They killed my father who has stage 4 lung cancer. He was receiving their care at home. They would knock him out with their concoction of pills! They took him off of his blood pressure pills and his lupus pills. They told us to quit giving him water anything to drink.
I've witnessed this several times with loved ones going through the dying process. Some years ago, I had a client who was in the active stages of the dying process.
The body goes through a shut down process before the actual death takes place.
Right now, you are grieving. Anger is part of the grieving process. It is a normal response to be angry at the medical team who took care of your dad in his final moment.
I'm sorry for your loss.
They were not killed by hospice. They were killed by whatever disease got them admitted to hospice in the first place.
While I certainly cannot rule out that in the many years of hospice care, someone may have died (early) as a result of something a hospice nurse did - at the end of the day - hospice is an end-of-life comfort care organization. They are admitted to hospice with a diagnosis that gives them fewer than 6 months to live (that does not always mean that is the timeline, just that it is the parameter).
Often, people who believe that hospice killed their loved one had not yet come to terms with the fact that their loved one was actively dying. That is a very hard thing to accept. But if you aren't able to process and accept it, it can feel like hospice had a hand in it. They don't. They are there for comfort care, to ease the end-of-life transition. Stopping water and food may seem cruel, until you realize that doing those things could cause a very unnecessarily painful way to die, because the body is shutting down and cannot process the intake. Choking on food they have no way to process or taking in more fluid when they are already drowning internally can be very cruel - with no cruelty intended.
Hospice is not intended to be curative. They are intended to comfort the loved one - and the family as the time comes.
The nurse is only over there weekly. Someone else was giving him pills, so,eome in the family.
Hospice is end of life. Its confort care. Stage 4 your Dad was dying. Family is taught how to give medication. All life sustaining medications are stopped. Morphine is given for pain, which you father was probably in a lot of. Its also given for ease of breathing. Sometimes a person is knocked out with Morphine because the pain is so bad thats the only way it can be controlled. People dying get anxious which is not good for them so they are given something for that.
Having problems swallowing is the first sign that the body is shutting down. At that point food and water are stopped. The body can no longer digest it. Feeding a person in this stage is more harmful than good. The person is actively dying.
Everything you have mentioned is how Hospice works. They are not there to keep a person alive, they are there to make them as comfortable as possible during their transition and hopefully with no pain. They did not kill Dad, the lung cancer did. He would have passed with or without Hospice.
It looks like you just popped into the WRONG FORUM for your needs.
We who have struggled with and FOR our loved ones, for the most part have nothing but good to say of Hospice.
While we might long for the hospice of old, where it was not such a rote thing of three baths a week, one RN visit, free equipment rental, one Social Service call, one Clergy call, etc.--the old way where it was a menu designed to OUR/THEIR needs--We are still left with "as good as it gets here" in terms of good supportive end of life care devised to spare our loved ones endless and needless suffering.
Sorry, it is SELFISH to wish to have your loved one tormented endlessly so that you do not have to face what is, if we live long enough, an inevitable loss.
You need help. Please seek it with a good mental health professional.
Someone had to request hospice care, because they saw that his life was not going to be prolonged any further with medication, and the benefit of hospice is providing a nurse and comfort care, as well as emotional support for the family.
I'm so sorry you've lost your father.
After I spent the last night with dad, I researched quite heavily what dosages ir would take to actually kill someone and what else would need to be done so that I could take myself out were i in this state. It takes a lot. It takes knowing what to mix them with. Its not something a nurse will facilitate.
If someone or their POA isn’t satisfied with the care hospice provides, they can sign themself out. No more hospice! So why was dad left in hospice care?
My sincere condolences.
Hospice was doing what hospice does. I'm very sorry for your painful loss and the extra pain of believing he wasn't going to die if it hadn't been for hospice. Please accept that hospice did not kill your Father. May you receive peace in your heart as you grieve.
I’m sorry your dad died. Hospice did not murder your dad.
The DSM-4 diagnostics now define "Complicated Grieving" as a diagnosis that requires the help of the mental health community. This means that your insurance will often cover your seeing a really good in person cognitive therapist to help you with your grief. I highly recommend seeking help for yourself.
Do know that Hospice also will help with complicated grieving, and grief of your loss. They have Social Workers and clergy to help you.
I am so sorry for your loss. We all will lose our parents. Those enough to have them see us into adulthood are lucky indeed, and lucky when we love them so much that their loss is hard to bear. But in your grieving your Dad's loss learn to also give thanks for suffering you didn't have to witness; prior to hospice as an RN I saw things that were truly unbearable. And also remember to celebrate a life of love well-lived.
My very best to you. Give yourself some time. Then seek help for yourself. You deserve that.
You hostile view of hospice I believe is not accurate and I believe defense mechanism to cope with the decline of your father. Life expectancy of this diagnosis is 4-13 months without treatment. And, that is where Hospice comes into play. When going into Hospice care the process is clear and concise with the patient and patients representative.
Did you confer with your father or his proxy his wishes? Are you in a state that is accepting of medical assisted death and perhaps your father has chosen this route for end of life care?
I am truly sorry for the anguish it has caused you and would recommend grief counseling. Wishing you peace and strength during this difficult time.
A person on Hospice can continue with medications. If they are not covered by hospice they can be paid for "out of pocket"
If he was refusing fluids and food they were right to tell you to stop giving him fluids and food. To give fluid and food when the body is not processing it can cause more harm and can be painful. If he was still eating and drinking then you continue to give food and fluids. To not give food and fluid to someone that is still eating and drinking is negligent and you and any caregiver could still provide nutrition. (If he is still able to eat or drink)
Hospice does not "kill people"
First of all to "kill" patients would not be a wise financial decision. When the patient dies they no longer get paid by Medicare, Medicaid or other Insurance.
What you have to realize is ALL patients on Hospice ARE GOING TO DIE. It is a matter of when and no one can predict that.
Unfortunately many people are referred to Hospice far too late in the disease process. many die within a week of getting on Hospice so the patient nor the family can take full advantage of what Hospice can offer. Part of the blame is on the doctors that refuse to "give up" and will continually treat a patient that has no chance of recovery. And part of the blame is on family that refuse Hospice because they don't want to accept that their LO is dying. And the uninformed few that believe that hospice "kills people"
If you actually think Hospice killed your father then you are within your right to ask for an autopsy and a criminal investigation as to how he died.
I realize you are grieving now and perhaps as time goes on you will come to understand that your dad was going to die and that Hospice did not hasten his death in any way.
I will add...if Hospice does "kill people" and that is what they do they did a real poor job of it with my Husband. He was on Hospice for almost 3 YEARS, He got the best care, I got support and guidance. I could not have done what I did for him if it weren't for Hospice and the wonderful staff.