay to give yourself permission to take a breath and not make a big decision this minute.
What I do want you to remember is this: you already did the hardest part. You advocated, you lined up another option, and you proved you can act if you need to. Waiting for now doesn’t mean you’re stuck — it just means you’re choosing the least draining option today.
Please don’t doubt yourself. If at any point the responsiveness drops again, or you feel uneasy about emergency support, that’s your signal — and you’re absolutely allowed to switch. Hospice care is supposed to support you, not add to your stress.
We’re here with you in this, and I’m always happy to listen or help you think things through. You don’t have to carry it alone.
We had three different hospice companies and had terrible, unethical problems with the first two. I should have reported both companies to HHS. Hospice has become a money maker that many individuals have bought into, so he careful. We now only use home health and are much happier. My mother is not at “end of life”. All three hospice companies had to look for ways to qualify her.
I hope you have success in finding what meets your loved ones needs.
I would first call and talk to a Case or Team Manager and explain the problems you have had. Changing or not none of what you described is acceptable.
If you want to change, and you have every reason to want to change do not expect to get the same people that you liked previously as most Hospice have Areas that a Team is assigned to and you do not know what Area you are in.